Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Probiotics?


Superfudge

Recommended Posts

Superfudge Rookie

I know a lot of you take probiotics, and I'm wondering what you'd recommend. When I met with my dietician I asked her, and she said anything is fine as long as it's refrigerated. But when I got to the store, whoa, there were a TON of choices! Different numbers of bacteria, huge price range, different things it's supposed to help... I don't know where to start! I just randomly chose one, and I'm not sure if it's helping or not (doesn't appear to be hurting either). Any recommendations? I am lucky to live in an area that is very good for special diet needs, but this is crazy!

Also, I've seen people mention enzymes. What kind, and where would I find those?

As always, thanks for your help! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

I know a lot of you take probiotics, and I'm wondering what you'd recommend. When I met with my dietician I asked her, and she said anything is fine as long as it's refrigerated. But when I got to the store, whoa, there were a TON of choices! Different numbers of bacteria, huge price range, different things it's supposed to help... I don't know where to start! I just randomly chose one, and I'm not sure if it's helping or not (doesn't appear to be hurting either). Any recommendations? I am lucky to live in an area that is very good for special diet needs, but this is crazy!

Also, I've seen people mention enzymes. What kind, and where would I find those?

As always, thanks for your help! :)

What kind of probiotics, potency (different number of bacteria) and when you take them, depend on what you want from probiotics. Do you want to improve your digestion? Do you have chronic bloating, irregularity (diarrhea or constipation), even after abstaining from all gluten and other diagnosed food allergies? Have you taken antibiotics either recently or in the past? Have you ever had any gastrointestinal infections (bacteria, parasites or fungus like candida)?

Superfudge Rookie

Pretty much yes to all of those, although the bloating and other GI issues have much improved gluten free (have only been gluten-free since August 10). I'm not sure exactly why she recommended probiotics, but I'm guessing to help my overall digestion and to normalize the good bacteria in my intestine after years of "abuse." I wish she'd been more specific

bluebonnet Explorer

well my gi doctor suggested sustenex which doesn't require refrigeration (due to the improved research to keep it alive). they have a website that you can print a coupon. you want atleast 2 billion (min.). take it daily. there are several good ones out there. there is another one he recommended that started with a c and i can't remember the name right now (sorry!) but i remember how expensive it was ... around $40! over a dollar a day is a little to pricey when there are other options that are as reliable. good luck! :)

Skylark Collaborator
BTW, the bacterial GI infection was many years ago, and I did have antibiotics for that. I also had a scorching case of food poisoning about 7 years ago — so bad I had to go to the hospital for intravenous fluids, and also had them for that. I suspect the food poisoning may be what triggered my celiac response, because I haven't really felt right ever since.

Campylobacter infections have been shown to trigger celiac.

I have had good results at various times with Threelac and FermPlus for yeast. They are both pricey too, and I mail order them. I can also get Yakult here so I grab a pack whenever I'm at the grocery store.

Looking for answers Contributor

Renew Life makes several kinds that work very well. I also like Jarrow, which is on the cheaper end.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,867
    • Most Online (within 30 mins)
      7,748

    mark847
    Newest Member
    mark847
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.