Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Explaining To Husbands Grandparents


K8ling

Recommended Posts

K8ling Enthusiast

My inlaws and husbands grandparents came to visit yesterday, and we started talking about the food issue. Husbands grandmother says "Oh! My sister has a gluten intolerance! When we have pizza she just takes the toppings off and eats them alone".

Oh goodness. I had to explain the difference between Celiac Disease and Gluten Intolerance....then how cross contamination can (and HAS) made me VERY sick.

We're going to their house for Christmas this year...um...this is going to be interesting!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MelindaLee Contributor

My inlaws and husbands grandparents came to visit yesterday, and we started talking about the food issue. Husbands grandmother says "Oh! My sister has a gluten intolerance! When we have pizza she just takes the toppings off and eats them alone".

Oh goodness. I had to explain the difference between Celiac Disease and Gluten Intolerance....then how cross contamination can (and HAS) made me VERY sick.

We're going to their house for Christmas this year...um...this is going to be interesting!

I empathize with you. I have been fortunate as my family has been supportive, though need regular education. I have always been one to volunteer to bring food to family events, so I will plan to keep doing the same...except now it will be gluten-free. My DS has been gluten-free for a while, so he appreciates it as well. :D

anabananakins Explorer

Ohhh,she's giving gluten intolerance a bad name! I test negative to celiac but I get really sick if I get contaminated. I feel rotten right now and I can't even work out what got me :(

K8ling Enthusiast

yeah I almost fell over out of shock. No WAY I could eat the stuff the great Aunt does!!

srall Contributor

Ohhh,she's giving gluten intolerance a bad name! I test negative to celiac but I get really sick if I get contaminated. I feel rotten right now and I can't even work out what got me :(

I guess technically I'm gluten intolerant since I'm self diagnosed. But I get sick very easily from cc or other offending foods. Ate out last night...paying today. I guess gluten intolerance is on a continuum. I could never take the meat off a sandwich and not get sick. And pizza topping is out of the question since I can't have dairy. I guess as long as your husband can control what goes in his body he doesn't have to worry too much about educating his family.

srall Contributor

Oh and K8ling, I'd pack your own food when you go!

Rowena Rising Star

Oh dear. This reminds me of day 3 of being gluten free when my mom tried to convince me pie was okay. My families are supportive of me in this diet, but yeah people certainly need to be educated about what celiac disease/ gluten intolerance is. It sounds to me like your great-aunt is doing a "gluten-free" diet as if doing the fad diet, if that. But not to judge. I think people just don't understand how serious it can be, and cc is a horrid thing even for a gluten-intolerant.

But I know now that my family needs to be HIGHLY trained in cc courses. Like for heaven's sake, if it touches something gluteny then I can't eat it. And besides, I'm sure that the pumpkin filling my mom uses has gluten in it or has a risk of CC. So even if it were possible for me to eat everything but the crust, it wouldn't work.

I say bring your own food to that Christmas party. I'm gonna have to do that for my family, that's for sure. *is suddenly reminded of something* Dang no rolling or eating my favorite canneloni! Or stollen. Those are my favorite parts of christmas.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MelindaLee Contributor

*is suddenly reminded of something* Dang no rolling or eating my favorite canneloni! Or stollen. Those are my favorite parts of christmas.

It seems to me....when looking through gluten-free cook books yesterday....I saw a recipie for canneloni. I checked the book I bought, and it's not in there....maybe try googling a gluten-free recipie. :o

Rowena Rising Star

It seems to me....when looking through gluten-free cook books yesterday....I saw a recipie for canneloni. I checked the book I bought, and it's not in there....maybe try googling a gluten-free recipie. :o

maybe I will do that, or I will still my mom's recipe and make it safe to eat. I am awesome with experimenting so I am sure I could come up with a good alternative. Did that very thing with my cookies today....

anabananakins Explorer

I guess technically I'm gluten intolerant since I'm self diagnosed. But I get sick very easily from cc or other offending foods. Ate out last night...paying today. I guess gluten intolerance is on a continuum. I could never take the meat off a sandwich and not get sick. And pizza topping is out of the question since I can't have dairy. I guess as long as your husband can control what goes in his body he doesn't have to worry too much about educating his family.

On a continuum is a good way of describing it. I couldn't do those things either, but apparently, I don't have it to the degree of it being an autoimmune disease. Though my balance has been shot lately, I'm getting glutened over and over on my trip so glluten intolerance is worse than just gastro stuff. So yes, a continuum!

lynnelise Apprentice

At my nephew's party they served Subway sandwiches and my mother-in-law was trying to get me to pick the meat and cheese off. She just couldn't understand that it still wasn't safe.

Maybe I'm wrong, but I always suspect that people like the great aunt are getting quite a bit more gluten than they think and that if they were to totally eliminate it for a bit and then try picking the toppings of the pizza they would react like you or I do.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.