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What In Tarnation?


Rowena

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Rowena Rising Star

Dang it, I hate my body somedays. I recently discovered my intolerance to gluten, I recently rediscovered my intolerance to chocolate. I for the most part don't eat dairy. (Not a big fan as my mom was lactose intolerant, so I didn't grow up eating much dairy.) I am pretty sure I aint allergic to soy, havent had any reactions to it as far as I can tell. But I am definitely reacting to something, mini hives appear all over my body (most notably my arms). And red welts... yuck! I am pretty sure nothing goes on my skin that contains gluten. I'm very careful about that, because for the first time in years, I feel wonderful as I haven't had any sensitivities to my gluten free shampoos/gels/soaps/lotions.... I don't eat many eggs, so I pretty sure it aint that...

What the heck should I try eliminating? (I'd go to a doctor and get some darn allergy tests, but like everything else, I am afraid nothing will show up. I hate intolerances... The bane of my very existence)


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Swimmr Contributor

I was almost certain I wasn't intolerant to soy too...until I did an elimination diet. Come to find out I am very sensitive to it. I get red welted-like sores/hives when I have it, which I get similar to when I have gluten. I break out usually the next day, and they stay for several weeks. They don't pop...they slightly itch and mostly just hurt after the initial discovery. No head develops on them either...no puss ever.

I've not had a single panic attack since I cut soy out completely. I've not had my "vertigo-ish" attacks and no dizziness.

Since you are new to the gluten free thing perhaps doing an elimination diet to figure out what else you are sensitive to would be a great idea. It's a bit stressful, but WELL worth it.

I learned that I'm extremely sensitive to soy, mildly sensitive to green peas. I have gastro issues if I eat bell peppers and onions any less than cooked and usually I just burp a whole lot. And now I *think* I might be having a fructose absorption issue (which I just discovered, also in this same forum if you wanna read) that spurred a reaction from maple syrup and agave nectar.

You need to keep a food diary for a week or two and then look back and see what possible allergens you were consuming.

Start out eating whole foods you KNOW you are ok with. For me it was chicken cooked carrots and bananas. I did this for 7 days straight. Then I added a different food every three days. That's basically how my elim. diet worked. It is different for everyone though.

Rowena Rising Star

Oh another note, not that it is entirely relevant, but I have been suffering from this allergy since before going gluten free. I didn't notice it as much though when I was getting glutenified, but now that I have gotten my gluten problems resolved I notice it more....

And swimmr, I will definitely have to consider an elimination diet.... (Maybe soy is my problem, but I keep telling myself it aint because I love my soy so much...)

mushroom Proficient

Could also be the nightshade family - that's what potatoes did to me :(

missy'smom Collaborator

Give the allergy testing a try. You've got nothing to lose if you have ins., except maybe the copay. 1st time around was not helpful-with your averge allergist-large practice, mainly concentrated on environmentals. Second allergist was helpful-believes in eliminating foods even if there is no anaphylaxis, routinely runs large food panels-skin prick. He had us do a modified elimination/challenge diet where we eliminated all the we tetsed pos. to for 4 weeks and then re-introduced them one at a time. I've found it to be accurate-reactions matching up with the tests. I know most people say allergy testing is useless and we've had some tests that were not helpful but this last time was very helpful so I think it's worth it.

cassP Contributor

corn??

i have a theory that we may be ok with some foods (ie: corn, soy, legumes)-> but then we eat some "version" or processed byproduct and our body freaks out..??? that just seems to be my experience... OR maybe the different versions of the food are getting absorbed at different times thruout the body.

dont know if that sounds strange- but that seems to have been my experience. (my own assumptions/no allergy testing).

for example: regular tofu doesnt affect me, but soy oil & soy products in dressings seem to set off allergies.. and then you read about Soy Protein Isolate- and it's like- is that even safe for human consumption??

i had an EXTREME reaction to High Maltose Corn Syrup- broke out in HIVES, face/neck/arms/stomach BEET RED & HOT- it was WORSE than gluten (except that it only lasted an hour instead of a few days)... anyways, i did some reading- and basically "THEY" dont really know what HMCS may or may not do to the body- because it's so NEW to human consumption that they really dont know. (SCARY)

also for me: im usually ok with Hummus, but whole chickpeas will give HORRIFIC fructan Gas PAIN, and then chickpea flour gets me sneezing

sorry if that was discombobulated.. hope it made sense

Mari Enthusiast

Urticaria - skin problems including hives are caused by allergies. Food allergies are only one of the causes, skin contact allergies are also quite common.

Lyme Disease, often found in Celiacs, causes rashes anywhere on the body. Ask your Dr to test you for this.


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    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
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    • catnapt
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    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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