Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Followed By Massive Fatigue When Eating Anything.

CNV2855

By CNV2855
in Coping with Celiac Disease

Recommended Posts

CNV2855 Contributor
CNV2855
Posted

I really hope there's someone else out there that knows what I'm going through. Normally, I'm very good w/ the gluten-free diet and I don't have many problems, after all I've been following one for years. But it seems that I have a serious complication when I screw up.

Now, it seems when I get glutened that something is happening on top of the normal symptoms (i.e. bloating/diarrhea). When I eat something I'm not suppose to, for several days following whenever I eat anything whatsoever, the more complicated and harder to digest the worse it is, I lose absolutely all of my energy and it literally puts me out.

The best way to explain this is what happened to me yesterday. I ate some boudin that I strongly suspect had gluten in it wednesday, and got sick. Yesterday, woke up after sleeping for 8 hours and ate some safe Italian Pork Sausage. Within an hour, I literally fell on the couch and slept for another 5 hours. I woke up and ate some more because I was hungry. For the next 5+ hours, I was like a zombie. I literally struggled to walk or even pick up items that weighed less a couple pounds, and I'm a 24 year old male in pretty good shape. When I'm good, I can run/lift weights but here I was struggling to pick up something that was 2-3 lbs. That is the best I can illustrate how drained I was.

Today, I ate some garlic (gluten free) bread and had the same reaction. Massive sleepiness accompanied by extreme fatigue. It lasts as long as it takes for me to digest the foods, then I slowly regain some energy...

Now, I'm guessing when I get glutened it's injuring my intestines and when I eat something afterwards, it's getting into my blood stream? That or my body is coping to get the food digested through my injured intestines? I don't know.

Please tell me there's someone else out there that goes through this, or is there anything I can do for it? Any foods that are safe and won't do this to me after I get glutened?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Emilushka Contributor
Emilushka
Posted

I get a lot of fatigue as one of my main symptoms, too. But I'm really new to this and I don't know of anything aside from time and plain rice and sips of water that will help make this better for you. When I feel bad, I don't want to eat. So I don't eat. I wait until I feel better and then I eat something I know is gluten-free and dairy-free.

But I totally hear you on the exhaustion thing. I get so tired ... it's really ridiculous. Like my mind is in a fog.

CNV2855 Contributor
CNV2855
Posted
  • Author

I get a lot of fatigue as one of my main symptoms, too. But I'm really new to this and I don't know of anything aside from time and plain rice and sips of water that will help make this better for you. When I feel bad, I don't want to eat. So I don't eat. I wait until I feel better and then I eat something I know is gluten-free and dairy-free.

But I totally hear you on the exhaustion thing. I get so tired ... it's really ridiculous. Like my mind is in a fog.

I was thinking that I could have reactive hypoglycemia, because I get very hungry while I'm fatigued, but my blood glucose levels have always been in the normal range.

Kategrad7 Newbie
Kategrad7
Posted

I never really made the connection until I read your post, but I have the same reaction. For me I mainly have neurological symptoms, so headache, brain fog, clumsy, etc, basically what you said about fatigue, I feel like a 24 year old grandmother! But after I have made a mistake and get glutened, I spend days feeling the effects. After reading your post I finally made the connection that I typically feel ok when I get up and the symptoms come back after I eat, even though its completely gluten-free. Sorry I'm not really offering any advice, but thank you for your post. I don't know how long it would have taken me to realize the connection.

srall Contributor
srall
Posted

I definitely have had that reaction before. And varying degrees of that reaction depending on amt of gluten I've consumed.

rustycat Rookie
rustycat
Posted

Thanks for this post!!

I couldn't figure out why I felt so tired after I ate lunch today. I'm pretty sure that there was no danger of cc and I didn't feel my stomach cramp (the usual sign that I've been glutened). It must have been from the accidental glutening that I had 4 days ago. My extreme C is finally gone today, but maybe it takes a few more days for my pancreas to recover. Interesting.

WestCoastGirl Apprentice
WestCoastGirl
Posted

This is brilliant. Thank you SO MUCH for posting this. I get the very same reaction. It's weird...I didn't think anyone else had it. After a glutening, for about three days (usually worst on the first and second day) I am tired after any meal. Interesting.

I really hope there's someone else out there that knows what I'm going through. Normally, I'm very good w/ the gluten-free diet and I don't have many problems, after all I've been following one for years. But it seems that I have a serious complication when I screw up.(snip)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bella001 Explorer
Bella001
Posted

I really hope there's someone else out there that knows what I'm going through. Normally, I'm very good w/ the gluten-free diet and I don't have many problems, after all I've been following one for years. But it seems that I have a serious complication when I screw up.

Now, it seems when I get glutened that something is happening on top of the normal symptoms (i.e. bloating/diarrhea). When I eat something I'm not suppose to, for several days following whenever I eat anything whatsoever, the more complicated and harder to digest the worse it is, I lose absolutely all of my energy and it literally puts me out.

The best way to explain this is what happened to me yesterday. I ate some boudin that I strongly suspect had gluten in it wednesday, and got sick. Yesterday, woke up after sleeping for 8 hours and ate some safe Italian Pork Sausage. Within an hour, I literally fell on the couch and slept for another 5 hours. I woke up and ate some more because I was hungry. For the next 5+ hours, I was like a zombie. I literally struggled to walk or even pick up items that weighed less a couple pounds, and I'm a 24 year old male in pretty good shape. When I'm good, I can run/lift weights but here I was struggling to pick up something that was 2-3 lbs. That is the best I can illustrate how drained I was.

Today, I ate some garlic (gluten free) bread and had the same reaction. Massive sleepiness accompanied by extreme fatigue. It lasts as long as it takes for me to digest the foods, then I slowly regain some energy...

Now, I'm guessing when I get glutened it's injuring my intestines and when I eat something afterwards, it's getting into my blood stream? That or my body is coping to get the food digested through my injured intestines? I don't know.

Please tell me there's someone else out there that goes through this, or is there anything I can do for it? Any foods that are safe and won't do this to me after I get glutened?

It takes me days to get over being glutened. I have bloating and constipation for days after and my mood swings like wind chimes in a hurricane! Thought it was just in my head, but doesn't sound like it now. Thanks for making me feel normal!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.