Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Breastfeeding A Gluten Intolerant Child?


norahsmommy

Recommended Posts

norahsmommy Enthusiast

Can I eat gluten while breastfeeding a gluten intolerant child? I am guessing the answer is no, but I haven't been able to find an answer to this one.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

no, gluten is passed through the breastmilk and will cause a reaction in her. you need to be gluten free for as long as she's breastfeeding. (and we're happy to help you do that! this doesn't need to be a cause for early weaning!)

norahsmommy Enthusiast

no, gluten is passed through the breastmilk and will cause a reaction in her. you need to be gluten free for as long as she's breastfeeding. (and we're happy to help you do that! this doesn't need to be a cause for early weaning!)

Thats what I thought. I have been trying very hard to maintain a gluten free diet but it is very hard and kind of expensive while I figure out what to eat and where to get it. I am certainly cooking alot more from scratch though! My husband complains that the pasta I cook with is not 'real' pasta though.

tarnalberry Community Regular

The easiest way to keep costs down and reduce the risk of picking up something you shouldn't is to just cook from scratch with naturally gluten free ingredients. You may need to rethink some of your "go to" meals. Substitutes, like rice pasta, are more expensive and don't "taste the same", so skip the pasta and make something else. Perhaps spaghetti sauce over rice, or potatoes, or spaghetti squash. Make chicken rice soup (even from scratch, it can be easy and take all of half an hour) instead of chicken noodle. Make chili, but skip the bread. Have beef stew.

What sorts of foods do you often eat and what kinds will you eat?

What is your time limitation?

What can we help you figure out how to make that's easy AND gluten free AND tasty?

norahsmommy Enthusiast

The easiest way to keep costs down and reduce the risk of picking up something you shouldn't is to just cook from scratch with naturally gluten free ingredients. You may need to rethink some of your "go to" meals. Substitutes, like rice pasta, are more expensive and don't "taste the same", so skip the pasta and make something else. Perhaps spaghetti sauce over rice, or potatoes, or spaghetti squash. Make chicken rice soup (even from scratch, it can be easy and take all of half an hour) instead of chicken noodle. Make chili, but skip the bread. Have beef stew.

What sorts of foods do you often eat and what kinds will you eat?

What is your time limitation?

What can we help you figure out how to make that's easy AND gluten free AND tasty?

we use alot of milk, cheese and sour cream in cooking so we may have to rethink that one a bit. However potatoes I can do! We love potatoes. I fix them frequently. We eat alot of turkey, pork and chicken so thats fine. Soups are fine since I save the drippings from everything and either make stock or gravy out of it (gravy made with gluten free flour). The things I am having trouble with are biscuts, breads, pizza crust and things like that. I am a serious bread-o-holic and I really want something warm and fluffy and bread-like to eat. Are there ANY products or recipies for making bready things that taste good? I did manage a gluten free 1st birthday party for my daughter. The cake turned out wonderful! The frosting I made from cream cheese, vanilla and powdered sugar. Was that ok or should I not feed her cream cheese? I am having trouble figuring out if she should eat dairy at all.

Also can I prepare my daughters foods in the same pans as the rest of the family that eats gluten? Do I need dedicated pans, plates, utensils? Can I wash them all together in the dish washer? My mom doesn't think it matters and said I am being paranoid when I won't prepare my daughters food on the same section of counter top as the gluten food. Thanks so much for the help. I am trying to find my way in the confusing world of gluten free!

slee Apprentice

I have been told that gluten does not travel through breast milk.

cassP Contributor

1st off- one of the recent articles discussing gluten in breast milk: Open Original Shared Link

2nd- great suggestion above- sometimes when i make a bolognese sauce- i actually pour it over Basmati rice (instead of rice pasta)- it is DELISH

3rd- with your baby being gluten intolerant- have you or your husband entertained the possibility that either or both of you could also be gluten intolerant??? the predisposition, at least, is genetic... and remember that most Celiacs actually dont have any gut symptoms.. so many would never know unless they got tested. (but again, you have to be ingesting enough gluten for some time to get an accurate test- and you're nursing now, so you'd have to wait till later).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



norahsmommy Enthusiast

1st off- one of the recent articles discussing gluten in breast milk: Open Original Shared Link

2nd- great suggestion above- sometimes when i make a bolognese sauce- i actually pour it over Basmati rice (instead of rice pasta)- it is DELISH

3rd- with your baby being gluten intolerant- have you or your husband entertained the possibility that either or both of you could also be gluten intolerant??? the predisposition, at least, is genetic... and remember that most Celiacs actually dont have any gut symptoms.. so many would never know unless they got tested. (but again, you have to be ingesting enough gluten for some time to get an accurate test- and you're nursing now, so you'd have to wait till later).

