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How Long Do You Have To Be Off Gluten For It To Mess With Your Blood Test?

waitingtopounce

Number of Blood Tests vs. Positive Diagnosis  

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waitingtopounce Rookie
waitingtopounce
Posted

Negative blood test. This is my second negative. First was after I hadn't been able to eat for weeks. Second was after I was on a gluten free diet for 1.5 weeks and had previously been unable to eat much for weeks, but had a few gluten moments to make me feel like crap, including thanksgiving.

I need an FMLA because I am out of leave. My GI now can't see me until next Wednesday. I would like to just get the ball rolling by having them schedule a colonoscopy and endoscopy NOW so this gets moving quicker, so I can take less time off from work in the long run. I would also like to know if eating just little bits of gluten wouldn't be enough to affect my blood results but would be enough to make me feel like I'm about to keel over and die.

Let me know if you have had similar experiences.

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Chiana Apprentice
Chiana
Posted

I am fiercely interested in the result of this poll, but am unable to vote myself, as I have never had a test.

ravenwoodglass Mentor
ravenwoodglass
Posted

I choose the last option although I didn't have the endo since the challenge had such severely negative effects, including a severe GI bleed, that my doctor chose not to do the endo. He diagnosed me based on my response to the diet and the very severe effect of the 3 day challenge he had me do after being gluten free for about 6 weeks.

Chiana Apprentice
Chiana
Posted

I just read on the Celiac Disease Foundation website that they recommend that you be on a daily diet of wheat consumption for a month before testing.

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waitingtopounce Rookie
waitingtopounce
Posted
  • Author
they recommend that you be on a daily diet of wheat consumption for a month before testing.

Thank you Chiana! See I thought so... I am going to print that off and bring it to my doc... it only make sense that they did it wrong. I really hope more people answer the poll... I think it's really interesting. I guess it would have been better to put it on the other discussion site? The post-diagnosis one?

mushroom Proficient
mushroom
Posted

For trustable results it is recommended that you eat the equivalent of 3-4 slices of bread a day for 6-8 weeks and do not stop eating gluten until after all testing, includilng endoscopy and biopsy, is completed. Even then it is possible for all testing to be negative and for you to still be gluten intolerant.

momof4gf Rookie
momof4gf
Posted

For trustable results it is recommended that you eat the equivalent of 3-4 slices of bread a day for 6-8 weeks and do not stop eating gluten until after all testing, includilng endoscopy and biopsy, is completed. Even then it is possible for all testing to be negative and for you to still be gluten intolerant.

Do you know the recommended time for a child to be on a gluten challenge that has been gluten free for 3 months?

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mushroom Proficient
mushroom
Posted

See the info here:

https://www.celiac.com/articles/12/1/How-long-must-gluten-be-taken-for-the-serological-tests-to-be-meaningful/Page1.html

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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