Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help Me Understand What Food Intolerances I Actually Have?


Trymester

Recommended Posts

Trymester Contributor

My Enterolab results show that I am sensitive to Gluten.

Previous and Current blood tests say that I am not allergic to Gluten, but do claim me as allergic to some other things:

May 31, 2009

Corn Class 2

Soy Class 1

Egg White Class 0

Milk Class 0

Wheat Class 0

Peanut Class 2

Sesame Seed Class 2

Walnut Class 1

October 18, 2010

Corn Class 1

Soy Class 0

Egg White Class 0

Milk Class 0

Wheat Class 0

Peanut Class 1

Sesame Seed Class 1

Walnut Class 1

What does it mean that my corn and nuts numbers were class 2 and are now class 1? Is it just different ways to calculate the same facts? If Enterolab (October 2010) had me at 36 units (Fecal Anti-gliadin IgA), when the normal is less than 10 units, and that makes for a clear intolerance to gluten, then why does it not show up at all on blood IgE tests?

I was perfectly ready to start my gluten-free diet, but both of my blood tests say I'm allergic to corn, and the older one said I'm allergic to soy. These were to be my main wheat replacements. What should I do?

Supposedly, I'm not allergic to milk, but I planned on letting go of it also. My fecal anti-casein IgA came out to 10 units, and the normal is supposedly under 10.

In conclusion, I will do the gluten-free, but should I abstain from corn, soy, and nuts as well? Why do these tests check for these foods, and not others? If they checked for peanuts, sesame (which was 1 of my main replacement foods in hummus), and walnuts, then why didn't they check for pecans, almonds, hazelnuts, etc.?

What do you guys make of this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jeanne- Rookie

Hi Trymester,

I too am allergic to corn and soy. I have used a combination of rice flour, potato starch, and tapioca flour to replace my wheat flour (proportions can be found on the King Arthur Flour web site, it is located at the bottom of their gluten free recipes). It helps if you can make as much homemade food as you can. Bob's Red Mill has a gluten free flour that is good for baking cakes, it doesn't have the grittiness that rice flour can have.

We use rice milk to replace dairy. Rice Dream claims to be gluten free although I did see a post that said it truely wasn't. Guess it depends on how sensitive you are to gluten.

When my son was tested for food allergies, he was positive for milk and two kinds of cheeses, but negative for two other kind of cheeses. The doctor said that the protien structure was slightly different in each cheese. Makes me wonder if the protien structure is slightly different in each kind of nut as well.

Looking for answers Contributor

Have you continued to eat the foods you're allergic to? You have to be eating the foods for your tests to be accurate.

Trymester Contributor

I am yet to stop eating any foods at all.

ravenwoodglass Mentor

First off celiac does not show up on allergy testing. You should eliminate the stuff that you are reacting to for a bit. You may find after you have been gluten free for a bit that your other intolerances will improve. Leave them out till you are fully healed on the gluten free diet and then add the others back in one at a time to see if you are tolerating them.

Trymester Contributor

First off celiac does not show up on allergy testing. You should eliminate the stuff that you are reacting to for a bit. You may find after you have been gluten free for a bit that your other intolerances will improve. Leave them out till you are fully healed on the gluten free diet and then add the others back in one at a time to see if you are tolerating them.

Thanks for this. I will do. And, as far as I know though, I am not reacting to any corn, soy, or nuts.

mushroom Proficient

IgE testing is not necessarily predictive of how you will react to a food when you ingest it. They did not check for the other nuts because they only check for the most common allergens, of which sesame seeds just recently made the list.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

Because Allergies & Intolerances & Autoimmune Diseases are all completely different things. you could have one & not the other or both

there's a moderator on here who says those allergy tests are not conclusive... my theory and own allergic experiences: is that they body may not always be releasing the same amount of histamines ???? i read somewhere that when you are stressed- your body makes MORE histamines which would elevate your allergic responses-

i have definitely experienced different levels of allergic responses

Trymester Contributor

Even though I came out low on the allergy scale for things like nuts and walnuts, what exactly does that mean for almonds? Is anyone here allergic to almonds?

arened Rookie

I went to an allergist when I was trying to figure out what was causing my symptoms (later figured out I had Celiac). They did a blood test called the RAST, which tests for the most common IgE allergies (these are immediate reactions). Common signs of IgE reactions are itching and immediate swelling. The panel they tested me for was the same as yours, which are the most common allergens. I also did not react to wheat on that test. Class 0, 1, 2, etc. are the level that you reacted. The higher the number, the more IgE antibodies you have in your body for those foods. So, you will react more to them.

The anti-gliandin test from Enterolab (which I also completed) is an IgG reaction. This is a delayed reaction (not immediate like IgE). It is more likely to show you food intolerances and symptoms could include many things like fluid retention, joint pain, fatigue, GI upset, etc.

There is a Celiac panel, which is a blood test, that you can have completed from your Primary Care Physician. If you haven't gone on a gluten-free diet yet, you could give this blood test a try.

I was positive on enterolab for anti-gliandin, then had the blood test done only recently and it was also positive. My IgE blood test was negative. I hope this helps!

Skylark Collaborator

I'm not sure why you would expect fecal IgA and blood IgE tests to come out the same. :lol: It's a totally different part of your immune system.

The usual thing with RAST is to eliminate all the foods that came up positive. Then you introduce them one at a time to see if you have a reaction from eating the food. They are not conclusive because your body is not a test tube. The test is simplified by necessity, and lots of things happen to foods between your mouth and your bloodstream.

The doctor who ordered the tests will generally help with setting up the diet and challenge schedule. Food allergies come and go, as you see with your shifting test results, so if you have a food that's only a mild reaction, it's reasonable to test it again in a few years.

As far as corn and soy, it looks like your wheat replacements will have to be rice and potatoes.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.