I do believe I have gluten intolerance also. I went off gluten for my daughter just in case she was getting it through my milk and I cannot tell you how different I felt after a couple of weeks. I had no idea all my life my bowl movements were not normal until they actually WERE normal. I also felt (mentally) much better. I could think more clearly and I was much more patient and less tired. I fell off the wagon for a few days and felt awful. My dad and my brother have had issues for years but dad doesn't think anything is wrong with him and my brother (who is a scientist no less =) ) said he probably has celiac and has thought so for years but likes bread too much to bother with gluten free.

norahsmommy Enthusiast

I also wanted to add that my younger 2 kids have eczema, my middle child had problems with milk as a toddler and refused to drink it (she barely drinks it now but seems to have outgrown her issue?).She is 3 yrs old this month and weighs 26 lbs and is 35 inches tall. She was on the low end of the height/weight charts at birth then went up to the middle and then fell off her curve at 9 months and didn't gain a thing until after her fist birthday. At 1 yr old she was 17 lbs. She recently got sick and went from 27 lbs to 23 lbs in about 10 days. She has gained most of it back but is still under a bit. Also my oldest has been having alot of adhd symptoms and her teacher is constantly talking to me about her 'attention, and focus' in class. My husband cant drink milk without stomach pain and my kids all have night terrors. Anyone want to come live at my house? =) I am now starting to wonder if it isn't all just diet related. My husband may just be plain lactose intolerant and not have a problem with gluten though.

cassP Contributor

I also wanted to add that my younger 2 kids have eczema, my middle child had problems with milk as a toddler and refused to drink it (she barely drinks it now but seems to have outgrown her issue?).She is 3 yrs old this month and weighs 26 lbs and is 35 inches tall. She was on the low end of the height/weight charts at birth then went up to the middle and then fell off her curve at 9 months and didn't gain a thing until after her fist birthday. At 1 yr old she was 17 lbs. She recently got sick and went from 27 lbs to 23 lbs in about 10 days. She has gained most of it back but is still under a bit. Also my oldest has been having alot of adhd symptoms and her teacher is constantly talking to me about her 'attention, and focus' in class. My husband cant drink milk without stomach pain and my kids all have night terrors. Anyone want to come live at my house? =) I am now starting to wonder if it isn't all just diet related. My husband may just be plain lactose intolerant and not have a problem with gluten though.

your husband could still be gluten intolerant without having significant symptoms.. i read a study months ago (i think out of columbia university) that only 1 in 6 Celiacs have any gut symptoms. Also.. while Gluten absolutely kills me... and Dairy affects me- but not too bad... back in 1998, before i experimented with No Carb diets & i was eating more gluten per day than a "gluten challenge"... Gluten of course had me in constant bloat/gas/post nasal drip/sleeping problems/& excema.. Dairy would give me IMMEDIATE "D"... i suspect that back then i was completely Lactose Intolerant due to Villi Damage

Excema ... OH BOY- i have had the worst Excema in my life and i am SO THRILLED that i will never have that again- it was HORRIFIC- had it on my foot for 5 years- would itch till it bled... i remember telling God- MAN if You can just make this disappear- then i wouldnt need anything else in this life... that i would be so happy and be able to LIVE MY LIFE.. oh it was awful.

my dad has had excema & psoriasis patches for years- i keep asking him to get tested- and he keeps shruggin it off.. cause he never has stomach issues- but gluten can affect almost any organ- ESPECIALLY the brain!

good luck :)

glutenfreemamax2 Enthusiast

your husband could still be gluten intolerant without having significant symptoms.. i read a study months ago (i think out of columbia university) that only 1 in 6 Celiacs have any gut symptoms. Also.. while Gluten absolutely kills me... and Dairy affects me- but not too bad... back in 1998, before i experimented with No Carb diets & i was eating more gluten per day than a "gluten challenge"... Gluten of course had me in constant bloat/gas/post nasal drip/sleeping problems/& excema.. Dairy would give me IMMEDIATE "D"... i suspect that back then i was completely Lactose Intolerant due to Villi Damage

Excema ... OH BOY- i have had the worst Excema in my life and i am SO THRILLED that i will never have that again- it was HORRIFIC- had it on my foot for 5 years- would itch till it bled... i remember telling God- MAN if You can just make this disappear- then i wouldnt need anything else in this life... that i would be so happy and be able to LIVE MY LIFE.. oh it was awful.

my dad has had excema & psoriasis patches for years- i keep asking him to get tested- and he keeps shruggin it off.. cause he never has stomach issues- but gluten can affect almost any organ- ESPECIALLY the brain!

good luck :)

If's funny you mention the post nasal drip. I have had it my whole life, and for the first time, i don't have it! I am completely off my sinus meds!

I'm a lactation counselor. I can look back, and see some of the children that I worked with who's mom's have cut everything out- dairy-eggs-soy, but never gluten. The kids never got better, and mom was so frustrated she quit and gave hypoallergenic formula. The kids got better. I betchya that it was gluten. The formula is(should be?) gluten free, and once mom stoped nursing, the baby stopped getting gluten, and got better. Hmmmmm...something I will definatly keep an eye on from now on.

My son had major allergies when he was born. They say that they can't tell if a newborn has allergies until they are 3 months old. I don't agree. At 2 weeks, my son was having MAJOR issues, and because i persued it, i got a diagnosis much sooner than normal.

I would definatly stay away from gluten.

How did you know it was a gluten allergy? I'm curious what kind of symptoms the baby has/had?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748

    patanddiane
    Newest Member
    patanddiane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.