Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tampa Bay Gi Doc?


cO-ol

Recommended Posts

cO-ol Explorer

I guess it doesn't need to be a GI doc... Does anyone know a doc in the Tampa Bay area that takes celiac seriously? Like, I can almost certainly get the celiac panel done if I go in and ask for it? I have stomach pain and stuff, but admittedly my biggest symptoms are fatigue, depression, and anxiety.

But doctors make me REALLY REALLY UNBELIEVABLY anxious; any HINT of making me feel bad or acting like it's all in my head, etc. will cause me to get panicky (I don't get full-blown panic attacks but I may as well), so having to waste my time with docs that dismiss my concerns is ultra painful. It's why I've taken so long to go to one. All the docs I've been to see the mood symptoms and assume Depressive Disorder, dismissing the other weirdo symptoms I've had, and it's EXTREMELY hard and anxiety-inducing for me to deal with that. :( (I guess I have to give everything I got to push past it if need be, but ugh....)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

I think the best thing to do, before you go to any Dr., is to write down all your concerns so you don't get side tracked. Also you could print some info about celiac and the crazy all over the place symptoms that can come with it and give that to the Dr. Maybe don't mention the depression and just tell them Dr.s make you nervous. When you call a new Dr., ask if the Dr. is knowledgeable about celiac and that you want a celiac panel done. Also you might want them to check your vitamin levels too.

I have heard that being unwell can cause anxiety, I believe that was true with myself.

cO-ol Explorer

Thank you, it's so nice to have someone spell this stuff out for me (and I'm not being sarcastic either--I'm a prime example of why "common sense" isn't actually that common xD). Well, I'm young too, and have no experience with this awfulness. I might have to write myself a script here. I can call a lot of offices; that makes me nervous, but not as bad as being IN the office. I don't have a printer but maybe I can write out quotes from sites or some such, or go to the library.

I did have my vitamin levels checked already; I only have low Vitamin D, which I'm working on remedying now.

Dixiebell Contributor

I used to do the exact same thing so I would have all the info and questions in front of me when I made a call. I know of the anxiety that you talk about, I had it for many, many years. I missed out on a lot of things because of stupid anxiety.

Writing the info down for the Dr. will work, I might just list the site where you found it too.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...