Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Sites Or Literature To Easily Explain To Family Members?


TPT

Recommended Posts

TPT Explorer

As I get started on the diet and await a diagnoses, I am wondering how my family will deal with this. So far as I explain things to my husband he seems pretty understanding, but I can see him "not getting it" if/when I have to buy separate cookware, ask questions at restaurnants, etc. I think he'll think I'm over the top.

I can see my mother-in-law trying, but totally not getting it AT ALL. She's the type that wiuld fib about cross contamination, not understand that she can't dust her baking pans with flour. Not carefully reading labels. (Just some examples I can see her doing.) To top things off with her,she is half Italian. Every meal she makes involves pasta, bread and bread crumbs.

My family will probably be decent. I also have a brother recently on the diet.

SO... is there EASY ro understand information out there? Something that explains how celiac disease works? How just a little will hurt, even if you're not seeing an immediate reaction? How we could have gone all these years eating gluten and NOW it's just oh-so-bad? Something that explains what we can eat and not eat, and safe cooking practices?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

You could have them come here and ask any questions they need to or just read the posts. If you go to the home page there is info on safe and unsafe ingredients and the disease in general. The NIH also has some good information on their website.

TPT Explorer

Thanks for the suggestion Raven, but I think I'll keep my family away from here for now. :P Though my brother could very well be on here somewhere, I'd otherwise like to keep it private. I can complain freely here. :lol:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,054
    • Most Online (within 30 mins)
      7,748

    SteveWW
    Newest Member
    SteveWW
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.