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norahsmommy

Painful Bm's In 1 Yr Old

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Painful bm's, constipation or lots of crankiness are signs that my daughter has had gluten. She has been having terrible painful bm's every day for about a week now. I can't figure out what is wrong! I stopped all dairy thinking that was it but it hasn't helped. I evaluated my diet and cut out all gluten because she is still nursing and that hasn't helped. She drank a TON of apple juice yesterday and that didn't help either. I have been feeding her liquidy foods and lots of grapes, raisins and apples and that hasn't helped. I can't figure out what else to do. I know she probably got gluten this past friday at MIL's house because they wiped her down with a cloth that they just wiped up pizza crumbs with after lunch. But she was having problems before that too. She was at MILs house last week on Tuesday all day because I worked with my husband that day. She may have gotten gluten then too. I really don't know how long symptoms are supposed to last. It didn't seem like they lasted this long before. Urg. I am rambling, just frustrated because I want to make sure she is healthy and not in pain.

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Do you use gluten-free soap and shampoo in the tub? Babies always get water in their mouth and swallow it in the tub. That was issue for us.

Do you water down her apple juice? Too much apple juice might not be good.

No cheese...right?! Do you keep a food diary?

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The autoimmune reaction in the gut can sustain itself for up to two weeks. So, seeing symptoms for a few days, then her getting glutened again and seeing more days of symptoms, is not all that unusual. She is, though, if she's getting gluten that often, NOT (for medical purposes) on a gluten free diet and is at risk of all the things that come along with being non-compliant to the diet. She needs a safer environment. (I know, this may be WAY harder done than said if you're dealing with family.)


Tiffany aka "Have I Mentioned Chocolate Lately?"

Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy

G.F. - September 2003; C.F. - July 2004

Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me

Bellevue, WA

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Do you use gluten-free soap and shampoo in the tub? Babies always get water in their mouth and swallow it in the tub. That was issue for us.

Do you water down her apple juice? Too much apple juice might not be good.

No cheese...right?! Do you keep a food diary?

no cheese, and I water down her apple juice by half but she hasn't been interested in any drinks from a sippy lately so I gave her 6 oz full strength apple juice yesterday to see if it would get things moving and if she would drink it. She did drink it but it did nothing to make her go easier. I use method baby on her right now, but was using johnsons lavender baby shampoo before this week. I don't use lotion on her at the moment because the ones I have are aveeno with oatmeal.

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Are your raisins gluten free? I've heard that some raisins use wheat flour to keep them from sticking together. Just a thought. You would think that things like prunes and raisins would make a little one go but they did the oppisite with my girls, they could eat a whole bag of prunes and nothing would happen. Hope you get it figured out soon!


Proud breastfeeding, toddlerwearing, part time cosleeping, stay at home mom. Positive for two copies of DQ8, negative celiac panel after 3 month gluten challenge; biopsy showed gastritis, inflammation in the esophagus, and hiatial hernia but no signs of celiac. Possible DH. Gluten free as of 3/11/2011

ODD 3 1/2, positive for DQ8 and DQ6, negative celiac panel after 3 month gluten challenge. Gluten free as of 3/10/2011

YDD 2, no testing. Positive for DQ8 and DQ6. Possible DH. Gluten free as of 3/10/2011

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Are your raisins gluten free? I've heard that some raisins use wheat flour to keep them from sticking together. Just a thought. You would think that things like prunes and raisins would make a little one go but they did the oppisite with my girls, they could eat a whole bag of prunes and nothing would happen. Hope you get it figured out soon!

If they were dusted with wheat flour it would have to be declared on the package. However they still could have cc from production.


Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.

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In case it helps? These are some of the weird/unexpected places we've gotten gluten from.

-chapstick and makeup

-inhaling - and so ingesting - powder from things like drywall and pressed wood (you can check the Material safety data sheet for a product to find out if it's a problem - typically if something is glued on or if it's sticky, it can be a problem))

- plain nuts (often grown, transported, and/or processed with wheat)

- plain dried fruit (processing CC risk)

- any gluten free whole grain or flour (a recent study found that many of these were contaminated with more than 20ppm of gluten because of shared equipment, at any time from field to package),

- oils (We had one bottle of an oil just fine, but the next one we bought had CC. Turned out it was processed on the same line as wheat germ oil. :( )

- soy/legumes (same issue as nuts. Soy is the worst offender, typically)

- anything you are using on your body (since she's breastfeeding, any soap, shampoo, lotion and so on that might get on your skin, or not be washed off completely, she can ingest, yeah?)

- cc of spices

- And one last one we didn't think of for a long time: just eating a lot of processed gluten-free food. Since it's all really low gluten rather than 'zero' gluten, if your little one is consuming a lot recently, like gluten-free crackers or gluten-free bread or gluten-free pasta, she might be getting more than 20ppm a day. Or she could react to less than that, in which case it's even easier to get too much accidentally.


T.H.

Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease

23 years with undiagnosed sulfite sensitivity

25 years with undiagnosed mast cell activation disorder (MCAD) 

 

Daughter: celiac and MCAD positive

Son: gluten intolerant
Father, brother: celiac positive

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In case it helps? These are some of the weird/unexpected places we've gotten gluten from.

-chapstick and makeup

-inhaling - and so ingesting - powder from things like drywall and pressed wood (you can check the Material safety data sheet for a product to find out if it's a problem - typically if something is glued on or if it's sticky, it can be a problem))

- plain nuts (often grown, transported, and/or processed with wheat)

- plain dried fruit (processing CC risk)

- any gluten free whole grain or flour (a recent study found that many of these were contaminated with more than 20ppm of gluten because of shared equipment, at any time from field to package),

- oils (We had one bottle of an oil just fine, but the next one we bought had CC. Turned out it was processed on the same line as wheat germ oil. :( )

- soy/legumes (same issue as nuts. Soy is the worst offender, typically)

- anything you are using on your body (since she's breastfeeding, any soap, shampoo, lotion and so on that might get on your skin, or not be washed off completely, she can ingest, yeah?)

- cc of spices

- And one last one we didn't think of for a long time: just eating a lot of processed gluten-free food. Since it's all really low gluten rather than 'zero' gluten, if your little one is consuming a lot recently, like gluten-free crackers or gluten-free bread or gluten-free pasta, she might be getting more than 20ppm a day. Or she could react to less than that, in which case it's even easier to get too much accidentally.

Thank you for posting this, very helpful for us newbies!


Proud breastfeeding, toddlerwearing, part time cosleeping, stay at home mom. Positive for two copies of DQ8, negative celiac panel after 3 month gluten challenge; biopsy showed gastritis, inflammation in the esophagus, and hiatial hernia but no signs of celiac. Possible DH. Gluten free as of 3/11/2011

ODD 3 1/2, positive for DQ8 and DQ6, negative celiac panel after 3 month gluten challenge. Gluten free as of 3/10/2011

YDD 2, no testing. Positive for DQ8 and DQ6. Possible DH. Gluten free as of 3/10/2011

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