Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Christmas Day, Everone Brought Gluten!


norahsmommy

Recommended Posts

norahsmommy Enthusiast

I knew people were going to bring some gluten stuff. Its a given with all the holiday baking. My house is totally gluten free because I kept contaminating my daughter's food. I though, well I will just have to clean really well after they leave. Make sure the counters are really scrubbed down. Well we have a tiny house. There were 11 people and EVER single person brought a gluten item. Cookies, meatballs with bisquick, cheesy potatoes with either flour or bread crumbs, crackers, rolls, pecan pie. It was all over. They ate at my dinning table, on the couches in the living room, on the coffee table, standing in the middle of a room. They ALL got crumbs everywhere. My carpet, the coffee table, the couches the kitchen floor. My daughter was crawling all over the place and I was holding her alot when I noticed all the crumbs. They kept saying "put her down you'll spoil her" and they would LICK their fingers and then pick her up and touch her hands and face. My mom was in the fridge and saw our 6 dollar loaf of Udi's bread and nearly died of shock. She lectured me on the expense and said she would never do that. Well we dont' eat bread every day and my daughter does deserve to eat bread now and then! My MIL stuffed our fridge with uncovered pies and there are crumbs all over the fridge. I feel like my house is a war zone right now! Every surface has the potential to make my daughter sick. URG! I am trying to be accommodating, nice, respectful but I swear I can't tolerate gluten in my house! Maybe if they were all really careful and not slobs! Well that last part was a little rude. I know things dribble or crumb everywhere. Its just so hard to make sure its all cleaned up!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

It's your house so you can set the rules for noone to bring in gluten. Maybe next time you could just do a collection of money and do all the shopping/preparing yourself (maybe family would be willing to come over and help) that way you know she is safe.

Jestgar Rising Star

Ghastly isn't it? It's amazing ho much that stuff has invaded our food. Sorry about all the cleaning you have to do now. :(

norahsmommy Enthusiast

Ghastly isn't it? It's amazing ho much that stuff has invaded our food. Sorry about all the cleaning you have to do now. :(

I didn't have a good time at all. I watched the kids open gifts from family and that was nice, but then I started noticing all the crumbs and I was miserable.

norahsmommy Enthusiast

It's your house so you can set the rules for noone to bring in gluten. Maybe next time you could just do a collection of money and do all the shopping/preparing yourself (maybe family would be willing to come over and help) that way you know she is safe.

I know but I guess I am too nice. They all already think I am nuts. I just didn't want them to think badly of me I guess. Sad I know.

kareng Grand Master

I just say not to bring anything. That leaves me to do it all but it's easier. You will have to be forceful with your side of the family. Your hub must deal with his side, particularly his mom.

It will be harder next year. She will be able to grab food or accept it from others but not old enough to understand why they are eating stuff she can't have.

kareng Grand Master

I know but I guess I am too nice. They all already think I am nuts. I just didn't want them to think badly of me I guess. Sad I know.

We were typing at the same time so I didn't see this.

You have to do what you need to do to keep your child safe. If they were setting lit cigarettes and medications out where your child could get them, is that Ok? No, you or your hub would be all over it. Your nuts, accept it! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



norahsmommy Enthusiast

We were typing at the same time so I didn't see this.

You have to do what you need to do to keep your child safe. If they were setting lit cigarettes and medications out where your child could get them, is that Ok? No, you or your hub would be all over it. Your nuts, accept it! :)

thanks =) I know I am nuts. My dh thinks I am great but at the same time thinks I am OCD about this. I try so hard to make sure my daughter doesn't get gluten but then in the back of my mind I wonder, does she REALLY have a problem? Maybe I am going overboard. Then she gets gluten and she is miserable and I get fresh evidence that she can't have it. She isn't diagnosed yet, she is gluten free and I can't bring myself to give her gluten 3 times a day for something like 2 months for tests to be accurate. I think thats why family gives me such a hard time. She doesn't have paperwork saying she can't have it so it must be me overreacting.

Jestgar Rising Star

I know but I guess I am too nice. They all already think I am nuts. I just didn't want them to think badly of me I guess. Sad I know.

It will get easier for you to get pushy. :) Over time, as you see how well your daughter is when she's eating properly, and how sick she gets when she isn't, you'll stop caring what people think and just tell them what they are going to do. It's all a process.

Mizzo Enthusiast

That is the reason I refused to have Thanksgiving or Christmas at my house this year. I was able to pack a gluten-free meal and snacks for my dd and not have to worry about it. I if I demanded no gluten they wouldn't of come anyway so it was no gluten food or have it at your house. They wanted gluten so they hosted it worked out fine.

momtok&m Explorer

I just say not to bring anything. That leaves me to do it all but it's easier. You will have to be forceful with your side of the family. Your hub must deal with his side, particularly his mom.

It will be harder next year. She will be able to grab food or accept it from others but not old enough to understand why they are eating stuff she can't have.

My 23 month old has been gluten free for over a year now, well longer than that but that's when our doc finally said No Gluten! Anyway, she has never been upset over not getting a piece of cake, a cookie, mac & cheese, etc. that her cousins have at their grandmas house. I try to take a little something that's a good substitute but occasionally (well, okay, often) I forget and it doesn't phase her. We make sure to tell all of the other children to never give her food and we always brush crumbs off of the table. We also try not to make huge deal out of anything, we just simply tell her "I'm sorry, you can't have that, it has gluten in it."

For holidays at our house I always cook the main dish and we have an email list that circulates where everyone writes down what they are bringing. I'll assign certain dishes to the more understanding people so I'm sure there is no gluten. Then, I make a gluten-free version of some of the other sides. I try to tell everyone not to worry about bringing crackers because I have plenty-that way I know they're all rice or nut. I also bake the pies so I can control the gluten and gluten-free versions. It gets easy over time, believe me! Even at the houses that aren't gluten-free :)

Wolicki Enthusiast

thanks =) I know I am nuts. My dh thinks I am great but at the same time thinks I am OCD about this. I try so hard to make sure my daughter doesn't get gluten but then in the back of my mind I wonder, does she REALLY have a problem? Maybe I am going overboard. Then she gets gluten and she is miserable and I get fresh evidence that she can't have it. She isn't diagnosed yet, she is gluten free and I can't bring myself to give her gluten 3 times a day for something like 2 months for tests to be accurate. I think thats why family gives me such a hard time. She doesn't have paperwork saying she can't have it so it must be me overreacting.

The LIE to them and tell them all that she has been officially diagnosed, so that they will take it seriously. I usually do not recommend lying to loved ones, but your child's health is worth it. Some people just don't get it. At Thanksgiving, all my inlaws kept dipping crackers into this lucious cheese dip, even after I explained cc. They did it again at Christmas. So, now we bring our own things, keep them covered and don't touch the rest. Really, LIE to them!

dilettantesteph Collaborator

It sounds like a nightmare. I'm sorry that you had to go through this, and I hope that you got your place cleaned up adequately. You are going to have to put your foot down for the sake of your child. Relatives will be a good place to get some practice. You will have a more difficult time with the schools. You will have to get very good at advocating for your child.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    2. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    4. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    5. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,291
    • Most Online (within 30 mins)
      7,748

    DottieLyn
    Newest Member
    DottieLyn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.