Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Bad Night Sweating...what Could It Be?

shendler

By shendler
in Related Issues & Disorders

Recommended Posts

shendler Rookie
shendler
Posted

Hey

So for as long as I can remember vie also had very bad night sweats. I dont have this problem during the day just at night. It isn't the temperature in the room that is causing the problem nor is it from wearing hot clothes.

It's getting very bad and when I wake up in the middle of the night Im soaking wet. What could it be?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lucia Enthusiast
lucia
Posted

If it's getting worse (& I can see that you've been off gluten for over a year), then I would suggest talking to a doctor.

Sorry, I know that's not helpful. It's just that it could be a symptom of something serious. Or not.

Although if the M.D. doesn't find anything, I will say that a holistic health practicioner (Chinese herbalist/acupuncturist, ayurvedic doctor) would still find it to be a serious indicator that something is awry with your body.

Wolicki Enthusiast
Wolicki
Posted

Have you been strict with your diet? The reason I ask is because I suffer horrible night sweats (buckets!) when glutened, and it was awful before going gluten free. It has miraculously stopped, as long as I don't get accidental gluten.

How old are you? Could it be perimenopause or menopause?

kenlove Rising Star
kenlove
Posted

I used to go through 6 or 7 t-shirts a night they were so wet. Had been off gluten for 3 or 4 years at that point too. The docs could not figure it out but ordered a total blood work up and found I was again without a number of hormones and vitamins. A month on supplements and it was fine. Still happens once or twice every 4 or 5 months if I get glutened.

Good luck

Hey

So for as long as I can remember vie also had very bad night sweats. I dont have this problem during the day just at night. It isn't the temperature in the room that is causing the problem nor is it from wearing hot clothes.

It's getting very bad and when I wake up in the middle of the night Im soaking wet. What could it be?

shendler Rookie
shendler
Posted
  • Author

I am not eating gluten. I prepare all my food in a gluten free kitchen. Plus when I do eat gluten I can tell within 30 minutes based on how tired I get. I've been to the doctor but there is nothing in my blood that indicates a problem. I'm only 25 so I do not think it is menopause. Plus it only happens at night.

'lynrn Apprentice
'lynrn
Posted

There are many conditions not related to gluten that can cause night sweats, one of which is TB/Tuberculosis...yes it is still very much alive and around us...not saying it is...but early infections, this included, can cause severe night sweats. Go back to your doctor. TB can often be ruled out by a simple skin test or a chest x-ray. Night sweats tell you SOMETHING is going on....

kenlove Rising Star
kenlove
Posted

I would try to get additional blood test for micronutrients and hormones. As a celiac the body does not get everything it needs. Also Sweats can be from other allergies you get after celiac. It was 5 years but now I'm off of all dairy too.lots of changes can happen so for me it was a matter of bugging the doc to give me as many tests as he could think of and then get the appropriate supplements.

good luck

ken

I am not eating gluten. I prepare all my food in a gluten free kitchen. Plus when I do eat gluten I can tell within 30 minutes based on how tired I get. I've been to the doctor but there is nothing in my blood that indicates a problem. I'm only 25 so I do not think it is menopause. Plus it only happens at night.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

I tend to think it could be caused by a low-level fever, possibly a food intolerance reaction. There are lots of things other than food intolerances that could cause night sweating I think, but it is a as good a place to start looking as any.

undiagnosedillness Newbie
undiagnosedillness
Posted

I'm not 100% sure but I've been told Thyroid problems can cause night sweats. I get them too and day sweats (dreadful things, not looking forward to summer this year) and I have a goitre, yet thyroid function blood tests always normal for me

Maybe ask for thyroid testing?

Samantha :)

kenlove Rising Star
kenlove
Posted

HAve them check the parathyroids by ultrasound too. That regulates something with calcium which also affects my sweating.

good luck

I'm not 100% sure but I've been told Thyroid problems can cause night sweats. I get them too and day sweats (dreadful things, not looking forward to summer this year) and I have a goitre, yet thyroid function blood tests always normal for me

Maybe ask for thyroid testing?

Samantha :)

Open Original Shared Link

minniejack Contributor
minniejack
Posted

Hey

So for as long as I can remember vie also had very bad night sweats. I dont have this problem during the day just at night. It isn't the temperature in the room that is causing the problem nor is it from wearing hot clothes.

It's getting very bad and when I wake up in the middle of the night Im soaking wet. What could it be?

Initially, that's what the #1 complaint that we kept going to the doctors for my DS now 15. He ended up with vomiting, ADHD, diarrhea, acne.... He's been gluten-free for almost 2 yrs and no night sweats, stomach issues gone, ADHD gone--we're just dealing with normal teenage issues. Amen!

Oh and at first we had to eliminate sulphites and milk products--his body can handle them now, though.

  • 2 weeks later...
up late Newbie
up late
Posted

I get them too, oddly more when it's cold, it's when I get shivering with them I go to the Dr.

