Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Gain Weight Without Dairy And Soy.


buddhakitty

Recommended Posts

buddhakitty Newbie

Hi all,

Let me say I'm new to this whole forum thing b/c I'm kind of a luddite. I was just dx with celiacs yesterday after sm. bowel biopsy came back positive. I've been truly gluten free (to the best of my knowledge) for about a week. Dizziness and bowel issues still remain but the most troubling thing is the sudden weight loss. I'm 5'3" and approx. 110lbs. I'm eating well (high fat, high protein) but not gaining weight! I'm also on digestive enzymes but nothing seems to help. To complicate matters, I have adverse reactions to dairy and soy so I'm trying to avoid those things as well as the gluten. My doctor hasn't offered any help outside of setting me up with a dietician which I can't get in to see for another month. In addition to the enzymes, I'm also pounding vitamins and L-glutamine like there's no tomorrow to heal the leaky gut. I'm worried that I'm withering away and I hate the way I look and feel (I want my buxom butt and chesticles back!)

Please help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Welcome!

It is nice to have an answer for so many problems.

You have been gluten free for a week, not a long time. Try to be patient, you will get better. Depending on the level of damage you have, that will somewhat determine the time it will take to heal. It is different for every person. I'm assuming that your weight loss is from not absorbing the nutrients from your food. When you start to heal you will start to absorb those nutrients again. It is good to stay away from dairy and soy in the beginning.

Did your Dr. check your vitamin and mineral levels? If not you should get that done asap to see where you are deficient. You may also want to look into sublingual vitamins.

missy'smom Collaborator

Hang in there and keep up the good work. I'm 5'1" and well under 100 lbs. I lost alot of weight to diabetes but have been able to gain some back with protein and fats alone. No fruits, starchy veg. sugar, grains, dairy, beans soy etc. for me. It took time and consistancy. Your body is still healing. Give it time. Keep it up. You are doing many things right.

Skylark Collaborator

My super-skinny friend who is almost grain-free and having a tough time gaining weight is eating seeds, nuts, nut butters, lots of olive oil on her salads, and she usually gets wine or a glass of whiskey at the pub. (Lots of calories in alcohol.) I offered to give her my 10 spare pounds, but alas, there is no technology to do so!

jess-gf Explorer

I second nuts and nut butters, healthy oils, avocado would probably be good too. Maybe try cooking with some full-fat coconut milk? yum. Oh I have had this before and it's quite tasty: coconut milk ice cream, no dairy no soy: Open Original Shared Link

buddhakitty Newbie

Thanks to all for the support and understanding! Between my doctors thinking I'm nuts and the family blaming me for bringing this on myself, I'm glad to know that I'm not alone. I have recently taken to eating coconut oil straight from the jar ( yum! ) And I just discovered Coconut Bliss Ice Cream at Whole Foods today. It's really good! I'm going to add olive oil to my diet and see what happens. Oh, and my biopsy report stated "partial villous atrophy." I'm no dr. But that sounds like it wasn't as bad as it could be? I only had GI symptoms for 5-6 months before my Dx. The thing that worried me the most was the sudden drop in weight and muscle mass. I was in tip top shape before this hit me like a ton of bricks:/

cassP Contributor

wow- i just cant relate to the "losing too much weight" posts on this forum :(

all i can share is what keeps me from losing weight- and that's complex carbs & sugars. grains, rice, sugar, etc. all those healthy fats & proteins actually help me lose weight.

altho- i would think that coconut bliss ice cream could help u add weight maybe.

if i were you, i would follow everyone's advice about patience & healing & getting enough vitamins, and i would say add rice to every meal- that's worth another 5-8lbs i would say.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

...

In addition to the enzymes, I'm also pounding vitamins and L-glutamine like there's no tomorrow to heal the leaky gut. I'm worried that I'm withering away and I hate the way I look and feel (I want my buxom butt and chesticles back!)

Please help!

