Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Maybe My Expectations Were Too High?

cdmom1

Recommended Posts

cdmom1 Rookie
cdmom1
Posted

Hi Everyone-

Well my 8 year old son has been gluten-free for 3 months now. Although he has adjusted well to the change in diet, nothing about him seems any different than before we started (he never had any visible problems, just short and thin). He has not gained any weight, and has not grown either. I have heard many people say how within a couple of months their children started putting on weight, and their kids shot up a few inches. I don't see any change. Our endocrinologist does not want to see him until he is a year gluten free to continue testing him for GH deficiency.

I guess I am just frustrated and probably need to be more patient. Guess I was hoping for some quick visible results but that clearly isn't happening. Anyone else have a child that took long to show some changes?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


precious831 Contributor
precious831
Posted

How much does he weigh now? How tall? Last year when my DD went gluten-free, she gained 3lbs in a month. So the GI doctor and us were very happy about that. Then after that not much. A whole year has gone and she's gained about 2 lbs. She's 3 now and weighs 28 lbs. Now they're concerned again. The doc said to try going grain-free, which is hard because she avoids so much foods due to food allergies, I feel like I'm gonna lose my mind. I'm worried too because she has not grown much. She's been grain-free for close to a month and I'm really praying this it the answer.

I'm also grain-free, I can't tolerate any grains.

Hope this helps.

  • 2 weeks later...
CeliacMom2008 Enthusiast
CeliacMom2008
Posted

I don't remember exactly when our son's growth spurt hit, but I don't think it was in the first 3 months. In fact, I'm almost positive it wasn't that soon. And he really did grow a ton. I think it was more about the 6 month mark, because if I remember correctly it was between spring pants and fall pants that I noticed the huge change. He was 8 1/2 when diagnosed.

T.H. Community Regular
T.H.
Posted

My son was short, but not as thin as he was short.

His growth has not jumped up at all, but he's doing better in other ways. Emotionally more calm, less tired, etc... But he's still a little shorty, about a year later.

cyberprof Enthusiast
cyberprof
Posted

Hi Everyone-

Well my 8 year old son has been gluten-free for 3 months now. Although he has adjusted well to the change in diet, nothing about him seems any different than before we started (he never had any visible problems, just short and thin). He has not gained any weight, and has not grown either. I have heard many people say how within a couple of months their children started putting on weight, and their kids shot up a few inches. I don't see any change. Our endocrinologist does not want to see him until he is a year gluten free to continue testing him for GH deficiency.

I guess I am just frustrated and probably need to be more patient. Guess I was hoping for some quick visible results but that clearly isn't happening. Anyone else have a child that took long to show some changes?

You can see some info in my signature. My son went gluten-free/DF and has done great, but it was six months before he went into puberty (he was 15.5) and he began to grow after that. Prior to going gluten-free/DF his bone age was 12.5 and he looked like a 12 year old. At 15, he weighed 96 pounds and had only gained four pounds in the years between age 12 and 15.5. Now he's 6'1" and is still growing at age 17.

Just my (non-expert) opinion is that older kids (above age 5 or 6) don't recover their growth curve as fast as kids ages 3-5. But trust that he is getting healthier, bit by bit.

My son was always sick before going gluten-free. He "looked" sick all the time. He didn't sleep well. He also fell off the growth chart. The year before he went gluten-free/DF I told his pediatrician that something was wrong, I just didn't know what it was and asked him to test for leukemia, diabetes, thyroid cancer etc. The doc listened to my mother's intuition, but the doctor didn't consider or even mention celiac. I'm rambling but my point is that over then next few months you may see some good changes in your son as his body heals. The growth is just a part of that, and it will happen for your son. My best to you and your son.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...