Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Body Is Obviously Insane.


Emilushka

Recommended Posts

Emilushka Contributor

And good luck with your body healing. I bet you'll be all right in a few days. Dang I just realized how hungry I am. Why did they make me eat lunch so early? *groan* And I wasn't anywhere near my snacks all day neither. Gah... *mumbles about work*

I hear that. When we are in clinical hours, our meal times are limited and food is tough to come by. There's often nowhere for us to store food (no fridge) so we live off "pocket food" that goes in the white coat and also cafeteria food. So I guess that means ... only pocket food for me! Buy stock in Lara bars.

Yeah, I know...sometimes I have an aversion to cooking, too. It gets old! But that's where a stash of things in the freezer makes it a lot easier. Or today for me...last night's dinner was also tonight's dinner. tongue.gif

It was harder to give up cheese than wheat, rye, barley and oats. I never realized how much I would miss cheese. One of these days I'll see if it likes me again...

Yeah. I think I'll have to build up a good stash of frozen delicacies. I need to get all the cheese-containing gluten-free foods out of my freezer first. I have a friend who's going to take them all from me.

My silver lining that I keep telling myself today is that at least I know I will never ever get fat. Even if I begin to absorb my food, we have now eliminated all of my guilty pleasures from my diet so I will never be a glutton in the same way again. Unless I get my cheese back later. Then all bets are off and I will become a happy, large lady.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

Yeah. I think I'll have to build up a good stash of frozen delicacies. I need to get all the cheese-containing gluten-free foods out of my freezer first. I have a friend who's going to take them all from me.

My silver lining that I keep telling myself today is that at least I know I will never ever get fat. Even if I begin to absorb my food, we have now eliminated all of my guilty pleasures from my diet so I will never be a glutton in the same way again. Unless I get my cheese back later. Then all bets are off and I will become a happy, large lady.

You might want to hang on to some of those cheesy gluten free foods and reintroduce them again later (unless you have absolutely no room for them in the freezer). Since the villi get damaged with celiac, it makes sense that lactose intolerance is common right away after diagnosis. After six months gluten free, I hope to test cheese again sometime this week (was unsuccessful a couple of months ago but I'm feeling a lot better now). How are you feeling today now that you gave up milk products a couple of days ago?

Have you tried Kind Bars? I actually like them better than Larabars as does my daughter, who is in grad school and was just diagnosed the end of Aug. I think she also has access to a microwave so can bring in things to nuke when she has classes all day.

Emilushka Contributor

You might want to hang on to some of those cheesy gluten free foods and reintroduce them again later (unless you have absolutely no room for them in the freezer). Since the villi get damaged with celiac, it makes sense that lactose intolerance is common right away after diagnosis. After six months gluten free, I hope to test cheese again sometime this week (was unsuccessful a couple of months ago but I'm feeling a lot better now). How are you feeling today now that you gave up milk products a couple of days ago?

Have you tried Kind Bars? I actually like them better than Larabars as does my daughter, who is in grad school and was just diagnosed the end of Aug. I think she also has access to a microwave so can bring in things to nuke when she has classes all day.

They take up quite a bit of space in our small freezer (I have lots of frozen veggies and my fiance has lots of prepared foods that are frozen). Also, I'm going to give it a year before I try reintroducing anything, so they wouldn't last so well.

My symptoms are more like Celiac than like lactose intolerance with eating the dairy. Exhaustion, fuzzy-headedness, etc. I'm thinking it's more likely a casein reaction. Might still clear up once my immune system calms down, but I'm not too hopeful.

I feel so much better now. It makes me sad because it confirms that I will be leading a cheeseless life, but it's nice to not feel like I have an Alien baby in my belly. I can eat food again without feeling ill. Thank you for asking, by the way. :-)

I haven't tried Kind bars! I will try to find them. I haven't seen them in stores before, but I will start looking harder. I really like the Lara bars for having so few ingredients (dates are MAGICAL evidently). I can always count on them to sit well in my tummy. Even on my worst days.

