Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Funny You Don't Look Sick?

Nor-TX

By Nor-TX
in Coping with Celiac Disease

Recommended Posts

Nor-TX Enthusiast
Nor-TX
Posted

Met some friends for dinner at Chili's last night. Two I work with and 1 I hadn't seen in 3 years. I try to keep my medical issues low key because no one is interested in my Colitis, Remicade issues, upcoming knee surgery, GERD, and all my other stuff. So when asked how my health was, I answered, "Not great, but I am dealing with things day by day." One of the friends I work with said, "Didn't you have your chemo on Friday?" I said, "Yes I did." Then she said "Funny you don't look sick?"

No one knows or understands. When they brought the bowl of chips and salsa and I didn't take any, the three "friends" chided me for not eating them. I told them this isn't a diet that you can cheat on like a calorie counting diet, but if I eat the chips and salsa, I will get sick. Again I heard, "sheesh, a couple of chips couldn't hurt you." They spent the next bit of time telling me how delicious the salsa and chips were and waving them in front of my nose.. *sigh*.

Wanna hear the saddest thing? One has a husband who has Diabetes, one's husband died within a week of finding out he had cancer, and one is a nurse. All of them are well into their 50s....

So much for dining out with unsympathetic "friends".

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Again I heard, "sheesh, a couple of chips couldn't hurt you." They spent the next bit of time telling me how delicious the salsa and chips were and waving them in front of my nose.. *sigh*.

When you eat in the school cafeteria with 6 th graders, what do you expect? I guess you have to find friends your own age. ;)

Actually, if you are going through Chemo, the comment that you don't look sick is a compliment. I am flabbergasted that with Chemo, they weren't more sensitive.

I usually get the"Oh, that's right! Sorry!" when I say I can't eat something. This is from people I don't see everyday. I don't mind that.

I'll meet you at PF Changs for lunch. We can order things off the gluten-free menu and share. :)

Nor-TX Enthusiast
Nor-TX
Posted
  • Author

When you eat in the school cafeteria with 6 th graders, what do you expect? I guess you have to find friends your own age. ;)

Actually, if you are going through Chemo, the comment that you don't look sick is a compliment. I am flabbergasted that with Chemo, they weren't more sensitive.

I usually get the"Oh, that's right! Sorry!" when I say I can't eat something. This is from people I don't see everyday. I don't mind that.

I'll meet you at PF Changs for lunch. We can order things off the gluten-free menu and share. :)

The chemo I am taking is Remicade with lots of drugs thrown in at each session. heavy doses of Prednisone, lots of bendryl, double Venofer, B12.

I haven't tried PF Changs yet. Do you live in north Dallas?

kareng Grand Master
kareng
Posted

The chemo I am taking is Remicade with lots of drugs thrown in at each session. heavy doses of Prednisone, lots of bendryl, double Venofer, B12.

I haven't tried PF Changs yet. Do you live in north Dallas?

No. Actually, I live in Kansas City. My BIL/SIL live in Plano. He is starting a "healthy fast casual" restuarant in Plano. Looking into the gluten-free certification for restuarants. Should open in December. I'll let everyone know when it does.

I really like PF Changs. I feel safe eating there. One of the owners has a daughter (?) with Celiac.

ohsotired Enthusiast
ohsotired
Posted

The chemo I am taking is Remicade with lots of drugs thrown in at each session. heavy doses of Prednisone, lots of bendryl, double Venofer, B12.

I haven't tried PF Changs yet. Do you live in north Dallas?

Nor_TX I'm sorry your coworkers are so insensitive!

I DO live in north Dallas, so if you ever want to go grab lunch or something, just holler.

I don't participate on the boards here much anymore but I do still lurk.

Kareng - please do let us know about the new restaurant! I would frequent it for sure!

Nor-TX Enthusiast
Nor-TX
Posted
  • Author

A new Gluten Free restaurant in Plano!!!!!!!!!!! Whoo Hooo... That's where I work and live close by. Where are they going to have their restaurant?

Ohsotired: Which PF Changs do you go to? I'm at Plano Pkwy and Preston.

ohsotired Enthusiast
ohsotired
Posted

A new Gluten Free restaurant in Plano!!!!!!!!!!! Whoo Hooo... That's where I work and live close by. Where are they going to have their restaurant?

Ohsotired: Which PF Changs do you go to? I'm at Plano Pkwy and Preston.

Actually, I have never been to a PF Chang's either! LOL Been dying to try it, but the hubby isn't fond of the place, so I've never been.

We should go!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Katie B Apprentice
Katie B
Posted

Time to get new friends! That reaction is appalling.

cassP Contributor
cassP
Posted

im sorry you're having to do chemo :( i hope u feel & get better SOON.

ya, look for PF changs- they've got a fairly sized gluten free menu :)

kareng Grand Master
kareng
Posted

The restuarant is going in the old Pizza Inn (being re-done) at Park & Midway.

They have just started (Monday) looking into what it will take to do gluten-free. I hope its not too discouraging.

kayo Explorer
kayo
Posted

If I lived in Texas I'd meet you for lunch too! No chiding, teasing or guilt trips!

We have a lot in common, I have arthritis and colitis too. I was on methotrexate (chemo) for years and the side effects were awful. So glad they came out with new meds. How do you like the Remicade?

ohsotired Enthusiast
ohsotired
Posted

The restuarant is going in the old Pizza Inn (being re-done) at Park & Midway.

They have just started (Monday) looking into what it will take to do gluten-free. I hope its not too discouraging.

I hope not too! Please let them know that if they need any help, I would be willing - whether it be just ideas or actual labor in getting the place set up!

Nor-TX Enthusiast
Nor-TX
Posted
  • Author

Me too... my husband is pretty handy. Mmmmmm gluten free pizza restaurant... is it too early to put in my order?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,002
    • Most Online (within 30 mins)
      7,748
    JoEllen Ball
    Newest Member
    JoEllen Ball
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Wheatwacked
      Chances of being coeliac

      By Wheatwacked · Posted

      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Celiac getting dentures

      By captaincrab55 · Posted

      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Aretaeus Cappadocia · Posted

      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      Chances of being coeliac

      By trents · Posted

      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.