Results Day Looming

[loubyloo]

Hi, me again. I get my blood results tomorrow - really scared. Having had D everyday since June, and awful nausea resulting in medication and then just not eating as that seemed to make it stop, my stomach FINALLY seems to be returning to normal - although it still isn't tolerating much food at a time since an awful episode last week. I was so ill and have lost so much weight (i was already underweight) that my Dr took the bloods and put me straight on gluten free diet.

Now i'm really scared about what the results are going to say.

Whatever they say i'm going to stay gluten free and start introducing other foods (my diet is very restricted just now out of sheer fear and inability to digest fruit & veg) and see if things stay better. But i want to feel vaildated and not be regarded by the medical profession as 'another hypochonriac' or 'celebrity wheat intolerance dieter'

I'm just really scared and nervous and was wondering whether anyone else had shared these nerves

[SGWhiskers]

I think we all had the nerves while waiting for the test results. Half of me was hoping for a diagnosis because I wanted an answer. The other half wanted donuts. I think when the results came in I was most excited about being validated. I had spent years in doctors offices as a depressed hypochondriac. It was nice to let some of that wash away.

In the 2 years since my diagnosis, I've learned a few things that might be of help to you after you get your results.

1) if you have celiac, you have to be very strict and even a little cross contamination can make you feel terrible.

2) if the results are negative, you should still try a strict gluten-free diet for 3 months.

3) if the results are negative, start requesting other kinds of testing from your doctors. Don't let their interest in treating the symptoms keep you from a diagnosis of a cause.

4) don't consume lactose on a gluten-free diet in the first 6 months at least.

5) ask for a copy of your lab results.

Good luck on your test results and I do hope they are a nice clear positive for you. Post them here if you have trouble interpreting.

[gf-soph]

I haven't had exactly the same experience, as I was sick for a lot longer before a good dr told me that I was non-celiac gluten intolerant, and that I needed to go gluten free. By the time she told me that I was so glad to have an answer to why I felt so sick that I was fairly happy to do it.

Before I went gluten free I couldn't eat any uncooked veggies, and the only fruit I could eat was bananas. Almost everything made me feel sick, and at some points there were only about 4 things I could eat that wouldn't go right through me. Even after going gluten free I've had to deal with appetite problems and other food intolerances, but they are much more manageable than when I was still eating gluten. It might help to see a dietician if you can, they might be able to help you work out a diet that you can manage that will help to keep your nutrition up.

I hope you get some answers in your testing. I wouldn't be too concerned about whether the drs think you are following some sort of trend - a lot of them don't know much about celiac or gluten intolerance. Your dr putting you on the diet is encouraging, they obviously are taking you seriously. At the end of the day what matters the most is that you get well, get the best advice you can from the doctors but a lot of people here have had to make their own decisions about the diet.

[Emilushka]

I had horrible nerves about it, even though I was pretty sure the only thing that made sense was Celiac. Hang in there. You got a great answer from your own body when you responded well to the gluten-free diet. That's not something to be ignored.

[loubyloo]

Why not lactose? I'm eating a diet of rice, milk and yoghurt. D has stopped altho possibly a little C now. Am veggie & beans & veg didn't go down very well so just been avoiding them. What would be symptoms of a lactose prob? I'm damn tired & weak.

By the way bloods were fine & celiac panel not back yet