Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Med Help


behappy123

Recommended Posts

behappy123 Newbie

Omg, I just realized, what if my synthroid and exjade have gluten in them?

Does anyone have any experience with Thryoid meds? I don't know what's in mine....

I'm still puffy and feeling gross. Time to live off nothing. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

there is a good site called www.glutenfreedrugs.com that is put up by a pharmacist who will list what has been verified as gluten free

I checked your two, and this is what was listed:

Synthroid (all strengths)-can no longer guarantee gluten-free status

I could not find exjade, but that may mean it's not gluten-free, or that it hasn't been looked at yet by this pharmacist. So it sounds like it may be be a good thing to check your meds, yeah. :-(

If nothing else, hopefully the site may list some thyroid meds that ARE gluten free.

Omg, I just realized, what if my synthroid and exjade have gluten in them?

Does anyone have any experience with Thryoid meds? I don't know what's in mine....

I'm still puffy and feeling gross. Time to live off nothing. :(

ravenwoodglass Mentor

Look on your script monograph or the bottle to see who the maker is. Then do a search with the company name and the words 'contact info'. That will often bring up a number to call the maker. Sometimes they do have to get back to you as the customer service rep will have to contact the lab for the answer. Also do have your pharmecy note that you need gluten-free meds on your records and remind them when you get scripts filled that they need to call. Note that not all pharmaceys are willing to take the time to do this. If yours won't check ask for the maker before they fill the script so you can call yourself. Once they give you that bottle of pills they can't be returned.

SaraKat Contributor

My endocrinologist told me Synthroid is gluten-free. I have been on it for a while and have no issues.

Wolicki Enthusiast

I was told Synthroid cannot be guaranteed gluten free because of the suppliers. I take Levoxyl with no issues. Dont know about the other one, sorry.

compucajun Rookie

I take a lot of meds, and Walgreen's would not help me figure out which ones were gluten-free. I found a wonderful druggist at a small pharmacy nearby that checks all of my prescriptions. May be you could find a new druggist who could help you?

Luddie Newbie

Omg, I just realized, what if my synthroid and exjade have gluten in them?

Does anyone have any experience with Thryoid meds? I don't know what's in mine....

I'm still puffy and feeling gross. Time to live off nothing. :(

I, too, wonder about my generic L thyroxine since I was doing fine until last May or June when I started experiencing lots of pains all over my body. The pharmacy who fills my rx said they had not changed suppliers and gave me the name. I phoned them and they claimed their products are gluten free...but I've been reading on some of these postings that there may be teeny amounts and I may be one of those "lucky" ones who reacts to "teeny" amounts...I'm still having trouble and that thyroid medicine is still suspect. So I thought, well the "Brand Name" Synthroid surely would be the gold standard for purity. Not so as I found out they don't guarantee it is gluten-free anymore. It's hard to follow the path of all the fillers and coatings that are used in drugs. Think back to when the dog food scare happened. You just never know where the ingredients are coming from. I'm thinking about asking to switch to Armour thyroid! <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cap6 Enthusiast

Our local Walgreens (so california) was not very helpful but while on vacation found that one in Oregon was extremely helpful. Think that it depends on the pharmacist.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SusanJ replied to Jillian83's topic in Coping with Celiac Disease
      5

      Celiac and dermatitis herpetiformis has taken Me from Me

    2. - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

    4. - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

    5. - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,981
    • Most Online (within 30 mins)
      7,748

    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.