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How Long Does It Take To Get Your Energy Back? Or Does It Ever Come Back?

Nomi

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Nomi Rookie
Nomi
Posted

Two days ago I had my blood taken to test for Celiac. My Dr. is pretty sure that I have it. I had surgery two month prior to this and instead my energy level going back up it's been going way down. I live a very active lifestyle and I am having issues coping with this lack of energy. I just want to sleep all the time. If I do have Celiac can anyone tell me about how long it will take to get my energy levels back up? I have been Gluten free for two days now.

Any advice would be great. Thank you very much.

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Dixiebell Contributor
Dixiebell
Posted

Welcome!

Make sure to also get your vitamin levels checked. Low levels can cause lack of energy.

Nomi Rookie
Nomi
Posted
  • Author

Welcome!

Make sure to also get your vitamin levels checked. Low levels can cause lack of energy.

To my knowlege they didn't check my vitamin levels but they did tell me that I'm anemic. I'll call the her and ask her about the vitamin levels.

Laennie Rookie
Laennie
Posted

I know they say every person is different but I am going on 18 days gluten free & this whole week I have been feeling more & more energetic. I am not sure when the last time was that I felt this way. I feel soo great. I also have been taking 50,000-100,000 units of Vit D a week since around April or May when my vit D came in at 30. As of Nov 1st, after taking 100,000 units for about a month I finally came up from 44 to 68. I'm not positive but I'm sure that is helping as well. I also take prenatal vitamins & caltrate daily.

Skylark Collaborator
Skylark
Posted

My GI issues improved within a couple weeks gluten-free, but I'm sorry to say it took me months to get my energy back. I think I've had gluten issues for most of my life so it's not surprising I didn't feel better instantly.

Raebies Newbie
Raebies
Posted

My GI issues improved within a couple weeks gluten-free, but I'm sorry to say it took me months to get my energy back. I think I've had gluten issues for most of my life so it's not surprising I didn't feel better instantly.

With the onset of severe GI issues and fatigue I just went on the gluten-free diet. I did this because my dad has an offical Celiac diagnosis and my doctor had been dismissive about the initial onset symptoms more than a year and a half ago. Though I suspect I may have started developing issues in college because after highschool my energy levels dropped and I developed issues with my iron being borderline low and asthma.

I've been on the diet for 6 weeks my GI issues disappeared except for a few accidental glutenings and my energy started returning about 2 weeks later. My asthma is also marginally better.

My dad, on the other hand, was having SEVERE issues for 2 years or so before he was diagnosed (and I suspect he may have been having mild issues for years before that). He said it took him about a year to feel completely better. I'm not sure about energy vs GI symptoms as to what got better first and on what timeline.

Hope this helps.

punkinrice Rookie
punkinrice
Posted

I found that I had a sort of gluten-withdrawal for the first little while. I had headaches, hot sweats, and got reeaaaaaally tired for a few weeks. I added a B vitamin supplement, and I found that really helped.

Another thing I would suggest is to have a very close and careful look at absolutely everything you put in your mouth. I thought I was completely gluten free, and then found out my multi-vitamin had gluten in it (not listed). If I get any accidental ingestion, it takes me about 3-5 days to get over the all-consuming exhaustion. I get it...there's being tired, and then there's incapacitating whole body gluten exhaustion.

I am starting to slowly get my energy back, but I found in the beginning I needed to listen to my body more. It was healing, and needed rest to do it. Hang in there. You are doing the right thing. ;)

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FooGirlsMom Rookie
FooGirlsMom
Posted

Hi,

Your iron being low will make you feel very tired. Talk to the doc about iron supplementation. Some Celiac's don't absorb well. A friend of mine takes a huge dose of iron (not something you'd self-prescribe - it could be dangerous) because her intestines just don't take it in.

The one thing that has helped my own energy in a way I never thought possible has been sublingual b complex. I take 1 dropperful 2x a day (it's gluten-free) and it really helps me. I have tested to see if it makes a difference when I work (or am active) and it does. Sublingual is great for Celiacs because it goes under the tongue and absorbs that way, bypassing the damaged intestine.

Hope it helps,

FooGirlsMom

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      how much gluten do I need to eat before blood tests?

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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
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