Do make sure all your vitamins and other meds etc are gluten free. Also any coffees, teas or sodas or other stuff that goes in your mouth should all be gluten free. Soy free is easy if you stick to a whole foods diet and avoid processed foods. Unfortunately many of the gluten-free processed foods have soy in them.

Skylark Collaborator

Thanks to all for the support and understanding! Between my doctors thinking I'm nuts and the family blaming me for bringing this on myself, I'm glad to know that I'm not alone. I have recently taken to eating coconut oil straight from the jar ( yum! ) And I just discovered Coconut Bliss Ice Cream at Whole Foods today. It's really good! I'm going to add olive oil to my diet and see what happens. Oh, and my biopsy report stated "partial villous atrophy." I'm no dr. But that sounds like it wasn't as bad as it could be? I only had GI symptoms for 5-6 months before my Dx. The thing that worried me the most was the sudden drop in weight and muscle mass. I was in tip top shape before this hit me like a ton of bricks:/

Blaming you for bringing celiac on yourself? Ugh. That's terrible!

So you're newly diagnosed with partial atrophy? Give it some time. You're right that partial atrophy is not as bad as it can be. Total atrophy is the worst and studies show that total atrophy takes years to heal. Partial atrophy may still take a few months. Stick to the gluten-free diet strictly and don't worry too much. You're doing all you can right now. The weight will probably come back when your intestine heals and you are able to properly absorb food again.

missy'smom Collaborator

wow- i just cant relate to the "losing too much weight" posts on this forum :(

all i can share is what keeps me from losing weight- and that's complex carbs & sugars. grains, rice, sugar, etc. all those healthy fats & proteins actually help me lose weight.

altho- i would think that coconut bliss ice cream could help u add weight maybe.

if i were you, i would follow everyone's advice about patience & healing & getting enough vitamins, and i would say add rice to every meal- that's worth another 5-8lbs i would say.

The reason that the carbs, grains etc. help YOU keep your weight on and fats protein etc. help YOU lose weight is insulin. Insulin is the fat building hormone. Eat lots of carbs, grains, sugar etc. and your body puts out lots of insulin to keep your blood sugar in balance. When most people eat more meat and fats, they tend to eat fewer carbs, plus, eating plenty of meat and fat with a meal slows the rate at which they hit the blood stream. Either way, less insulin released.

I have diabetes and my body only has a limited ability to produce insulin so there's a limit to how much weight I can GAIN, with meat, but I can still. Increasing protein is what the doctor I follow recommends to his thin diabetic patients. I most likely won't make it back up to 100 without injected insulin, although you never know. I'm one of only a very few people on this lowcarb diet who set out to gain and not lose. I'm a fish swimming against the stream. I have a somewhat unique situation going on so it took me 2 years to gain back half of what I lost. I really never thought I would make it this far!

missy'smom Collaborator

I offered to give her my 10 spare pounds, but alas, there is no technology to do so!

LOL! I keep telling people I'm accepting donations!

cassP Contributor

The reason that the carbs, grains etc. help YOU keep your weight on and fats protein etc. help YOU lose weight is insulin. Insulin is the fat building hormone. Eat lots of carbs, grains, sugar etc. and your body puts out lots of insulin to keep your blood sugar in balance. When most people eat more meat and fats, they tend to eat fewer carbs, plus, eating plenty of meat and fat with a meal slows the rate at which they hit the blood stream. Either way, less insulin released.

