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Number Of People On The Board

jaimek

By jaimek
in Board/Forum Technical Help

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jaimek Enthusiast
jaimek
Posted

I just took notice of the fact that I joined this board on February 10th, 2004 and was member #771. One year later, February, 2005, there were almost 4,000 members. That means over 3,000 people joined this website in one year. I think that is just insane!!!! I guess people are really becoming more knowledgable when it comes to Celiac and I think it's great!!!!! :lol:

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celiac3270 Collaborator
celiac3270
Posted

Yea...the funny thing, though, is that there are only maybe 200-400 people who post even semi-frequently.

Carriefaith Enthusiast
Carriefaith
Posted

yeah I've noticed that some people make a few posts and then disappear and a lot of people have joined and have not posted at all. But that is an insane amount of people!

Guest Viola
Guest Viola
Posted

Perhaps the people who don't post are finding the answers to their questions just listening to the rest of us who do. I hope so, it would be nice to know that we are saying something right and helping the ones who just drop in to read ;)

:lol: in some subjects they are certainly getting a variety of opinions at least.

KaitiUSA Enthusiast
KaitiUSA
Posted

I'm sure quite a few people read the posts but they do not post..I did that for a while(about 2 months) when I joined this site.

I sure hope that they are getting help from the posts.

scotia Newbie
scotia
Posted

Hi Guys, yes you're right...it takes time once you find this wonderful website to pluck up the courage to post...unless, like some of us, you're fond of the 'sound' of your own voice, or like seeing yourself in print :lol:

I believe a lot of people come into browse and pick up info based on our own experiences and take it away to see how it helps make their own experiences easier to cope with.

If there's one thing I've found, it sure helps to be self effacing, and have a sense of humour.

A friend of mine house sat while I was away for the weekend...

I nearly peed myself, when I found out they'd made a sandwich with the rice bread I bought at the local bakery...(you have to toast it to make it edible), but it does in a pinch.

Imagine this person, getting all the meat, cheese, and fixings, then putting the bread together...and taking a bite....(un toasted...) ha ha ha...

I can imagine the look on their face, as the bread disintegrated in their hands, and they found out two 'important' things, rice bread sucks, and rice bread should be toasted first!

Gotcha!!!

Scotia.

Carriefaith Enthusiast
Carriefaith
Posted
I can imagine the look on their face, as the bread disintegrated in their hands,
:lol:

it takes time once you find this wonderful website to pluck up the courage to post

It took me about a month or two to finally make a post and then I even came on as an anonymous member once in a while. Oh I was silly. I don't know what I was scared of ;) You guys are great!

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celiac3270 Collaborator
celiac3270
Posted

My diagnosis day I just...noticed this site was here, next day I barged right in with my first post. :lol: No fear here...or maybe more fear of not knowing than about the people or the board :) .

mjbonsais Rookie
mjbonsais
Posted

Some people are more introvered or extroverted as well. Many just want to learn and if they peruse this particular board and gain knowledge then it is doing the job it was intended.

Have a great afternoon!

Mary Jo java script:emoticon(':D')

mytummyhurts Contributor
mytummyhurts
Posted
you're fond of the 'sound' of your own voice, or like seeing yourself in print  :lol:

:D That's me!

I'm pretty shy in real life, but I find it easy to come in here and say stuff because nobody knows me personally.

I think it's exciting so many people have joined. I think the knowledge of celiac is spreading fast! Let's keep it up!

plantime Contributor
plantime
Posted

I guess I'm extroverted: I was posting my first day on the forum. It is an excellent source for reading and learning!

judy05 Apprentice
judy05
Posted

Hi,

I post once in a while whenever I think I can help someone (maybe I had the same problem). Although I don't post a lot I still read the forums that I think apply to me. I have really learned a lot, you guys are great!

I just want to add that I think a forum for newbies would be great, you moderators are great about giving the basic info but it wouldn't it be easier to have it all organized for someone new? Just a thought.