Low grade fever could cause night sweats. Did the dr check your urine for a urinary tract infection? They can be chronic and don't always have pain with them.

Lizking531 Rookie
Lizking531
Posted

Yeah - I used to get horrible night sweats as well. That was one of the indicators originally to go to the doctor. When I originally got my bacteria overgrowth issues under control, my waist slimmed down a lot & the seat went away. Now many symptoms have crept back in, but luckily, the sweats have stayed away for the most part.

For me, it felt like more of a response, like something was going on to create the heat that being dissipated thru my sweat & it would make sense that intolerable foods & bacterias were having a party & heating things up in there.

  • 2 weeks later...
BoydBT Apprentice
BoydBT
Posted

I would try to get additional blood test for micronutrients and hormones. As a celiac the body does not get everything it needs. Also Sweats can be from other allergies you get after celiac. It was 5 years but now I'm off of all dairy too.lots of changes can happen so for me it was a matter of bugging the doc to give me as many tests as he could think of and then get the appropriate supplements.

good luck

ken

All this I never knew, thank God I joined this forum. The stupid Doctors have no time to really go into all this. But I too have night sweats , I get soaked.

It doesn't happen often now but yes but a few times a week. I must be more careful.

What does CC mean exactly. Crappy Celiac.

I am glad to have found out why, now.

  • 3 years later...
Jess27 Newbie
Jess27
Posted

Hi,

 

I to get very bad night sweats, Iv had it for about a year and a half and its every night! I wake up all the time drenched in sweat from head to toe and it stinks! I have been to the doctors and have had so many blood tests. I have been tested for Diabetes, HIV, Thyroid problems, and TB. They all came back negative. The doctor has also ruled out early menopause and a few other things. I have also been tested for celiac but that came back negative to and they wont do a biopsy. My little sister has been diagnosed with chronic celiacs but her blood tests came back negative as well, it wasn't until she had a biopsy that she was diagnosed. I went gluten free for about a month and the sweating halved. So im guessing that i really should go gluten free to see if the sweating stops al together?   

kenlove Rising Star
kenlove
Posted

My sweating comes and goes even though i've been  gluten free for almost 9 years. It is less than it was before I went gluten-free but it still happens. Now I think its tied into the supplements I take which also might cause frequent urination.  It cant hurt you to go gluten-free unless you plan to get  certain tests. I also need a endoscopic exam to confirm celiac.  good luck

Hi,

 

I to get very bad night sweats, Iv had it for about a year and a half and its every night! I wake up all the time drenched in sweat from head to toe and it stinks! I have been to the doctors and have had so many blood tests. I have been tested for Diabetes, HIV, Thyroid problems, and TB. They all came back negative. The doctor has also ruled out early menopause and a few other things. I have also been tested for celiac but that came back negative to and they wont do a biopsy. My little sister has been diagnosed with chronic celiacs but her blood tests came back negative as well, it wasn't until she had a biopsy that she was diagnosed. I went gluten free for about a month and the sweating halved. So im guessing that i really should go gluten free to see if the sweating stops al together?   

  • 1 month later...
Aleka Munroe Rookie
Aleka Munroe
Posted

I have  21 years diagnosed with celiac disease and am religious about eating gluten-free. I went through heavy night sweats through peri menopause and menopause then they stopped post menopause. About a year ago the sweats started again, I began to notice an extremely dry mouth (worse than ever before) and as time went on I had a constant bad taste in my mouth. Additionally I noticed my blood pressure levels became erratic. I reported all of this to my three specialists and one primary doctor, the last of which was doing a CBC every three months. In September my primary care referred me to a nephrologist due to abnormal creatinine levels in my blood, although my urine had no negative test results. Days after I met the nephrologist he put me in the hospital with a diagnosis of Stage 5 (End Stage) Renal Failure. When I left a week later they had gotten it down to Stage 4. Since then I've had a kidney biopsy. My kidneys are permanently damaged due to scarring with 50% functioning. There is no known reason for this. Tests prior to January of 2013 showed no creatinine disfunction. My nephrologist told me there is growing research showing a correlation between Chronic Kidney Disease and Celiac Disease. Given my situation, I suggest you have your creatinine levels tested and GFR calculated. Request that you be followed carefully and frequently if your creatinine is lower than 95. 11 months ago mine was 90 and my physician did not note it until it dropped to 40. I don't know if he or I had known this sooner my kidney disease perhaps would not be at Stage 4 now. This means I must go on dialysis and will need a transplant eventually.

kenlove Rising Star
kenlove
Posted

Thanks so much for posting this and warning us about creatinine levels. Goimg to send the info to my Kaiser doc now. Good luck!

