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Itching


Bigbread

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Bigbread Rookie

After I eat white bread my skin starts itching so badly I want to go mad- and sometimes it feels like things are crawling on my skin, lots of things are crawling in the same direction round and round, it drives me crazy. This usually also comes with red patches that if left untreated scars.

I


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Kay DH Apprentice

You should probably make an appointment with a dermatologist that is very familiar with dermatitis herpetiformis and other rashes that can result from gluten. Wheat allergies can also have some unusual symptoms, so good to get tested for allergies. Check the web for allergy symptoms. My reaction to gluten was skin rashes on my calves, back, and arms that lasted for a number of years. People with celiac come in all sizes and shapes, not all are underweight or have anemia. Some are asymptomatic. It all depends on how your body reacts to gluten.

shopgirl Contributor

You need to find a new doctor because your dermatologist is suffering under antiquated ideas about Celiac. Not all Celiacs have weight loss and diarrhea. I was the exact opposite

cassP Contributor

(Derm says that its only celiac if you lose weight has diaree)

sorry- but that line is bs

and- i cant diagnose the rashes you're having... or tell u whether it's gluten intolerance, celiac, or wheat allergy, or all of the above-

but i DO know that gluten & wheat make me itch.

thruout my life- i have had EXCEMA, Psoraisis, Dandruff, and another horrific itching issue that i will leave unsaid.. they all disappeared after being Gluten Free.

thruout the last decade- when i would cheat on wheat & gluten (this was before i tested for Celiac, & only thought of it as a diet)- i would get horribly itchy.

GuyC Newbie

About 20 to 40 min. after eating gluten, my face and arms burn like a sunburn (but are not red). It takes several hours to go away. I was diagnosed Celiac last week. It's worth a check.

GuyC

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    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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