Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Hard Is It To Be Careful?


sandsurfgirl

Recommended Posts

sandsurfgirl Collaborator

I'm never eating at Pei Wei again. I ate there for months frequently off the gluten free menu with no problem. Then on the weekend of July 4th they got me BAD. I was sick the entire weekend.

I gave them another chance and explained the manager that I'm very sensitive in my reactions, I got sick once before and please be extra careful with my meal.

So I'm biting into my salad and I feel this loud crunch. I can taste the wheat. It's a wonton noodle!! I spit it out and ran to wash my mouth and brush my teeth but I'm now getting that familiar pain in my gut.

So mad. No more Pei Wei for me. I sat and cried my eyes out at the dinner table. I was so hungry and I really love their food but it's not worth it. They got me twice. I ended up with frozen gluten free taquitos in the microwave. Not what I wanted to eat tonight.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
GliadinX
Holidaily Brewing Co.



Celiac.com Sponsor (A8-M):
Food for Life


SGWhiskers Collaborator

Hugs. I'm so sorry. You've had a pretty tough couple of weeks. I hope you showed the manager the noodle or talked to him about it.

You ask how hard it is to be careful? It really depends on your sensitivity. I get cc from the things that wouldn't bother others. Eating out is next to impossible for me. For many, careful planning is all that is needed. I strictly avoid the dinner and lunch rush. I go an hour before it gets busy. 4:30/5:00, 11:30 lunch. I talk to my waitress and I speak with the cook/chef. I leave a great tip and I find out when the waitress/cook usually work so that I can time my return visits. I get cc more often when I feel social pressure to go out during busy hours even to GIG restaraunts. The kitchen is more likely to cut corners and make mistakes. Also everything gets cross comtaminated as the night goes on. You did the right things and it sounded like PeiWei was a good safe place for you. I wonder about staffing changes.

It is frustrating. If I want to go out to dinner with friends at a busy time, I take along my own food which I might eat instead of ordering if the place looks busy or the waitress is clueless.

Right now, there is a Noodles restaraunt in town I want to try, but I'm too scared.

I hope you get back to normal soon.

lucia Enthusiast

Argh! You did everything right, and yet ...!

I'm at a point where I'm very upset about the prospect of (mostly? totally?) having to give up food from restaurants. I can only growl in sympathy with you. It sucks.

Skylark Collaborator
  On 9/18/2010 at 5:19 PM, lucia said:

I'm at a point where I'm very upset about the prospect of (mostly? totally?) having to give up food from restaurants. I can only growl in sympathy with you. It sucks.

Me too. "Growling in sympathy" is such a perfect phrase!

Aphreal Contributor

Oh darn, I am so sorry to hear you got hit again :( I only have 2 places I go. One mom n pop joint that I know uses no fillers. Meat patty with cheese and mashed potatoes and beans and cheese from tacobell. Anywhere else... I make my own food at home. I am tired of messing with restaurant food.

Gentle hugs, feel better soon!

Tiff

GypsyGirl Rookie

Ugh!! So sorry. It's depressing how many people just don't understand or worse, don't care.

I haven't been brave enough to eat out yet, and I dread what it's going to do to damage the family traditions. I was already very limited in what I could get a restaurants, but at least I could usually find SOMEthing, but now with the gluten thing, I can't imagine it really being worth the risk...

Very sorry you've been slammed twice so close together, that's just miserable.:(

sandsurfgirl Collaborator

Let's just give a big growl together! GRRRRRRRRR LOL

I hate that every time I eat out it's a risk. I hate it. But I will not quit eating out. I just won't. (yet)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Daura Damm



Celiac.com Sponsor (A8-M):
Holidaily Brewing Co.


Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      130,198
    • Most Online (within 30 mins)
      7,748

    David Pearch
    Newest Member
    David Pearch
    Joined

  • Celiac.com Sponsor (A20):
    Tierra Farm


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Authentic Foods



  • Upcoming Events

  • Posts

    • knitty kitty
      Hi, @thejayland10, Do you still consume dairy?  Dairy can cause increased tTg IgA levels in some people with celiac disease who react to casein, the protein in dairy, just like to gluten.   You might try cutting out the processed gluten free foods.  Try a whole foods, no carbohydrate Paleo diet instead, like the AIP diet (the Autoimmune Protocol Diet by Dr. Sarah Ballantyne, a Celiac herself). Processed gluten free foods can be full of excess carbohydrates which can alter your microbiome leading to Small Intestinal Bacterial Overgrowth (SIBO).  SIBO is found in some people who are not responding to a gluten free diet.  SIBO can elevate tTg IgA levels.  The AIP diet cuts out sources of carbohydrates...
    • trents
      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears...
    • AllyJR
      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available. 
    • boy-wonder
      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I  2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle aged spread. I'd been lucky all my life having good metabolism and being able to eat anything and as much as I like without putting on any weight, it drove my other half mad. Over a conversation with a friend health and age Related stuff came up and he mentioned someone he knew who had recently found out they were gluten...
    • ValerieC
      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
×
×
  • Create New...