Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Explaining To Husbands Grandparents

K8ling

By K8ling
in Coping with Celiac Disease

Recommended Posts

K8ling Enthusiast
K8ling
Posted

My inlaws and husbands grandparents came to visit yesterday, and we started talking about the food issue. Husbands grandmother says "Oh! My sister has a gluten intolerance! When we have pizza she just takes the toppings off and eats them alone".

Oh goodness. I had to explain the difference between Celiac Disease and Gluten Intolerance....then how cross contamination can (and HAS) made me VERY sick.

We're going to their house for Christmas this year...um...this is going to be interesting!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MelindaLee Contributor
MelindaLee
Posted

My inlaws and husbands grandparents came to visit yesterday, and we started talking about the food issue. Husbands grandmother says "Oh! My sister has a gluten intolerance! When we have pizza she just takes the toppings off and eats them alone".

Oh goodness. I had to explain the difference between Celiac Disease and Gluten Intolerance....then how cross contamination can (and HAS) made me VERY sick.

We're going to their house for Christmas this year...um...this is going to be interesting!

I empathize with you. I have been fortunate as my family has been supportive, though need regular education. I have always been one to volunteer to bring food to family events, so I will plan to keep doing the same...except now it will be gluten-free. My DS has been gluten-free for a while, so he appreciates it as well. :D

anabananakins Explorer
anabananakins
Posted

Ohhh,she's giving gluten intolerance a bad name! I test negative to celiac but I get really sick if I get contaminated. I feel rotten right now and I can't even work out what got me :(

K8ling Enthusiast
K8ling
Posted
  • Author

yeah I almost fell over out of shock. No WAY I could eat the stuff the great Aunt does!!

srall Contributor
srall
Posted

Ohhh,she's giving gluten intolerance a bad name! I test negative to celiac but I get really sick if I get contaminated. I feel rotten right now and I can't even work out what got me :(

I guess technically I'm gluten intolerant since I'm self diagnosed. But I get sick very easily from cc or other offending foods. Ate out last night...paying today. I guess gluten intolerance is on a continuum. I could never take the meat off a sandwich and not get sick. And pizza topping is out of the question since I can't have dairy. I guess as long as your husband can control what goes in his body he doesn't have to worry too much about educating his family.

srall Contributor
srall
Posted

Oh and K8ling, I'd pack your own food when you go!

Rowena Rising Star
Rowena
Posted

Oh dear. This reminds me of day 3 of being gluten free when my mom tried to convince me pie was okay. My families are supportive of me in this diet, but yeah people certainly need to be educated about what celiac disease/ gluten intolerance is. It sounds to me like your great-aunt is doing a "gluten-free" diet as if doing the fad diet, if that. But not to judge. I think people just don't understand how serious it can be, and cc is a horrid thing even for a gluten-intolerant.

But I know now that my family needs to be HIGHLY trained in cc courses. Like for heaven's sake, if it touches something gluteny then I can't eat it. And besides, I'm sure that the pumpkin filling my mom uses has gluten in it or has a risk of CC. So even if it were possible for me to eat everything but the crust, it wouldn't work.

I say bring your own food to that Christmas party. I'm gonna have to do that for my family, that's for sure. *is suddenly reminded of something* Dang no rolling or eating my favorite canneloni! Or stollen. Those are my favorite parts of christmas.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MelindaLee Contributor
MelindaLee
Posted

*is suddenly reminded of something* Dang no rolling or eating my favorite canneloni! Or stollen. Those are my favorite parts of christmas.

It seems to me....when looking through gluten-free cook books yesterday....I saw a recipie for canneloni. I checked the book I bought, and it's not in there....maybe try googling a gluten-free recipie. :o

Rowena Rising Star
Rowena
Posted

It seems to me....when looking through gluten-free cook books yesterday....I saw a recipie for canneloni. I checked the book I bought, and it's not in there....maybe try googling a gluten-free recipie. :o

maybe I will do that, or I will still my mom's recipe and make it safe to eat. I am awesome with experimenting so I am sure I could come up with a good alternative. Did that very thing with my cookies today....

anabananakins Explorer
anabananakins
Posted

I guess technically I'm gluten intolerant since I'm self diagnosed. But I get sick very easily from cc or other offending foods. Ate out last night...paying today. I guess gluten intolerance is on a continuum. I could never take the meat off a sandwich and not get sick. And pizza topping is out of the question since I can't have dairy. I guess as long as your husband can control what goes in his body he doesn't have to worry too much about educating his family.

On a continuum is a good way of describing it. I couldn't do those things either, but apparently, I don't have it to the degree of it being an autoimmune disease. Though my balance has been shot lately, I'm getting glutened over and over on my trip so glluten intolerance is worse than just gastro stuff. So yes, a continuum!

lynnelise Apprentice
lynnelise
Posted

At my nephew's party they served Subway sandwiches and my mother-in-law was trying to get me to pick the meat and cheese off. She just couldn't understand that it still wasn't safe.

Maybe I'm wrong, but I always suspect that people like the great aunt are getting quite a bit more gluten than they think and that if they were to totally eliminate it for a bit and then try picking the toppings of the pizza they would react like you or I do.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      results from 13 day gluten challenge - does this mean I can't have celiac?

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose ...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
    5. trents
      - trents replied to Jane07's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free Yogurt suggest

      I would not think store bought yogurt would contain gluten unless it possibly could be through an added flavoring or coloring ingredient. Otherwise, it should be naturally gluten free. Keep in mind that some companies are capitalizing on people's fears and ignorance (nothing personal intended) by labeling foods "gluten free" that are just that way by...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,366
    • Most Online (within 30 mins)
      7,748
    caroljben
    Newest Member
    caroljben
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
    • trents
      Gluten free Yogurt suggest

      By trents · Posted

      I would not think store bought yogurt would contain gluten unless it possibly could be through an added flavoring or coloring ingredient. Otherwise, it should be naturally gluten free.  Keep in mind that some companies are capitalizing on people's fears and ignorance (nothing personal intended) by labeling foods "gluten free" that are just that way by the nature of what they are. They are hoping to create a marketing edge over their competitors by adding "gluten free" because they know it may catch attention of those new to the celiac/gluten sensitivity experience without having to cost them anything in the way of changing their manufacturing process or doing testing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.