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realmaverick

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realmaverick Apprentice

Hey guys,

Loving the forum, it's an awesome resource.

I notice we've quite a diverse crowd here, though I'd say predominantly US based. Much of the advice I received in a particular topic, was aimed at those in the US.

I'd find it extremely useful, to have specific location based forums, especially for gluten free foods and ingredients. I realise there is a forum (Gluten-Free International Room (Outside USA)).

My suggestion would be to have a main forum, called "Gluten free foods and ingredients" and then have "UK, US, Fr" etc as sub forums. By breaking it down to counties, it will be much easier to seek advice from those in our own country, but also create a local database, to help us better find gluten free alternatives.

Also would it be possible, to show our country in the profile field of our posts? That way, at a glance, we can easily see where our fellow posters are from, which may help us better help one another.

Thanks for listening.

Paul


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kareng Grand Master

Hey Real and Mods! Didn't it used to say where we live in the little box with our name & av? Or did I hallucinate this? ( possibility, brain fog & all). I found that helpful with the posters who want to put it out there!

realmaverick Apprentice

It's likely an option in the admin panel, as to whether to show it or not. I'm not suggesting we give exact locations, just the country the person lives in. If some members had an issue, then perhaps an option to hide their location.

mushroom Proficient

Before the forum was upgraded a while ago our locations did used to show in the box in our posts. Even after the upgrade I think it was there for a while, but then it disappeared. You might want to pm or email Scott at admin and ask him about this. I, too, miss being able to know where posters are from.

sa1937 Community Regular

Me three. It did used to say that at the time I joined but as I recall some of them got way too long. I'd love to see a simple location shown (voluntarily, of course). I've always wondered where people are from as we are quite a diverse group.

realmaverick Apprentice

I just accidentally, negatively repped my own post from my iPad. Oops. I'm guessing I can't undo that? Ha

kareng Grand Master

I just accidentally, negatively repped my own post from my iPad. Oops. I'm guessing I can't undo that? Ha

Sometimes my iPad manages to post the same thing twice in a row. Sometimes the Mods delete it for me. I think that may make my iPad even more determined to post twice the next time. :)


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  • 2 weeks later...
Loey Rising Star

I just accidentally, negatively repped my own post from my iPad. Oops. I'm guessing I can't undo that? Ha

I just gave you a positive to undo it. I'm going to give you another positive because I've found all of your posts very helpful.

Still sporting my black eye!

Loey hidden-27.gif

Loey Rising Star

I just accidentally, negatively repped my own post from my iPad. Oops. I'm guessing I can't undo that? Ha

I'm the one who was paranoid to list my state because my new GI was dismissive before I got the ulcer diagnosis on top of Celiac (he's done a 360). I was afraid he's see my posts (as if that's what he does in his free time). I also was lucky enough to meet someone in my state before I took it off my profile and it's wonderful to have a new friend who understands the disease and who I also have a lot of other things in common with. Anyway, I'm all for country's being listed. I know that someone is from Australia though I can't remember who. Brain Fog!!!!

Loey

jerseyangel Proficient

I always liked having members' locations in the board profiles too. I'm sure Scott will read this and take it under consideration :)

  • 3 weeks later...
BoydBT Apprentice

My suggestion would be to have a main forum, called "Gluten Free Foods and Recipes.

Yes Mods? :)

ElseB Contributor

I second the need for locations to be identified. There's a such a wide variation in products between countries and the exact same product can be gluten-free in one country and not in another. People may read something thinking a product is safe in their country when its not. Just take Lea & Perrins Worcestershire sauce as the cautionary example. Safe in the US and UK, but here in Canada, its full of malt.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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