Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hot Skin


Mexican Trailrunner

Recommended Posts

Mexican Trailrunner Rookie

I haven't seen anyone else mention this, has anyone else had the sensation of having hot skin, particularly upper body and arms, when glutened?

I don't get the rash.

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

years ago, i always had RED cheeks- not neccesarily hot unless i drank alchohol- but BEET RED- since i was 11 or 12- this is what led my docs to begin testing me for Lupus which was always negative- FF to age 28- i went on Atkins, then Bloodtype O diet-> red cheeks went away.

i also occasionally get hot red ears- everyone has said that is either blood pressure or too much Niacin.... but mine never came after vitamins, and i normally have low bp.... ???

when i used to eat gluten or go on gluten binges- i was always hotter, always had to keep my AC lower, and my mornings i would feel hotter and nauseaus. there's a thread somewhere on this forum where parents are talking about how their kids with celiac/gluten intolerance were always complaining of being hot or ripping their socks off all the time....

and one last thing- ive been gluten-free now since july.... about a month ago, i ate a frozen prepared meal.... technically gluten free, but it had a lot of crap in it, a lot of soy & corn byproducts. but the only ingredient which stood out for me was High Maltose Corn Syrup- 30 seconds after i ingested this food- my arms, neck, stomach, and face turned BEET BEET BEET RED & SO HOTTTTTTTTT- i was inflamed like this for over an hour!!!!!! it was AWFUL, i am CONVINCED that even tho its technically gluten free- that it must have the same molecular structure- this HMCS- i KNOW that as soon as it hit my stomach- my body thought: "OMG GLUTEN"- and my body freaked....

kpryan Apprentice

I just realized today that i do get this too!!

I've been on a gluten challenge for 1 month and all month I've been feeling irregularly hot and my face gets very flushed.

I just finished eating my last gluten meal (I have my endoscopy tomorrow) and my face is hot...like I have a fever... Strange!!

I haven't seen anyone else mention this, has anyone else had the sensation of having hot skin, particularly upper body and arms, when glutened?

I don't get the rash.

Thanks

Mexican Trailrunner Rookie

It IS weird, isn't it. The hot flush is, for me, my first indication of glutening. And it happens after just a few bites, it's my warning signal.

My doc said it might be something to do with hormones, like lack up estrogen uptake or too much estrogen uptake. It does feel like hot flashes so I think he might be on to something there.

CassP mentioned Niacin and that would be the same kind of flush feeling too.

Thanks for responding, I was feeling like this might be indicative of something else.

gf-soph Apprentice

It IS weird, isn't it. The hot flush is, for me, my first indication of glutening. And it happens after just a few bites, it's my warning signal.

My doc said it might be something to do with hormones, like lack up estrogen uptake or too much estrogen uptake. It does feel like hot flashes so I think he might be on to something there.

CassP mentioned Niacin and that would be the same kind of flush feeling too.

Thanks for responding, I was feeling like this might be indicative of something else.

I've had rosacia, which is the hot red face, often in a 'butterfly' over the cheeks and nose. The face goes red and hot, sometimes even purple, and can stay that way for hours. It's worse on gluten but I've still had it on and off over the 2 years gluten free. It's triggered by MSG and some other food chemicals, and I also tend to get it when I'm sick.

My dr told me that it's linked to inflammation in the body, and it seems to be the case for me. One time I had it very badly and my whole head was purple and hurt for days, a dr said that it was an atypical allergic reaction, similar to getting hives. I took a basic antihistamine and it finally went away. Now if I get a really bad flush that won't go away I know that an antihistamine will usually fix it up.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.