Severe Pain

[loubyloo]

So...my stomach blew up like a freakin balloon again last night, nothing different there. But this time after 1.5hrs sleep i woke with SEVERE stomach pain. It was a constant pain coupled with extra waves of cramp so painful i was calling out. I had similar episodes twice last week but the pain was nothing like this, curiously each time has been worse than the last. Also the D started during the ngiht this time, about 2hrs after i woke, it normally only starts at 'getting up time 8am'. And the D was even worse - more explosve, liquidy etc

Saw GP first thing this morning who is taking it seriously - thank god someone is at last. Done tests, inc celiac panel. And told me if it ever gets as bad again to call emergency DR. So all day now (it's after 4pm here) i've been in low grade pain, unable to eat or even drink.

2 questions;

has anyone else found that every attack gets worse each time? does celiac present like this (as well as the usual D everyday) I've only been on a 'normal diet' for 2 weeks as i stopped eating pretty much altogether as i felt so sick and had D all the time i was miserabel but not eating helped it. But obv couldn't continue like that so started eating inc gluten so i celiac disease get tested.

secondly, what do u guys find u can tolerate to eat/drink when ur stomach is so painful? drinking is actually worse than eating a plain rice cracker (i've had 2 and nothing not even water all day) with the D that i had for so many hours i'm guessing i shoudl really drink...i feel so yuk

[RiceGuy]

It sure sounds like you've gotten a pretty conclusive answer from your own body as to whether gluten is a no-no. So regardless of test results, I'm sure you know you must not eat gluten. And, since you have to be eating gluten for six weeks or more for the tests to have the typical accuracy (which is still not very high), I think you'd be ill-advised to continue just for the sake of tests. Can you honestly continue eating gluten for another month? Some doctors will diagnose based on such severe reactions to a gluten challenge. I'd suggest that you ask for that so you can begin healing before more damage is done. Seriously, you do not want to cause more permanent damage than what may have already been done.

And yes, the reactions can continue to worsen over time. Again, I highly recommend you cut your losses and discuss with your doctor getting a formal diagnosis based more on your reactions than on unreliable test results.

[GFinDC]

We all have our own reactions, but for some, yes, they can get very painful. Your body is basically destroying your small intestine when it actively attacks gluten in your bowel. It isn't going to feel good, especially if the damage is severe. Of course the same auto-immune system kills germs and parasites for us and keeps us alive. It's a powerful system and not afraid to attack invaders. Or us.

I would probably eat plain chicken, with salt on it. Even that doesn't work sometimes though. Sometimes it would come right back up for me, before I could even get it all the way swallowed. And rolling around on the floor all night in pain was not unusual for me either. Not sleeping either of course. We got's to have our fun somehow I guess. Makes it interesting when you are working a high workload job with long hours too.