Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sushi Out?


SaraKat

Recommended Posts

SaraKat Contributor

I think I am going out for sushi this weekend. I know a lot of sushi is gluten-free- when you go out for it do you tell them you are celiac or have an allergy or just order what you know is safe?

What are some good rolls to order? What should I be aware of with sushi (I know no tempura and soy sauce, what else)? This is my first time going out for sushi since being dx'd.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

I usually keep it simple. Tuna roll or a Philadelphia roll, and then some nigiri like tuna (maguro), yellowtail (hamachi), shrimp (ebi), or toro. I sometimes order scallop nigiri, if I can make sure it's whole scallops and not chopped scallops in sauce. And don't forget the edamame. As far as I know, the pickled ginger is safe. If you can find it, San J makes packets of gluten-free soy sauce you can carry with you. You can also order vegetable rolls, like cucumber, avocado, or pickled daikon.

I have a lot of trouble finding fancier rolls without gluten ingredients. Americanized sushi all seems to have either tempura, fake crab meat, or something teriyaki in it. Ponzo sauce is also not gluten-free as it has soy sauce in it. Sadly, some of the really good cooked sushi like unagi, salmon skin, and tamagoyaki (eggs) often also have soy sauce. I've been avoiding wasabi because it can have flour added to it, and since someone here said that masago and ikura (roe) can have soy sauce added, I've avoided those.

Some of the more exotic foods like tako and uni should be OK, although I don't know for sure.

One thing I've done is sat at the bar and told the chef that I am allergic to the wheat gluten in soy sauce, ponzo and fake crab, and could he make a roll that has only fish, rice, vegetables, and seaweed? I have gotten some wonderful concoctions that way.

foodiegurl Collaborator

I just had sushi last night, and the first place we went to, we ordered, got our drinks and then he waiter tells us there is wheat in the seasoning they put on the rice for the sushi. Ugh...so we left and went to another sushi place. I was shocked and never would have expected it in the rice. I posted it on Twitter and others responded that they had, had similar experiences, so be sure to ask about anything being added to the rice.

Good luck!

Skylark Collaborator

I just had sushi last night, and the first place we went to, we ordered, got our drinks and then he waiter tells us there is wheat in the seasoning they put on the rice for the sushi. Ugh...so we left and went to another sushi place. I was shocked and never would have expected it in the rice. I posted it on Twitter and others responded that they had, had similar experiences, so be sure to ask about anything being added to the rice.

Good luck!

OMG. It's supposed to be rice, salt, sugar, and rice vinegar. How the heck to you add wheat to that. :blink:

i-geek Rookie

Avoid California rolls unless they are made with real crab meat. Imitation crab often has wheat starch added as a binder.

I ate sushi last night: salmon roll and chili tuna roll (restaurant specialty: tuna meat mixed with chili sauce (Sriracha) and sesame oil. I skipped the wasabi and brought my own soy sauce. Good stuff and no problems. I also ate a TON of sushi in Japan because it was both delicious and a reliably safe way to eat. I stuck to fish/veggie combos with no sauces, used the soy sauce I brought from the USA, and had really good luck that way.

Nor-TX Enthusiast

I love sushi but stick to sashimi now. We have some wonderful sushi buffets and I eat only the sashimi, steamed rice. I bring my own wasabi (without wheat) and my own little packets of soy sauce. Other than being full, I have never experienced any problems.

  • 1 month later...
brendygirl Community Regular

I eat out frequently and hate to say that I've been glutened several times at sushi places, to the point where I don't go anymore.

Even watching them right in front of me, some chefs do not speak English and when I tell a translator that when they are cutting the sushi rolls with fake crab and tempura "crunchies" and stuff, I can get sick if they don't use a clean surface and a clean knife. Then they take the towel they've been wiping their hands and stuff on all night and wipe the counter/cutting board. And I'm like- that is not clean!

And they roll all the rolls with that bamboo thing. They could use clean saran wrap to roll it, but do they?

Once, I was unaware about the roe, so it was my own ignorance.

And it is just no fun to watch everyone eat the cooked stuff and the fancy rolls with sauces and all I have is a dry piece of tuna and rice with lemon.

The edamame is good, but I have that at home all the time, so not a big deal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SaraKat Contributor

I went to Koi in NYC a couple weeks ago and they told me all the white rice has gluten in it there (I guess it is in the stuff that makes the rice sticky). So, I ordered steamed Chilean sea bass with vegetables, it was good, but not the sushi I wanted.

Coincidentally I have a BDAY dinner at a sushi place tonight, I guess I will either be ordering steamed plain food or sashimi and edamame.

joey1011 Newbie

I went to Koi in NYC a couple weeks ago and they told me all the white rice has gluten in it there (I guess it is in the stuff that makes the rice sticky). So, I ordered steamed Chilean sea bass with vegetables, it was good, but not the sushi I wanted.

Coincidentally I have a BDAY dinner at a sushi place tonight, I guess I will either be ordering steamed plain food or sashimi and edamame.

They may be confusing glutinous rice with gluten. Sushi rice has no gluten when prepared with the proper ingredients. Koi is upscale, so I doubt they would be cutting corners like many of the Chinese run lunchbox sushi places do in NYC.

Personally, I've never had an issue with sushi anywhere, and I usually get a 3 day reaction from even the tiniest bit of cross-contamination.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.