Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Ever Had This Before?


Diosa

Recommended Posts

Diosa Apprentice

Hi all.

Since trying to go gluten-free to stop the pain I'm in, I've been missing some of the stuff, like pasta. I found some gluten-free/wheat free pasta (made of rice flour). I got sooooooooo ill from it last night it was unbelievable. I thought maybe it was the pasta sauce (vodka sauce lots of dairy), so I tried rice bread this morning. Same results. Very ill. In pain within a half an hour.

Is it possible to be "allergic" - sensitive I guess is the better word, to other grains? I know I don't get on with soy, and rice and corn were somewhat questionable, but I've never reacted that badly before. I've never really ate a lot of gluten-free stuff, so to be fair, this was really my first major intake of anything other than white flour/wheat flour.

I feel really defeated right now as I just don't know what I'm doing. :(

Thanks for listening.

Beth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

It is possible to be intolerant or allergic to other grains, but there are other options as well. First, does regular rice cause this problem - not just processed rice? Also, was it a gluten like reaction or very different? How long have you been gluten free; sometimes things can bother you for a while until you heal? Have you identified other food intolerances?

jenvan Collaborator

Beth-

I agree with Tiffany... and I note I am intolerant to a ton of foods, and that some foods procedure worse "noticeable" reactions in me than gluten--like turkey, corn, some dairy, coffee... Might want to check into other food intolerances. Have you tried other gluten-free breads, like corn bread or a bean flour bread? Also, you should make sure when you're cooking that your not cross contaminated your gluten-free food with utensils, pans etc that have gluten on them... Hopefully you'll figure out the culprit soon. It takes some of us a while to work out all the kinks !!

Diosa Apprentice

Thanks for replying. The reaction was similar to gluten (nausea,dry heaves, then pain) but more pronounced. Gluten usually just goes to blinding pain within a half an hour. Rice in and of itself could be a problem. I was told to avoid rice and soy by my nutritionist, but corn should be ok every once in a while. Except for sushi, I was never a big rice eater. Never really liked the stuff. :)

I never thought about gluten being in the pans. I use a dishwasher and figured that would blast about anything off. :) I'll check into that.

Bean flour? I've never heard of it. What kind of beans is it made out of? Is it any good?

Sorry to be asking so many questions. :)

Beth

mytummyhurts Contributor

FYI - there is also tapioca bread. That's what I eat and I like it better than rice bread.

Diosa Apprentice

I'll definitely give that a try and see how it goes. Thanks Abby!! :)

jenvan Collaborator

Beth-

Questions are always welcome :) Bean flour can be made from several types of beans, some products will have a bit of a bean taste if there is much bean flour, but it leads to good texture. You can buy these flours in many places, but here is one example of Bob's Red Mill bean flour. I have this at home: Open Original Shared Link

You could ck out this bread--very good texture and taste. One of the ingredients is a rice grass. Not sure if that is related to rice or just a name... THis bread is a favorite of many. Open Original Shared Link

If you're using a dishwasher, I bet your okay. I just ask b/c its an issue for some. Ie:--sharing a toaster, muffin pan that has crusted on bread or something... I know there are other non-rice breads, but would need more time to look for some. I bet Abby's tapioca bread is bread. Ab--what brand do you get?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mytummyhurts Contributor

Jen - I think the brand is EnerG

I'm not saying Tapioca bread is the greatest in the world. But I've liked it better than the rice breads I've had. And it may be an option if you can't eat rice. ;)

jenvan Collaborator

okay-i'm an idiot! i just read my post where i said

I bet Abby's tapioca bread is bread

Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

:blink:

Carriefaith Enthusiast
Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

It's easy to make mistakes, I have to edit my posts a lot because I make horrible mistakes all the time. That is pretty funny though :lol:

celiac3270 Collaborator

LOL :lol: ...we understood :)

skbird Contributor

I'm trying to go off of all grains but am happy to consider tapioca bread, etc for some foods. I'm thinking of ordering some of the raved about Chebe bread for that reason. Nice to have a grain free option.

Stephanie

tarnalberry Community Regular
Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

:blink:

lol... I don't know... I think with gluten-free bread, there may be a fair amount of sense in that statement "I bet her bread is bread". some of it really isn't bread, you know. it's ground up cardboard held together by a vacuum package, unless it's actually just a porous rock. :lol:

Guest Viola

Kinnikinnick has a very good Tapioca Bread as well, also they have a real nice English muffin which is mostly Tapioca I believe. I think there is a bit of rice flour in there as well, but when I was having trouble with rice both the bread and buns didn't bother me. I do hope that you find something that really agrees with you and tastes good too :rolleyes:

pixiegirl Enthusiast

I totally agree, most gluten-free bread is NOT bread!

LOL, Susan

jenvan Collaborator

ha ha ! maybe i was "wise" in what i said then :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

    5. - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748

    Jenny0384
    Newest Member
    Jenny0384
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.