Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Are Your Symptoms?


SuperMolly

Recommended Posts

SuperMolly Apprentice

Just curious if you always have the same symptoms when you consume gluten or if they vary? My symptoms seem to vary. I am trying to discern whether I am reacting only to the obvious gluten or if I have other food issues too. Please share your experiences with me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

Just curious if you always have the same symptoms when you consume gluten or if they vary? My symptoms seem to vary. I am trying to discern whether I am reacting only to the obvious gluten or if I have other food issues too. Please share your experiences with me!

my symptoms TOTALLY vary with gluten!! years (and even just months ago)- it seemed to just be cumulative intestinal pain and constipation & strange bms, plus random skin issues, and anxiety, and oversleeping, and decreased foot padding, etc, etc, etc, but the last few times ive had tachycardia, nausea, and overheating

and yes- many of us, and maybe u too, have additional intolerances. sometimes dairy gives me intestinal issues and some "D". and too much Fructose and Fructans gives me PAINFUL gas and bloating.

ya, its a learning experience for sure. you'll find a lot of info on here, good luck :)

twe0708 Community Regular

Just curious if you always have the same symptoms when you consume gluten or if they vary? My symptoms seem to vary. I am trying to discern whether I am reacting only to the obvious gluten or if I have other food issues too. Please share your experiences with me!

I usually know within about 45 minutes to an hour. It's usually to the bathroom within 45 minutes and then I am good or my stomach blows up with a sharp pain on my right side. So far after about a half hour of the stomach bloating I am fine - except for what I am not feeling with what it's doing to my insides, I did make the wrong choice of eating a donut about 4 months ago at work and within 45 minutes I was very sick and dry heaving at work. Had to leave and on my way home I knew I would toss so I had a bag ready just in case and of course had to use it. Tossed again when I got home and was in bed for about the next 3 hours. I will never do that again! Have found that if I was to eat full on wheat like bread, pizza and of course a donut you have a really bad reaction, but if it's just a crumb then it's just the bloating or a quick trip to the bathroom and it's over.

  • 4 weeks later...
revenant Enthusiast

Just curious if you always have the same symptoms when you consume gluten or if they vary? My symptoms seem to vary. I am trying to discern whether I am reacting only to the obvious gluten or if I have other food issues too. Please share your experiences with me!

I have a few symptoms that are always present after gluten/lactose consumption, and some that vary.

My "always" immediate symptoms: Heavy brain fog, vision distortion (things get very bright and dreamlike, distance distortion, things go slower or things start in one place and end up in the other without me seeing how.), sound distortion, crying/depression, self harm, anxiety, aggression and hatred, ataxia and balance problems, body odour, thrush, very easily distracted and very easily absorbed into things (I could stare at a white wall and be entertained for hours), joint pains, sweating, increased heart rate, feeling of nerve damage in my left knee my lips, neck, stomach, and legs bloat up and my eyes cannot focus>constant eye squinting, and fatigue, diarrhea.

There are odd symptoms that come and go, as you said. I am not sure if this is from other food intolerances. I had one panic attack, and it was from something I ate. I also had a few seizures. My amenorrhea went on and off but that could have been related to the amount I was taking in, or how long I have been without it and the severity of the reaction. I have discovered that my head tightness was from gluten and lactose, but the head-aches and migraines, also my very rare case of vomiting after food, is caused by eggs. I have also discovered that my mouth sores and itchiness in and around my mouth was caused by tomatoes. There was some bloating caused by nightshades.

ElseB Contributor

For me, it actually takes a few days for symptoms to kick in. I actually wish I was one of those people that immediately started vomiting so that I'd know right away! If its just a small dose (e.g. from cross contamination) I have a stomach ache anytime I eat, and that lasts for about a week. If its a bigger dose (i.e. I eat something with gluten as an ingredient - never intentional) its a stomach ache, constant gut gurgling right below my belly button (really weird I know!), and constipation. This all lasts at least a month. And before I got diagnosed, no gastro symptoms. Only low iron and irregular menstruation.

I"m also intolerant to raw apples (but okay if cooked). Precisely 12 hours after eating a raw apple I get bloating and gas.

  • 1 month later...
lsmly9 Newbie

It's funny how my symptoms vary from those with a gluten intolerance. I have a wheat allergy, I have only been free of wheat (and gluten due to the two going hand-in-hand) for a few days now, and after eliminating it from my diet, felt drastically better almost (within two days) immediately. Last night while at work I unknowingly ingested wheat - found out after the fact. As I was eating, my lips began to burn and my tongue began to hurt (weird huh?)45 minutes later during my drive home, I started experiencing sharp shooting pains in my stomach, my muscles began to stiffen up and ache, I started to ITCH LIKE CRAZY, and worst of all, my throat and face began to swell. All of these symptoms I have encountered in moderation before being diagnosed, though nothing like this, not all of them at once and never so intense. By the time I arrived home I was in a fog like state with a major migraine, I literally ran inside and took some benadryl. My allergy-like symptoms dissipated after 20 minutes or so, but the stomach cramps remained. I never ever want to experience such a reaction again, though it's bound to happen. I made sure to stick a few benadryl tablets in my purse & I will definitely be bringing my own meals to work from now on.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748

    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.