Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Yr Old Turns Into The Incredible Hulk Help!


sassiskull

Recommended Posts

sassiskull Rookie

My daughter was diagnosed at 2.5 yrs. This was just about a year ago. It is so hard to tell when she has had gluten because she doesnt verbally tell us. I think this is because maybe she is just used to her belly hurting? I do notice things though esp in her behavior. For example she can change from my sweet cuddley daughter to the incredible hulk so fast! The behavior can last for anywhere from 2 days to a week and it is accompanied with constipation & sometimes (not often) vomiting. So my guess is she has gotten gluten. Ive called her GI and they said everyone reacts diff but she is a toddler and toddlers have moods. A friend told me she may have ADHD, but I think this is how she reacts to gluten. Does anyone else's child act out like this? Im in crack down mode at the house, going through things I wouldnt have guessed to find the hidden source.. Bath & Body Works?!?! Also Im wondering if my makeup could be making her sick? She is into the lipsticks and lotions and she has been sneaking into these things recently, we havent changed anything in diet so I am really curious as to what cosmetics, nail polish, lotions, baby wash, shampoos contain gluten. Im thinking I should change to bare Minerals or something. My poor girl :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Katie B Apprentice

Oh dear,

Glad you're trying to get to the bottom of it. I can say from personal experience that I can turn into the Hulk when I'm feeling sick and constipated and I've often thought how difficult it would be to not be able to express this to the ones I love. It really is a terrible feeling!

You might also wish to look into fructose malabsorption, lactose intolerance, and other intolerances if she doesn't feel better with an entirely gluten-free diet.

Hope this helps!

Hang in there!

srall Contributor

My daughter is 7 1/2 and not diagnosed celiac, but we (pedi and I) are calling her gluten/dairy/corn sensitive. I started pulling offending from her foods from her diet mid October so this is new to her. I have been gluten/dairy/corn free since this past spring. Looking back I know I've probably had problems for the past decade and my daughter certainly has had problems since 3 or 4 years old if not earlier.

I thought behavior wise I had a defective kid. Other kids were so calm and able to sit still. My daughter was so wiggly and crazy, never slept, had out of control tantrums. We actually got kicked out of Target once, and you cannot tell me that Target never sees tantrums.

We are still trying to smooth out behaviors and I think she's still very spirited, but now I can tell when it's food. I'm like the above poster in that I'm also intolerant to foods and know they can make you CRAZY and enraged.

I also know that my daughter thinks stomach aches are normal. I've also noticed now she doesn't really recognize the normal urge to just go poop. I think this is from years of feeling gassy. Now when she complains about her gassy stomach I have to tell her to just go to the bathroom to make herself feel better.

As your daughter gets older she'll hopefully have more words to explain what's going on with her. Last Friday night my husband let my daughter eat cotton candy (aka corn syrup delight) and her behavior was insane. She kept asking me why she felt so crazy and said she felt out of control.

So far in my house I haven't switched beauty products and we seem to be doing okay. But I would definitely do a switch if I thought we were being effected. Good luck to you. I'm willing to bet your daughter's behavior is mostly food, just based on what I've seen with my daughter and even myself.

cassP Contributor

agreed- dairy & corn could be messing her up. and of course we all here about celiac kids, and autistic kids avoiding Casein (in dairy) just the same as gluten.

and i dont know about Bare Minerals.. but that Afterglow company i think makes powders like bare minerals- and they're Gluten Free.. and then Joelle makes all the lip stuff gluten free.

good luck... and PART of it may be normal child moods... my 2 yr old neice is starting up with the moods a little

salexander421 Enthusiast

My daughter has not been diagnosed yet but she is definitely gluten intolerant. She is almost 3 and I can totally tell a difference in her moods when she's had gluten. She was irritable, extra whiny, would fly off the handle about the smallest things, clingy, and would not sit still for a second before we went gluten free. After being gluten free she was a little angel. We are now doing a gluten challenge and she is back to the irritable etc. behavior. This whole experience has really made me wonder how many children are misdiagnosed with ADHD when they're really just celiac/gluten intolerant.

BeHappy Apprentice

My daughter (now 3) was a monster until she went gluten free. She was SUCH a hard kid. She would throw crazy tantrums, run around the house like a maniac, jump from crazy heights and laugh when she fell down, never ever slept, would climb up on the counters with a chair and step stool on top of it. We used to joke that she's stronger than my 7 year old. She also had tremendous anxiety. She got kicked out of school because of it too. She's a changed person since she's gone gluten-free. she is SO much calmer. she's happy, and she uses her brain now before doing something dangerous. She started a new school and is doing beautifully (aside from her accidents but they're willing to work with her) The difference in behavior is unimaginable.

SGWhiskers Collaborator

Also Im wondering if my makeup could be making her sick? She is into the lipsticks and lotions and she has been sneaking into these things recently, we havent changed anything in diet so I am really curious as to what cosmetics, nail polish, lotions, baby wash, shampoos contain gluten. Im thinking I should change to bare Minerals or something. My poor girl :(

I hope you find what is making your little girl sick. Almost all nail polish contains gluten. Look for Tocepherol Acetate/Vitamin E in your lotions and other liquids. Sometimes it is derived from wheat, sometimes soy, it could be from other sources. You will have to call the manufacturer to learn the source. Someone has posted a list of cosmetic industry names for wheat, rye, barley, oats in the ingredients of blushes, shadows, etc. I'll see if I can search for it and include it later. If you have Aveeno products, those are not gluten free due to the oats. I think some lipgloss/chapsticks have gluten. I've switched to Burt's bees. Not all of their products are gluten free, but they are well labeled and their tocepherol acetate/vitamin E is gluten free. I also use Everyday Minerals (ordered online). Anything from Unilever will clearly label their wheat, rye, barley, oats in the ingredients. They make Suave and Dove. Cover Girl has the same policy. Not all their products are gluten free, but they will label gluten in plain english.

People will state that since you need to ingest gluten, topical products are safe. I can state from experience, in the early days of gluten free, my blush made me sick from just a few hours of wearing it. I think it was breathing it in while putting it on for a special occassion. I've also been made sick from kissing my little nieces even though their mom's washed their faces. You may find you need to switch your products just so your daughter does not pick up gluten from snuggling you.

Also, look into craft materials. Playdough, fingerpaint, paper mache are all major sources of gluten. There are more, but those are the worst and most common. Most Crayola products are safe. Do a search in the kids forum.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.