Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hope For Healing

sandsurfgirl

By sandsurfgirl
in Coping with Celiac Disease

Recommended Posts

sandsurfgirl Collaborator
sandsurfgirl
Posted

Last year at this time I was starting to get extremely ill from my undiagnosed celiac disease. In addition to alternating constipation and diarrhea and gut pain, I was having major dizzy spells, constant sinus infections, joint pain, fatigue so bad it was hard to function, uncontrollable asthma attacks, anxiety attacks constantly so bad I had to pull over while driving so I wouldn't pass out from hyperventilating, numbness in my hands, headaches. I was on so many drugs I had to keep a chart of when to take what and check them off so I wouldn't forget. The doctors had no clue what was wrong with me. I ended up in the ER thinking i was going to die and the beautiful ER doc finally diagnosed me after scores and legions of doctors and specialists couldn't.

So the beautiful thing is this. We live near the beach and every year they build a big sand burm to protect the houses right on the water. The kids all climb it and sled down it on boogie boards or even sleds. Last year I couldn't do it. I would try to climb it and I would get so winded I couldn't. So my husband would take my two kids on there while I sat and watched. It was awful not being able to play with my small children and just having to watch them and not participate.

We went to the burm last week and I got so nervous. Even though I'm feeling great on the gluten free diet and have been able to work out for several months now, that burm seemed like a huge obstacle. And it took me a full 6 months to recover so I've only been feeling good for a few months. So I climbed and guess what! No winded feeling! I decided to sled and it was great so I went again. I finally got brave and surfed the darn thing! I stood up on my boogie board and surfed it over and over until my quads were burning.

I am so thankful for that wonderful man who finally figured out what was destroying my life and gave me my life back again. And gave my kids their mommy back too.

I'm so looking forward to Thanksgiving and Christmas this year being well and being able to truly enjoy it and celebrate.

Newbies, if it's hard right now, STAY THE COURSE. It was into my 7th month gluten free before I had ONE completely symptom free day. Now I'm working out like crazy, surfing sand burms, running and playing with my kids and generally feeling great.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MelindaLee Contributor
MelindaLee
Posted

Hey Girl,

So glad to hear your wonderful story. I too feel so much better, most days I don't even care that I can't eat some foods.

We have lots to be thankful for! This is a great week to remember that!

Melinda

Judy3 Contributor
Judy3
Posted

Thank you for your story, I'm a newbie diagnosed 11 days ago. I've been on the gluten free diet since 11/08/10 and I feel pretty good already. Still some pain in my belly but the doc said that would take time to heal. I'm happy to see that if I stick with this, regardless of how hard it is right now maybe just maybe I can get MY life back. Seeing the dietician at the hospital next Friday to try to figure this out as I have Diabetes and Celiac and a ton of food allergies Right now I'm pretty much eating vegies and fruit, rice crackers and cottage cheese. Don't like meat much but I will learn to eat it again I guess. Seasoning seasoning seasoning (I buy direct from a spice vendor so I know they are pure)

Again thank you :)

*Judy

Charlie's Girl Apprentice
Charlie's Girl
Posted

Thanks. I needed this.

I really appreciate you taking the time to post this message of hope.

((((hugs))))

Looking for answers Contributor
Looking for answers
Posted

I know that Burm...seal beach, right? I could walk there in five minutes from my house. So glad to hear of your recovery. I remember when I was really sick a few years ago, a turning point for me to get help was not being to run after my kite. Anyways, so glad you're doing better and joining others on sand sliding :rolleyes:

sandsurfgirl Collaborator
sandsurfgirl
Posted
  • Author

I know that Burm...seal beach, right? I could walk there in five minutes from my house. So glad to hear of your recovery. I remember when I was really sick a few years ago, a turning point for me to get help was not being to run after my kite. Anyways, so glad you're doing better and joining others on sand sliding :rolleyes:

Yes! You and Wolicki and I need to go out to dinner. She and I are really close friends. Beachwood BBQ!

Charlie's Girl Apprentice
Charlie's Girl
Posted

Yes! You and Wolicki and I need to go out to dinner. She and I are really close friends. Beachwood BBQ!

I'll drive down from the South Bay if you want to make it a foursome.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sandsurfgirl Collaborator
sandsurfgirl
Posted
  • Author

I'll drive down from the South Bay if you want to make it a foursome.

I am so in need of a gluten free night out!!

Charlie's Girl Apprentice
Charlie's Girl
Posted

I am so in need of a gluten free night out!!

Let's do it!

Looking for answers Contributor
Looking for answers
Posted

Absolutely! I would love to meet you three. :)

Mama Melissa Enthusiast
Mama Melissa
Posted

aww its nice to hear something positive good for you sweetie:) I wished i didnt live so far away i could really use a gluten-free night out as well:)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,835
    • Most Online (within 30 mins)
      7,748
    Arif
    Newest Member
    Arif
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.