Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enzymes?

blondie1985

Recommended Posts

blondie1985 Rookie
blondie1985
Posted

Anyone take them? I ran in to a woman in Henry's the other day who was telling me that I should be taking an enzyme of some sort with my celiac diagnosis. Something about it helping to eliminate any sorts of "accidental" gluten I may consume? Insight/advice anyone?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elocin71 Apprentice
elocin71
Posted

ok i'm a newbie myself but my ND gave me such a product. the enzyme she was referring to was probably dipeptidyl peptidase IV (DPP IV). i used it once for possible glutening from eating at chevy's but honestly i couldn't tell if it helped. i will be curious to see if anyone else has experience with these enzymes. i posted a question about it once but all i got back was that they were skeptical of taking something every day for the rest of their lives.

Anyone take them? I ran in to a woman in Henry's the other day who was telling me that I should be taking an enzyme of some sort with my celiac diagnosis. Something about it helping to eliminate any sorts of "accidental" gluten I may consume? Insight/advice anyone?

Lisa Mentor
Lisa
Posted

Anyone take them? I ran in to a woman in Henry's the other day who was telling me that I should be taking an enzyme of some sort with my celiac diagnosis. Something about it helping to eliminate any sorts of "accidental" gluten I may consume? Insight/advice anyone?

I think she was making reference to a product called "Glutenese". It's been subject of much debate on this forum. It makes some outstanding claims, but it's not meant for people with Celiac Disease. Just it's name is a turn off to me and leaves me suspicious.

Any digestive enzymes which will put back some good bacteria into your system, would be helpful. Especially of you have taken a lot of antibiotics or antacids. Probiotics can be bought over the counter. I have taken Natures's Bounty Chewable Acidophilus (it's also milk free) :)

elocin71 Apprentice
elocin71
Posted

glutenese also appears to have the same enzyme but its claims are definitely more outrageous. it's not a magic pill that lets you eat wheat again but something you should take if you get glutened, in theory to help reduce the symptoms. has no one tried it with any success or failure?

I think she was making reference to a product called "Glutenese". It's been subject to much debate on this forum. It makes some outstanding claims, but it's not mean for people with Celiac Disease. Just its name is a turn off to me and leaves me suspicious.

Any digestive enzymes which will put back some good bacteria into your system, would be helpful. Especially of you have taken a lot of antibiotics or antacids. Probiotics can be bought over the counter. I have taken Natures's Bounty Chewable Acidophilus (it's also milk free) :)

Christi1996 Newbie
Christi1996
Posted

I know in the autism community those are very popular; some parents will give their child and enzyme instead of doing the gluten-free casien-free diet.

I tried them and for awhile we did use them to eat whatever we want - because we didn't have the reaction with the pills. HOWEVER I recently discovered that I am still having a reaction, it just isn't as bad (mainly joint inflammation but no stomach problems).

Now we are back to eating gluten-free but we do take an enzyme when there might be a problem with cross-contamination.

We don't have a diagnosis so not sure if we have gluten-intolerance or celiac. So it does help but it isn't a license to eat anything.

Skylark Collaborator
Skylark
Posted

There is nothing to debate, really. DPP-IV products are a scam. DPP-IV will not detoxify gluten, as it only cleaves prolines off the ends of peptides, not the internal proline-proline in the part of gliadin we react to. It absolutely, positively cannot make gluten safe and traces of gluten eaten with DPP-IV will still cause you damage. Save your money and buy the less expensive bromelain or papain if you find enzymes generally helpful.

elocin71 Apprentice
elocin71
Posted

thank you for the scientific answer. it's always nice to know the reason why.

There is nothing to debate, really. DPP-IV products are a scam. DPP-IV will not detoxify gluten, as it only cleaves prolines off the ends of peptides, not the internal proline-proline in the part of gliadin we react to. It absolutely, positively cannot make gluten safe and traces of gluten eaten with DPP-IV will still cause you damage. Save your money and buy the less expensive bromelain or papain if you find enzymes generally helpful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blondie1985 Rookie
blondie1985
Posted
  • Author

Thank you! I steered away from the DPP-IV enzymes, and began with a fabulous probiotic. Eventually I will add in some natural digestive enzymes, but just because I know this is a good idea generally. My original question wasn't because I was looking for something that would allow me to "get away" with cheating & consuming gluten. I was genuinely curious if it would help with ridding my body of accidental gluten in the case that this happened. Regardless, I'm excited about the probiotics.

  • 1 month later...
Michelle1234 Contributor
Michelle1234
Posted

I can't debate the science of it but here is my experience. When I was diagnosed I didn't have any known gluten symptoms beyond chest pains. I immediately attempted to eliminate all gluten from my diet. Like most others I wasn't successful at 100% reduction because I still was getting cross contaminated at home, getting glutened from shampoo and other products. However the less gluten I got the more sensitive I got. Eventually I couldn't eat out at all as I got glutened from cross contamination 9 out of 10 times. It's embarassing as heck to have explosive gas when out with others. It's also embarrassing to have to run to the restroom 20 min. after eating or risk an accident.

Then Glutenease came on the market. I read about it and decided to try it. I take it with their Digest Gold product every time I eat out. I am now never glutened from cross contamination. Did all the restaurants clean up their act? I don't think so. I credit the Glutenease. Does it prevent damage? I don't know but it sure is nice to not have lots of gas and diarrhea every time I eat out. On the rare occasion I get glutened at home I take it after the fact and it heads off the symptoms. It is a huge relief. I never intentionally eat gluten.

Best,

Michelle

Skylark Collaborator
Skylark
Posted

There are rather a lot of enzymes in GlutenEase and even more in Digest Gold. I'm really glad to hear you found something that helps you, but how do you have any idea the is DPP-IV helping and not something else?

From the Enzymedica website "Enzymedica Digest Gold

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    2. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    3. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
    5. Scott Adams
      - Scott Adams replied to ElenaM's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      I think I am gluten intolerant

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS). Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. Your situation is a classic p...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,906
    • Most Online (within 30 mins)
      7,748
    Dakota4
    Newest Member
    Dakota4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.