Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Saw My (Reg) Doc Today


okieinalaska

Recommended Posts

okieinalaska Apprentice

Saw my regular doctor today to talk about some tests I wanted ran and also about celiac in general. A couple of weeks ago the nurse told me over the phone that the blood test was positive and I was to see the gastroenterologist and that was all I got. Thank goodness for this forum!

Now I love my doc so I can't be too upset especially because today he was very supportive and agreed to run some additional blood work I wanted. (I can't get in for endoscopy till end of January). They are checking my vitamin levels and my thyroid.

We are military and go to Elmendorf Airforce base hospital btw.

After I was done I ran off to the commissary and found a few more gluten free items than I had found the last time I was there. They had bisquick gluten-free for under $4! It's $9.99 everywhere else. And they had betty crocker gluten-free items and quite a few Bob's red mill flours and mixes.

I also bought two kinds of new gluten-free pasta, anyone familiar with Sam Mills Pasta D'oro? I got a bag for only $1.49 which makes me a little skeptical as to how it tastes but it seemed to have good reviews. Also bought bionaturae elbows, it was more expensive, I think about $4 per bag. This is all excellent news because I Amazon won't ship any of the gluten-free items to Alaska. I don't know if it's the time of year or the shipping costs or what. But they did ship a breadmachine for free to me so it doesn't make sense, LOL!

I had chili for dinner and made the bob's red mill cornbread mix to go with it. It wasn't bad. I guess the test will be how it tastes in tomorrow's lunch.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

(I can't get in for endoscopy till end of January). They are checking my vitamin levels and my thyroid.

Great to hear that things went well with your doctor. Please be aware that if you are going for an endo at the end of January you need to keep eating gluten until then. If the endo is not for diagnosis of celiac then you can go ahead and start the diet but the diet will cause a false negative on celiac testing.

sa1937 Community Regular

Yes, I'm familiar with Sam Mills Pasta D'oro...and it's good! I'm able to get it here for $1.98 for 16 oz., which is a much better price than any other pastas I've seen.

Do you have a Wal-Mart near you? Ours now carry Heartland Pasta (also good) for $1.98 for 12 oz. and comes in three different shapes, including spaghetti.

okieinalaska Apprentice

Great to hear that things went well with your doctor. Please be aware that if you are going for an endo at the end of January you need to keep eating gluten until then. If the endo is not for diagnosis of celiac then you can go ahead and start the diet but the diet will cause a false negative on celiac testing.

Thank you, yes I am aware I need to keep eating gluten and I am. But in the mean time I am looking for substitutes and gluten-free items that I like so that afterwards I am prepared. And it's also easier on my pocket book to buy a few things here and there than all at once. : ) (new cutting board, new colendar etc)

Roda Rising Star

Sam's Mill is the only gluten free pasta my family and I like and will eat. It's a good price too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - MichaelDG posted a topic in Board/Forum Technical Help
      0

      celiac.com support

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • MichaelDG
      How do I contact someone at celiac.com concerning the cessation of my weekly e-newsletter? I had been receiving it regularly for years. When I tried to sign-up on the website, my email was not accepted. I tried again with a new email address and that was rejected as well. Thank you in advance!
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.