  • 3 months later...
paw Apprentice
paw
Posted

Hello everyone. I am new. I am still being diagnosed so I don't know if they will call me Celiac or not. I certainly have a lot of symptoms that are consistant. My family doctor and the gastroenterologist both suspect that I have problems with wheat, but no true diagnosis yet. I have been hanging out here and READING everything.

It is a whole new way to live. You have to change where you shop, what you buy, how you cook and on and on and on. Even if I don't get a diagnosis of Celiac, I think I am gluten intolerant at the least. I will be trying it to see if it helps once the tests are done with.

It is not that I don't want to talk to you, it is just that so far I don't have a lot to add to the conversations. :) Thanks for sharing so much helpful information with the newbies.

Rachel--24 Collaborator
Rachel--24
Posted
My diagnosis day I just...noticed this site was here, next day I barged right in with my first post. :lol: No fear here...or maybe more fear of not knowing than about the people or the board :) .

<{POST_SNAPBACK}>

:lol: Guess I was the same way except I barged in with a ton of questions *before* I got diagnosed....everyone here was great and thank God I learned about Enterolab since my bloodtests were neg. and I was really suffering.

Might seem hard to believe but in real life I'm pretty shy....until you get to know me. :)

FaithInScienceToo Contributor
FaithInScienceToo
Posted

I, too, spent time just reading before posting - it was enough to try to learn how to be gluten-free...

But, now I mostly just try to be supportive, and share what I can -

I have had A LOT of time on my hands in the past month or so, as I have been recovering from some serious surgery.

I go back to my old schedule this coming week, so won't be posting as often, but I will make it a point to come here weekly to read new posts I feel might help me further understand this disease AND to 'pay it back' by adding my support/sharing my knowledge with others.

In real life, I am an extrovert, so posting was never/is never threatening to me - if anyone knows anything about the "Kiersey Temperament Sorter," I am an ENFP - the most likely of his 16 personality types to be on here, encouraging others ;-) It's a GREAT personality test - you can find it in "Please Understand Me, II" - by David Kiersey, plus tons of information about each personaity type :)

(Available in paperback, at your nearest on-line bookseller...)

Anyway...besides my being an extrovert and bookaholic...

I am truly thankful for all those members who summon up the courage to share and care, even if YOUR personality type doesn't make that as easy for you as it has been for me.

LOVE, Gina

ianm Apprentice
ianm
Posted

It is pretty typical for online forums to have lots of members but only a handful that post. I jumped right in but I also believe very strongly that everyone does have a right to my opinion. :lol::lol:

sonjaf Rookie
sonjaf
Posted

Here's my two cents worth: I have been reading this site since I found out I had celiac disease in March 05. I have also been spending A LOT of time trying to figure out what to eat! It's been really hard, since I had to change my entire lifestyle and eating habits. So, most of the time I have to spend browsing the internet, I was on websites shopping for food and restaurants that I could enjoy. Now that I have a handle on things, I am concentrating on not "glutening" myself!

Thank you to all the old and new members that post such helpful advise. Sad thing is that there are so many of us out there, and still everytime I tell someone I have celiac disease they have no idea what I am talking about. I wish the media would do more to educate the public about food allergies and intolerance. One of my sons is allergic to peanuts, eggs and milk, and I have had to educate our entire family, his school and friends, and everyone else he meets about his dietary needs. (Thankfully, both sons are negative for celiac disease!!! Thank God for hugh miracles). :rolleyes:

SonjaF

tonyevans Newbie
tonyevans
Posted

I've been involved in a variety of lists from about 1992 and been moderator of a few. It has always been my experience that there are a very high perentage of Lurkers on any list.

Most are just content to read the posts that interest or affect them, many get their answers that way without needing to ask a question.

As long as people can get sound advice that way the list serves.

Just my 2c

Tony E

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

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      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

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