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Glutened Again

GFreeMO

By GFreeMO
in Coping with Celiac Disease

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GFreeMO Proficient
GFreeMO
Posted

I pretty much eat the same foods over and over with a few exceptions. I recently added a few things to my diet that I have not had in 6 months or more. Has anyone been glutened by any of these items? I am at a loss as to what got me and which I should throw out.

Plain Organic coffee with coffeemate creamer I bought a new coffeemaker as well.

Edy's French Vanilla Ice Cream

Hershey's Kisses

Dairy is not a problem as I drink milk and eat cheese etc.

Lays Stax

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GFreeMO Proficient
GFreeMO
Posted
  • Author

I just read the other 2 posts from today about the Kisses. I suspect that those are the culprit. Into the trash they go. You know, this is not the first time that Hershey's has made me sick. Back to Enjoy Life Chocolate bars at least they are made in a dedicated factory on dedicated lines.

aedixon Newbie
aedixon
Posted

If you can handle dairy, stick with regular 1/2 and 1/2 or milk for your coffee.

I run from coffee creamer and Hershey's chocolate. From everything I've read, I think they both are risky.

And it never seems to matter if they're marked gluten-free or not, I ALWAYS have issues after eating potato chips. IDK if it's a grease/fat thing or what, but my innerds just can't handle them.

Judy3 Contributor
Judy3
Posted

I had a date tonight, first meeting of a very nice man... We went to Perkins where I had previewed the menu and found something that looked to be gluten free. Swiss and mushroom chicken on a bed of herbed rice with two sides.. I picked two veggies. Ok we're in business right? WRONG.

My dinner came out with a big ol roll on top of my asparagus so I asked the waitress for another small plate so I could remove the asparagus from my plate. (I had told her about the gluten thing before I ordered and she assured me there wasn't any in this dish haha) She was upset that I wasted the asparagus.. Excuse me? Secondly, I'm talking with my new friend and not really paying attention to my 'herbed rice' and he noticed (he has a friend with Celiac) that what I was eating wasn't just rice, there was orzo pasta in it... Grrrrrrrrr

This is my first time being glutened and I feel like crap. I feel like I have the flu and it's only been an hour since we were at the restaurant. So much for a nice first date huh? But he was very good about it and didn't bat an eye and even asked me if I'd like to see him again so it wasn't all bad... he is a nice guy! Twinkle in her eye as she sits close to the bathroom!

He said next time we'll go to the Mexican place I love...

hawkgirl98 Newbie
hawkgirl98
Posted

I pretty much eat the same foods over and over with a few exceptions. I recently added a few things to my diet that I have not had in 6 months or more. Has anyone been glutened by any of these items? I am at a loss as to what got me and which I should throw out.

Plain Organic coffee with coffeemate creamer I bought a new coffeemaker as well.

Edy's French Vanilla Ice Cream

Hershey's Kisses

Dairy is not a problem as I drink milk and eat cheese etc.

Lays Stax

I have never had a problem with Hershey's kisses - eat them all the time. But I do get sick from Lay's Stax, so I think that could be the culprit.

starrytrekchic Apprentice
starrytrekchic
Posted

Everything I've read (and the coffeemate reps) say that coffeemate is gluten free, but I got sick off their Honey Vanilla Creme twice. Haven't had a problem with their sugar free versions & I'm too scared to try their sugary ones again. I don't think anyone else has a problem with them though.

GFreeMO Proficient
GFreeMO
Posted
  • Author

Sometimes it's a crap shoot as to what glutened us.

Today I had real cream with my coffee.

Going to skip the Stax

Threw the ice cream and kisses out.

I def. don't need the candy and I am getting a new ice cream maker for Christmas so problem solved. It just gets annoying feeling bad and not knowing exactly what zapped us.

Judy3, I'm sorry you got sick on your date. Good thing that you were not going to a movie or something after! He sounds like a keeper since he was so understanding. Hope you feel better soon!

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kayo Explorer
kayo
Posted

Maybe it's the soy in these products?

GFinDC Veteran
GFinDC
Posted

Maybe it's the soy in these products?

That's what I was thinking too, soy. Coffee Mate has soy in it. I am not sure about the Hershey's Kisses, but most chocolate has soy in it. The Coffee Mate site says it is gluten free.

GFreeMO Proficient
GFreeMO
Posted
  • Author

hmmm, maybe it is the soy. I'll have to eliminate soy and see if I feel better. Thanks everyone for your help!

Does soy tend to give people gluten type intestinal reactions?

eatmeat4good Enthusiast
eatmeat4good
Posted

hmmm, maybe it is the soy. I'll have to eliminate soy and see if I feel better. Thanks everyone for your help!

Does soy tend to give people gluten type intestinal reactions?

Yes, for me it does. I am still healing (3 months) and the only thing I kept using was coffee mate. I love the stuff. But after feeling so sick....I realized it is the soy. Every single time. I now use half n half or real cream. I think that solved the problem...until I start getting sick from the dairy! Good luck. I am right there with you on this..learning what makes me ill.

GFinDC Veteran
GFinDC
Posted

Yes, for me it does. I am still healing (3 months) and the only thing I kept using was coffee mate. I love the stuff. But after feeling so sick....I realized it is the soy. Every single time. I now use half n half or real cream. I think that solved the problem...until I start getting sick from the dairy! Good luck. I am right there with you on this..learning what makes me ill.

Soy can cause GI symptoms, along with a whole bunch of other possible symptoms too. Different people can have different reactions to it.

kayo Explorer
kayo
Posted
Does soy tend to give people gluten type intestinal reactions?

Me too. In fact my reaction to soy is stronger and worse than my reaction to gluten. I also tend to puff up like a puffer fish.

txplowgirl Enthusiast
txplowgirl
Posted

Not only does soy give me a little bit of gi reactions but I get depression and anxiety worse.

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    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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