Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Have To Avoid Glutenous Toiletries If Not Dh?


RachelisFacebook

Recommended Posts

RachelisFacebook Apprentice

I was just wondering, if I don't get DH, do I have to worry about things such as face wash/body wash/things that DO NOT go near my lips if I'm not dh?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cypressmyst Explorer

Yes. Gluten can get in through the skin. For years Docs said it was not possible but new studies indicate that it is. This is in addition to the numerous people who have had reactions (Myself included).

modiddly16 Enthusiast

I'm not sure how accurate the gluten through the skin thing is. All of the studies I've ever seen says otherwise.

I do not avoid gluten containing products because I don't have DH and I've honestly never noticed any problems. Some people well say that you get shampoo in your mouth without realizing it, which is possible but even though I'm sensitive, its never caused a problem for me.

Its up to you and how you live your life!

lovegrov Collaborator

Cypressmyst, can you please give us links or tell us where we can read about these studies. I've seen no such thing and I've used toiletries with gluten with no negative effect. I even have DH.

As to the original question, barring some evidence otherwise (and if I'm shown evidence otherwise I'll edit my answer), most if not all experts do not believe gluten is absorbed through the skin. The molecules are simply too large to pass through the skin barrier. And DH is not triggered by gluten on the skin, either. The main problem is whether or not the toiletries will somehow find their way into your mouth. When you shower will a little bit of that shampoo get in? If you use a soap or lotion with gluten will you then touch your mouth? And you definitely do not want to use lipstick or a lip balm with gluten.

richard

Skylark Collaborator

Yes. Gluten can get in through the skin. For years Docs said it was not possible but new studies indicate that it is. This is in addition to the numerous people who have had reactions (Myself included).

Can you link those studies, please?

I avoid gluten in cosmetics and toiletries because I am slightly allergic and they tend to make me itch.

Cypressmyst Explorer

Sure thing guys, I've put a request in for my Doc to send a link or copy of the study and I'll post something when I hear back.

If it helps in the interim my doctor is Dr. Rick Petersen, author of the Gluten Effect. He isn't average Dr. Moron. :P

Up until 4 months ago he was towing the gluten can't break the skin line (While noting that a number of his patients did seem to be that sensitive) but new studies have made him rescind this.

I've had a reaction to lotion and hand sanitizer immediately upon contact with my skin and I don't have DH. Just got tingles in my hands and then the spaciness and headaches soon followed. No cuts on my hands to speak of either. So I didn't need a study to confirm what my own body was telling me....even though I'd much rather it not be true. :blink:

Rowena Rising Star

Oh this is good to know, I don't have DH (though I do have very sensitive skin). I just started the gluten free diet and I was wondering this myself. My husband and I thought that it was kind of strange that I'd have to use gluten free products if I wasn't ingesting them, or putting them in my mouth. But yes I'm curious about these studies too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cypressmyst Explorer

Alright, here are a bunch of studies that Dr. Vikki Petersen sent me dealing with the issue along with her abridged notes on the topic. I've asked her to write something about this in her blog so hopefully she can help humanize it more there. Otherwise this is all very technical. :blink:

But I understand that a lot of you may understand much of this terminology so if you want to humanize it for us please feel free. :)

For me its enough to know that I have reactions to gluten on my skin and that my Docs back up this reaction (not that I would need their confirmation to tell me what my body knows but it is nice to have. ;) ).

I should probably post this in its own thread so more people can find the info.

Properties of Skin

Has tight junctions like gut - act as barrier to damaging substances.

If gut is leaky, skin likely is as well.

Has extensive immune system like the gut.

-antimicrobial peptides enable epidermis to kill invading microbes.

-keratinocyte identifies pathogen(s) & triggers cytokine production to eliminate it.

World J Gastroenterol 2006 February 14;12(6):843-852

Skylark Collaborator

Thanks so much for all the info! I really appreciate your posting this.

The papers cited don't really address this idea of "leaky skin", but rather support that the gluten-free diet can affect DH and psoriasis. As mentioned at the bottom, it's hard to sift whether the problem is from gluten that's been eaten, abnormal permeability to skin irritants, or a combination of both. The quick remission of psoriasis in some people who go gluten-free still suggests that the gut is the site of absorption.

Now the thing there that suggests celiacs should stay away from gluten-containing cosmetics is the paper that found anti-gliadin IgA and TG3 deposits in skin of celiacs with apparently healthy skin. If you consider the idea of "leaky skin" as a possibility, then gluten in cosmetics will be a problem for those celiacs. Your doctor is probably going with clinical experience with people like you to form the "leaky skin" idea rather than research. That's OK, as in the presence of IgA deposits it seems to be a reasonable hypothesis of how someone could react to gluten they didn't eat.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,924
    • Most Online (within 30 mins)
      7,748

    Mckshane
    Newest Member
    Mckshane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.