GlutenFreeManna Rising Star

They take up quite a bit of space in our small freezer (I have lots of frozen veggies and my fiance has lots of prepared foods that are frozen). Also, I'm going to give it a year before I try reintroducing anything, so they wouldn't last so well.

My symptoms are more like Celiac than like lactose intolerance with eating the dairy. Exhaustion, fuzzy-headedness, etc. I'm thinking it's more likely a casein reaction. Might still clear up once my immune system calms down, but I'm not too hopeful.

I feel so much better now. It makes me sad because it confirms that I will be leading a cheeseless life, but it's nice to not feel like I have an Alien baby in my belly. I can eat food again without feeling ill. Thank you for asking, by the way. :-)

I haven't tried Kind bars! I will try to find them. I haven't seen them in stores before, but I will start looking harder. I really like the Lara bars for having so few ingredients (dates are MAGICAL evidently). I can always count on them to sit well in my tummy. Even on my worst days.

I'm wondering, since you said your fiance is picky and makes his own food, could you be dealing with cross contamination issues? Do you have an area of the kitchen dedicated to preparing gluten free foods only? Do you have all your own cookware or do you share? Does he use your condiments and other food? The reason I'm asking is I can easily imagine a situation where he makes himself a sandwich using your cheese and touches the cheese that he puts back in the package. Now the cheese is covered in gluten you can't see and you get glutened from eating it. You may very well have a problem with the cheese as well, but if your symptoms are the same as getting glutened, look for some cross contamination issues as well.

Emilushka Contributor

I'm wondering, since you said your fiance is picky and makes his own food, could you be dealing with cross contamination issues? Do you have an area of the kitchen dedicated to preparing gluten free foods only? Do you have all your own cookware or do you share? Does he use your condiments and other food? The reason I'm asking is I can easily imagine a situation where he makes himself a sandwich using your cheese and touches the cheese that he puts back in the package. Now the cheese is covered in gluten you can't see and you get glutened from eating it. You may very well have a problem with the cheese as well, but if your symptoms are the same as getting glutened, look for some cross contamination issues as well.

Those are good questions. I'm using all my own cookware, and I have my own toaster oven as well. I got my own peanut butter, even.

While I don't have my own cooking area in the kitchen, I do cook only on cooking boards or clean paper towels or clean plates, so the cross-contamination should be limited (not using dairy is sufficient to cut the symptoms). I guess the good thing about not sharing taste buds is that he doesn't use any of my spices or condiments. Heh. I hadn't thought of that, but I guess we avoid cross-contamination that way!

Also, saying that he cooks is really being generous. For the most part, he eats things like Hot Pockets and breakfast quesadillas and peanut butter sandwiches. He has a penchant for using paper plates (despite the thousands of times I've reminded him that he is killing trees and we have a dishwasher and plenty of plates). There's very little risk of cross-contamination except in the microwave, but I keep my food covered and isolated. It never goes directly in the microwave.

Dixiebell Contributor

I haven't seen anybody mention this yet, maybe I missed it. You said your fiance eats gluten? Is he brushing his teeth and rinsing really well before you kiss him?

Emilushka Contributor

I haven't seen anybody mention this yet, maybe I missed it. You said your fiance eats gluten? Is he brushing his teeth and rinsing really well before you kiss him?

Nobody asked that yet! He does eat gluten. He does not brush his teeth and rinse well before I kiss him. So far, I don't think that's a problem ... stopping the dairy did stop the symptoms and today I'm feeling good.

I guess I should add that we don't suck face constantly and he does like to chew gum after eating, so maybe he's semi-cleaning before I even get to him? I really hope we don't start having to jump through hoops to be able to kiss or I'm going to feel like Julia Roberts in Pretty Woman.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748

    Beanography
    Newest Member
    Beanography
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.