Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I Have My Daughter Scoped?

ddennis11

Recommended Posts

ddennis11 Newbie
ddennis11
Posted

Sorry for the long path to my question...

My 12 year daughter, 7th grade, has had many issues with gluten in the past it started with stomach pain and digestive upset in Kindergarten and 1st grades. Allergist said to treat her like a Celiac and move on but hubby insisted we go to GI and he basically laughed me out the door and said no way and go home (low Immunoglobulin A 58 and high Gliadin Antibodies did not equate to Celiac). Well, went to alternative doc at the time and went off gluten for 2 1/2 years. No more tummy issues. Started Gluten again and seemed to be fine for several years (but mild anxieties and tired all the time). This summer big time sleep issues which lead me back to alternative doc (ped doc no help). That blood work came back low B12 and high Absolute Eosinophils 952. The Eosinophils sent me back to the original allergist. She did blood work which show negative Celiac but low Immunoglobulin A 29 and high Gliadin Antibodies 45. Second set of blood work showed Immunoglobulin A of 30 and Absolute Eosinohpils of 2784. Just got the blood work back for the Genetic testing today and she has one of the genes for Celiac. After taking to GI doc (different one same practice 5 years later) on Friday he will do the scope based on her testing/vague symptoms (did not have genetic results when he saw her). Would leave it up to my husband and me. The ped doc said not to do the scope and just the diet and see if she felt better (12 year old says she feels fine and is not sick). If she feels better then we know if not no invasive procedure. GI doc was very wishy/washy and could go either way. Don't know if genetic results would push him in a different direction.

So my question is to scope or not to scope...

What is Eosinophils and how does that relate ...

How to get her Immunoglobulin A levels up ...

And lastly, my hubby and his siblings have between them IBS (x2), Fibromyalgia, Acid Reflux, Psoriatic Arthritis

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac-mommy Collaborator
celiac-mommy
Posted

Sorry for the long path to my question...

My 12 year daughter, 7th grade, has had many issues with gluten in the past it started with stomach pain and digestive upset in Kindergarten and 1st grades. Allergist said to treat her like a Celiac and move on but hubby insisted we go to GI and he basically laughed me out the door and said no way and go home (low Immunoglobulin A 58 and high Gliadin Antibodies did not equate to Celiac). Well, went to alternative doc at the time and went off gluten for 2 1/2 years. No more tummy issues. Started Gluten again and seemed to be fine for several years (but mild anxieties and tired all the time). This summer big time sleep issues which lead me back to alternative doc (ped doc no help). That blood work came back low B12 and high Absolute Eosinophils 952. The Eosinophils sent me back to the original allergist. She did blood work which show negative Celiac but low Immunoglobulin A 29 and high Gliadin Antibodies 45. Second set of blood work showed Immunoglobulin A of 30 and Absolute Eosinohpils of 2784. Just got the blood work back for the Genetic testing today and she has one of the genes for Celiac. After taking to GI doc (different one same practice 5 years later) on Friday he will do the scope based on her testing/vague symptoms (did not have genetic results when he saw her). Would leave it up to my husband and me. The ped doc said not to do the scope and just the diet and see if she felt better (12 year old says she feels fine and is not sick). If she feels better then we know if not no invasive procedure. GI doc was very wishy/washy and could go either way. Don't know if genetic results would push him in a different direction.

So my question is to scope or not to scope...

What is Eosinophils and how does that relate ...

How to get her Immunoglobulin A levels up ...

And lastly, my hubby and his siblings have between them IBS (x2), Fibromyalgia, Acid Reflux, Psoriatic Arthritis

This is late, I know, but we had both of our kids scoped and it was an easy, painless procedure-except for the IV ;) What did you decide to do?

ddennis11 Newbie
ddennis11
Posted
  • Author

This is late, I know, but we had both of our kids scoped and it was an easy, painless procedure-except for the IV ;) What did you decide to do?

The GI left it up to us to decided if we want to do it or not. Said it looked like sooner or later she would be having one just a case of should we wait until she is more symptomatic. Still debating. Hubby says no and I am thinking yes. Either way she should be gluten free according to the allergist. My only thing is that if it is active celiac then she should be totally gluten-free. Where as my husband will go under the assumption that a little won't hurt. We did the genetic results back and she does have one whole gene DQ2.5 and then half of it again. Life is never black and white is it??

celiac-mommy Collaborator
celiac-mommy
Posted

My son's biopsy was suspicious, but technically negative. He had such a positive dietary response that we all agreed to treat it as active Celiac. Our dd had been diagnosed 2 years prior, so it was no big deal for us. He's done amazing since!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,713
    • Most Online (within 30 mins)
      7,748
    Kgb
    Newest Member
    Kgb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Inconclusive results

      By Wends · Posted

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.