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How Not To Make My Dh Flare Up

Lincoln

By Lincoln
in Dermatitis Herpetiformis

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Lincoln Rookie
Lincoln
Posted

Hey all,

I have relatively mild DH around my elbows and knees, at first I was on antibiotics and had silver strips all over it (this did next to nothing), anyway I have remained gluten free for over a week now without being cross contaminated and the sores were clearing up but they have now flared up again. I was just wondering if anyone knows whether gluten containing soaps and bathroom products could be causing this? It really is annoying as hell and looks awful. Any help is appreciated.

Cheers in advance,

Lincoln

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tarnalberry Community Regular
tarnalberry
Posted

DH can take quite a while to clear from your system, even while gluten free. Do make sure that everything is gluten-free and that you aren't getting any cross contamination. For those with DH, topical products that are gluten-free are really the best bet. Also, for the time being, eliminate sources of iodine from your diet, as iodine is required in the reaction that leaves IgA deposits in the skin which cause DH.

Lincoln Rookie
Lincoln
Posted
  • Author

Thank you, very informative (especially about the iodine) but will gluten containing bathroom/skin products make the DH any worse?

mushroom Proficient
mushroom
Posted

Even those of us without DH tend to avoid personal care products that contain wheat. I would think with DH it would be even more important.

Lincoln Rookie
Lincoln
Posted
  • Author

That's pretty much what I thought, DH really sucks though lol

cassP Contributor
cassP
Posted

Hey all,

I have relatively mild DH around my elbows and knees, at first I was on antibiotics and had silver strips all over it (this did next to nothing), anyway I have remained gluten free for over a week now without being cross contaminated and the sores were clearing up but they have now flared up again. I was just wondering if anyone knows whether gluten containing soaps and bathroom products could be causing this? It really is annoying as hell and looks awful. Any help is appreciated.

Cheers in advance,

Lincoln

hey- mine took about 4 months to go away even after going gluten free... i also used a topical ionized silver ointment from Whole Foods. i thought i'd try it (because others talk about using Dapsone- a powerful antibiotic)-> and silver is a natural antibiotic- and also antibiotics have an antiinflammatory effect as well.

it really stopped the itch in its tracks.

i DID actually notice itching there when i had some Nut Thins (at <20ppm) and also over thanksgiving with all the gluten-free corn bread i had (dont know if it was cause some of us have similar reactions to corn, or if it had some gluten at <20ppm).

i also had a tiny bit of itching with a really hot shower a couple of times.

i do use a body lotion that i think may have wheat in it- but i never use it where i had DH.

good luck!

CrazyforCandles Rookie
CrazyforCandles
Posted

I had no idea that personal care products had Wheat in them! Geez! Anyone have a list of the "no-no's" ? My DH covers me from neck to toe... getting better going gluten free this last week but EVERY time I eat salt- I start itching :(

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ChemistMama Contributor
ChemistMama
Posted

I had no idea that personal care products had Wheat in them! Geez! Anyone have a list of the "no-no's" ? My DH covers me from neck to toe... getting better going gluten free this last week but EVERY time I eat salt- I start itching :(

Are you eating iodized salt? When you first go gluten-free, to keep the DH from getting worse you need to stay away from iodine and NSAIDS(like advil and aleve) for awhile until all the the gluten gets out of your system, maybe a couple months. Iodine is found in vitamins, seaweed, and shellfish, as well as iodized salt. Once you're gluten-free for awhile iodine and NSAIDS won't be a problem and you can have them again.

As for personal care products, the gluten can't get into your system through your skin (seems logical, but a lot of people on these boards argue to the contrary), but if you then lick your fingers after eating or get some of your hair in your mouth then you're ingesting the gluten and that is bad. Watch for oatmeal too, no aveeno products anymore!

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      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
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