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Anyone Experience This Symptom?

Kuda1

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Kuda1 Newbie
Kuda1
Posted

Hello, my name is Andrew. This appears to have started 9 months ago. It is very unpleasant, however I am not sure what it means. I suffered with these things for 9 months thinking it had something to do with my antibiotic treatment for Lyme disease.

Basically when I eat anything with gluten in it, I get painful canker sores on the back of my mouth/throat. I don't think I have Celiac because I have no other symptoms. I am 25 years old and this just came out of nowhere. I am pretty sure that this is caused by eating gluten, because when I make sure to have no gluten they go away, and then when i screw up they come back really bad.

Any thoughts would be much appreciated! Thank you,

Andrew

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adab8ca Enthusiast
adab8ca
Posted

Hello, my name is Andrew. This appears to have started 9 months ago. It is very unpleasant, however I am not sure what it means. I suffered with these things for 9 months thinking it had something to do with my antibiotic treatment for Lyme disease.

Basically when I eat anything with gluten in it, I get painful canker sores on the back of my mouth/throat. I don't think I have Celiac because I have no other symptoms. I am 25 years old and this just came out of nowhere. I am pretty sure that this is caused by eating gluten, because when I make sure to have no gluten they go away, and then when i screw up they come back really bad.

Any thoughts would be much appreciated! Thank you,

Andrew

canker sores are definitely a sign of celiac...I had a sore throat for MONTHS and since I have been gluten-free for about 6 weeks, it has absolutely gone away..I never even mentioned it to my Dr. because I had so many weird, non GI seemingly unrelated symptoms which all seem to have come from celiac.

If you think you have celiac and are able to, I would definitely get it checked out.

SGWhiskers Collaborator
SGWhiskers
Posted

Canker sores plagued me from about the age of 6. They were one of the first symptoms to dissappear when I went gluten free. They also pop back up when I slip up. The mouth is part of the digestive tract. If you notice gluten is a trigger for canker sores, just imagine what is happening further down the GI system.

gf-soph Apprentice
gf-soph
Posted

Canker sores are my first and most reliable indication of when I have been exposed to gluten. I had them horribly for years, then they disappeared within 2 weeks of going gluten free - I was so happy!

I don't think you should treat it too lightly, it means that somehow the gluten is damaging your body. Your only obvious symptom may be the sores, but you don't know how else they may be effecting you. If you want to get tested for celiac then kepe eating lots of gluten until all the testing is done. If you're not too worried about testing then try the gluten free diet and see how you feel - you may be surprised!

Dixiebell Contributor
Dixiebell
Posted

This post made me think of something from my childhood. What I now know as canker sores, my mother called lie bumps :huh: . She said that is what her g-mother called them and said you would get them from telling a lie. I grew up being told this nonsense. It makes sense that people in my family had enough of them to give them a name, almost everyone has had or has bowel issues of some sort.

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    • Rogol72
      Help I’m cross contaminating myself,

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      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
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      Help I’m cross contaminating myself,

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      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
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