 

I have  21 years diagnosed with celiac disease and am religious about eating gluten-free. I went through heavy night sweats through peri menopause and menopause then they stopped post menopause. About a year ago the sweats started again, I began to notice an extremely dry mouth (worse than ever before) and as time went on I had a constant bad taste in my mouth. Additionally I noticed my blood pressure levels became erratic. I reported all of this to my three specialists and one primary doctor, the last of which was doing a CBC every three months. In September my primary care referred me to a nephrologist due to abnormal creatinine levels in my blood, although my urine had no negative test results. Days after I met the nephrologist he put me in the hospital with a diagnosis of Stage 5 (End Stage) Renal Failure. When I left a week later they had gotten it down to Stage 4. Since then I've had a kidney biopsy. My kidneys are permanently damaged due to scarring with 50% functioning. There is no known reason for this. Tests prior to January of 2013 showed no creatinine disfunction. My nephrologist told me there is growing research showing a correlation between Chronic Kidney Disease and Celiac Disease. Given my situation, I suggest you have your creatinine levels tested and GFR calculated. Request that you be followed carefully and frequently if your creatinine is lower than 95. 11 months ago mine was 90 and my physician did not note it until it dropped to 40. I don't know if he or I had known this sooner my kidney disease perhaps would not be at Stage 4 now. This means I must go on dialysis and will need a transplant eventually.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,692
    • Most Online (within 30 mins)
      7,748
    Linda M Rush
    Newest Member
    Linda M Rush
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Since 2015 we've spent extensive time in Italy and I've been able to eat their wheat products without incident. Initially, I was practically starving thinking foods in Sicily were not gluten-free.  An Italian friend who had lived in the US for over 20 years said she had celiac/gluten-free friends from the US who could eat Italian wheat products without problems. Hesitantly, I tried little by little without issues.  A few years later at a market, I asked a bread vendor if they had gluten-free loaves. Turns out she had lived in LA, said groups believe it's not the gluten that's causing our bodies harm, but potassium bromate; these groups have been trying to ban it.  Bromines and other halogens wreaks havoc to our endocrine system and, more specifically, our thyroids and immune systems. When bromines are ingested/absorbed into the body, it displaces iodine causing other health issues. Potassium bromate is a powerful oxidizing agent (dough 'conditioner') that chemically changes flour to enhance elasticity, bleaches the dough, and ages the flour much faster than open air.   Shortly thereafter while visiting friends in California, one family said they had gone gluten-free and the difference was incredible. The reason they choose this path was due them (a biologist/chemist/agriculturist scientist) having to write a portion of a paper about a certain product for the company he worked. Another company's scientist was directed to write the other portion. All was confidential, they weren't allowed to know the other company/employee.  After the research, they learned gluten was being removed from wheat, sent elsewhere, returned in large congealed blocks resembling tofu, and then added to wheat products. Potassium bromate has been banned for use in Europe, China, and other countries, but not in the US. Then we have the issues of shelf preservatives and stabilizers. What are we eating?  Why? We spend long periods of time in Italy and all has been good.  We just returned from an extended time in Greece;  no issues there either.  There is a man there we learned about on a travel show about Greece who walks the hills, picking herbs, pods, etc.  He is a very learned scholar, taught at the university level in Melbourne. It took a few days to locate him, but were finally successful. He too, is concerned about the additives and preservatives in American food (many of his customers are Americans, haven't been in the best of health, and have become healthier after visiting him). He suggested taking a food product from the US and the same product in Europe, and compare the different ingredients. Then ask why these things are being allowed in the US by the 'watch dog' of our foods and drugs. It would be amuzing if it weren't tragic. I'm presently looking for flour from Europe that I can make my own bread and pasta as the gluten-free bread is now $7.99 a (small) loaf.  BTW, studies are showing that many gluten-free individuals are becoming diabetic. My guess is because the gluten-free products are high in carbs. This is only my experience and opinion garnished by my personal research.  I hope it helps.  
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured.  The blood circulation system is a transportation system.  It transports the vitamins you've absorbed around the body, but blood tests don't give an accurate picture of the vitamin and mineral stores inside organs and tissues where they are actually used.  You can have "normal" blood levels but still have deficiencies.  This is because the brain demands stored nutrients be put into the blood stream to supply important organs, like the brain and heart, while other organs do without.   If you are taking Thiamine Mononitrate in your supplements, you are probably low in thiamine.  Thiamine Mononitrate is used in many supplements because it won't break down sitting on a shelf.  This also means Thiamine Mononitrate is difficult for the body to utilize.  Only thirty percent of Thiamine Mononitrate on the label is absorbed and even less is able to be utilized by the body.  A different form of Thiamine called Benfotiamine has been shown to promote intestinal healing.   Talk to your doctor about doing a genetic test to look for Celiac markers.   I'm concerned that if you do a gluten challenge (10 grams of gluten per day for a minimum off two weeks) in your weakened state, the nutritional deficiencies will become worse and possibly life threatening.  
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello, good afternoon!   I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.”   I like and have a sense of trust here in this website, everyone is honest and thoughts are raw. The mutual understanding is amazing!   thank you Scott!
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.