I have diabetes and my body only has a limited ability to produce insulin so there's a limit to how much weight I can GAIN, with meat, but I can still. Increasing protein is what the doctor I follow recommends to his thin diabetic patients. I most likely won't make it back up to 100 without injected insulin, although you never know. I'm one of only a very few people on this lowcarb diet who set out to gain and not lose. I'm a fish swimming against the stream. I have a somewhat unique situation going on so it took me 2 years to gain back half of what I lost. I really never thought I would make it this far!

i completely agree. i was only sharing what puts the weight on me. i completely agree that everybody is different and requires different diets :)

chasbari Apprentice

I am completely grain,soy, dairy free and have had a difficult time gaining muscle mass. Trying to get enough calories while working out has been a challenge. I thought I was eating a ton of calories when, in fact, I was way short of my daily intake when I finally counted them accurately. I shoot for 4000 calories daily but found I was only taking in 2800 or so. Pretty hard when I have to limit fruit intake and don't tolerate legumes and potatoes because of my RA as well as celiac. I have also taken to coconut oil straight from the jar. I use it on a muffin recipe we found here that consists of eggs, almond flour and honey. I spread the coconut oil on like icing. No one here seems to understand how good this tastes to me. I have been looking to add some fish oil supplementation as well but the good stuff is so darned expensive. Oh, the first several months of recovery are probably the hardest, especially when you go grain free. I know I was constantly starved, lost body fat scary fast and continually over did things because I actually felt better than I ever had for pretty much my whole life. I know now I wasn't eating near enough even though I seemed to be eating everything in sight. Oh, high fat bacon does seem to calm my appetite down a bit as well. Save the bacon grease to use on other foods. Good luck.

buddhakitty Newbie

I am completely grain,soy, dairy free and have had a difficult time gaining muscle mass. Trying to get enough calories while working out has been a challenge. I thought I was eating a ton of calories when, in fact, I was way short of my daily intake when I finally counted them accurately. I shoot for 4000 calories daily but found I was only taking in 2800 or so. Pretty hard when I have to limit fruit intake and don't tolerate legumes and potatoes because of my RA as well as celiac. I have also taken to coconut oil straight from the jar. I use it on a muffin recipe we found here that consists of eggs, almond flour and honey. I spread the coconut oil on like icing. No one here seems to understand how good this tastes to me. I have been looking to add some fish oil supplementation as well but the good stuff is so darned expensive. Oh, the first several months of recovery are probably the hardest, especially when you go grain free. I know I was constantly starved, lost body fat scary fast and continually over did things because I actually felt better than I ever had for pretty much my whole life. I know now I wasn't eating near enough even though I seemed to be eating everything in sight. Oh, high fat bacon does seem to calm my appetite down a bit as well. Save the bacon grease to use on other foods. Good luck.

That's something I was wondering about: Whether or not to resume working out. Don't want to burn calories that I'm not even absorbing but I want to build my muscle back up.

Bacon! Now that's something I haven't had in a while. I've been craving it lately too. Maybe I should fry it in coconut oil ;) Thanks for the tip!

buddhakitty Newbie

Welcome!

It is nice to have an answer for so many problems.

You have been gluten free for a week, not a long time. Try to be patient, you will get better. Depending on the level of damage you have, that will somewhat determine the time it will take to heal. It is different for every person. I'm assuming that your weight loss is from not absorbing the nutrients from your food. When you start to heal you will start to absorb those nutrients again. It is good to stay away from dairy and soy in the beginning.

Did your Dr. check your vitamin and mineral levels? If not you should get that done asap to see where you are deficient. You may also want to look into sublingual vitamins.

I did actually get some vitamin levels checked. Everything was in the low end of the normal range except my vit. d which was DISMAL at 19. A holistically oriented nurse practitioner recommended 10,000 i.u vitamin d3 supplements one a day for a couple of weeks. It helped tremendously with the joint and muscle pain. I now take one every couple of days or so and haven't had any more joint problems. I just began taking sublingual b vits with extra b12. Hopefully that will help with the fatigue and everything else!

missy'smom Collaborator

Bacon! Now that's something I haven't had in a while. I've been craving it lately too.

Bacon. LOL. I actually bought myself a "Powered by Bacon" T-shirt! If you google the instructions for oven baked bacon you can have yourself a nice, convenient stash for snacking on. Just be forewarned it's addictive!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748

    Miyasato
    Newest Member
    Miyasato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.