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Are My Symptoms Test-Worthy?

churchlady

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churchlady Newbie
churchlady
Posted

I know you get a zillion of these questions, but my doctor had been NO help to me, so I

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shopgirl Contributor
shopgirl
Posted

but was told immediately after the endo that no celiac was found (could dr. know immediately?).

No, Celiac can't be seen with the naked eye. It's seen in a lab under a microscope.

Silly doctors.

Dixiebell Contributor
Dixiebell
Posted

Welcome to the forum churchlady!

I think you should have the celiac blood tests done and also testing for vitamin/mineral levels while you are there. There are several people on this board who were/are overweight. You do not have to be skinny to have celiac.

celiac tests to ask your Dr. for:

Total iga serum

Tissue Transglutamas Iga & Igg

Antigliadin Iga & Igg

Endomysial Antibodies.

txplowgirl Enthusiast
txplowgirl
Posted

Hi Churchlady, Welcome to the forums.

Your symptoms sound like you have a gluten intolerance if not Celiac itself, the problem though is sometimes the tests can be negative and you still show symptoms. So, after all your testing is done go gluten free. That will be the best test.

As for overweight, I am 5 ft 2 and when I found myself going gluten free I was 205. None of the dr's believed that gluten was the cause of all my problems. I had weighed that since I was 14 yrs old. I am now 155! Yea!

But, that could also be becaue I am what we on the forum here call super sensitive. I react to gluten free foods as well as shared lines, etc. So I eat just plain meats, some veggies, brown rice, some fruits and nuts. I found I have several other food intolerances as well. It can be done and hang in there.

churchlady Newbie
churchlady
Posted
  • Author

Thanks very much for your replies. I will see if I can convince my small town Dr. to do those tests on me. The town's surgeon actually laughed at me when I suggested celiac's, he's the one who did the endo on me, and it was from him that I got my negative 'result'.

I guess I'll continue to eat gluten till I get the tests, but I'm awfully tempted to do without it again to see if the symptoms subside once more. One thing I've noticed in the last year or so: I cannot STAND the smell of whole wheat bread. The bread aisle smell almost literally makes me sick. Anyone else notice that?

sa1937 Community Regular
sa1937
Posted

One thing I've noticed in the last year or so: I cannot STAND the smell of whole wheat bread. The bread aisle smell almost literally makes me sick. Anyone else notice that?

There is a local store I shop at that also has an in-house bakery right next to dairy and I hate the smells that waft from it. I can't say that it almost makes me sick, but I do find those smells to be offensive.

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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