Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutening - Same Day Or 4 Day Reactions?


Marz

Recommended Posts

Marz Enthusiast

Trying desperately to figure this out. I'm keeping a food diary, and it seems that I'm getting same or next day reactions to gluten. However when I started out on the gluten-free diet, my "food challenges" indicated more of a 4 or 5 day reaction.

For example, a few months ago:

Semolina breakfast, I'd feel fine on the day (no reaction, maybe a sore stomach), but get the big D reaction a few days later.

Now:

Chocolate mousse - all ingredients are "gluten-free", though it's not a guaranteed gluten-free product. It's by a company I usually trust, but I haven't had this before. I immediately got a sore stomach from it (classic sign for me something's not good). The next day (today), I'm suffering with massive d.

It seems that every single time I take a chance I pay big time. I'm so tired of making all my own meals, but so tired of getting sick every week.

Disclaimer - I'm only eating meals that should be safe, like plain steaks (but cooked at work on grills that have cooked hamburger patties/sausages containing gluten); stew from my parents house that should be fine (but again, cooked in their pots that have probably seen wheat before); stuff like chocolate mousse that list allergens like cow's milk, and don't list gluten, and don't have wheat etc, but are probably packaged in same factory that does gluten desserts.

I guess I just need someone to kick my butt and tell me to stop taking chances. I feel I'm 95% there with the diet, I just need to make that extra effort to feel 100% better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SGWhiskers Collaborator

Consider that Celiac has probably made you lactose intolerant at least for the first 6 months of the diet. The tips of the villi make the enzyme responsible for breaking down lactose. These tips are the first to be damaged and the last to heal. Skip the milk for now and try reintroducing aftre 6 months with a little cheese or smaller bits of dairy.

With that said, shared grills are an issue for me. If Mom and Dad's pots are plain metal and not non-stick, they should be fine if they are well washed. Like you, I spent the first few months of being gluten-free in denial about the effects cross contamination would have on MY body. "Surely, the majority of Celiacs (including me)were not ridiculously sensitive to cross contamination" was my thinking. Well, that cost me 3 months of recovery time. When I got crazy strict was when I found a consistent healing pattern.

You can always spend 3 months being insanely strict and then see what happens when you share a grill or do something else a little careless. For now, just wrap that burger in foil or throw it on a clean pan. I bought myself a little cast iron steak pan for the grill that I LOVE.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,000
    • Most Online (within 30 mins)
      7,748

    Kim Martin
    Newest Member
    Kim Martin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • The Logician
      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
    • AnnaNZ
      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
×
×
  • Create New...