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Hello, I Have Celiac Disease. Can I Play?

bridgeofsighs

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bridgeofsighs Apprentice
bridgeofsighs
Posted

Hi everyone! I'm a 26 year old male from the Columbus, Ohio area.

I've been lurking around on this forum for a few months now, but never felt like i should get too involved with posting until i was certain that i had a problem with gluten. I knew that when i stumbled on this website and started reading about Celiac's disease, that i had a good lead on possible answers to why i was suffering from a slew of psychosomatic symptoms (depression, anxiety, ADHD, excessive mood changes, brain fog, fatigue/lack of energy, mild to severe abdominal discomfort and irregular bowel movements) that were negatively affecting my quality of life. Upon learning of Celiac and/or gluten intolerance, i decided it couldn't hurt to cut it out of my diet (along with dairy) for a few days just to see what the result would be. Well, to my surprise, after just a couple of days, i started to notice a drastic improvement. After a week or two, i got a taste of what it felt like to feel normal again. Amazing! From that point i was pretty certain that i had a problem with gluten, but needed to know for sure if it was Celiac or just a gluten intolerance. So i set up an appointment with my doctor in hopes to get tested for Celiac disease. He ordered me up some blood tests, virtually no questions asked. Anyways, to cut to the chase after all that rambling, the blood test results came back positive for Celiac Disease. Not exactly a comforting thing to hear, but at least i have the answer and hopefully now i can get on the right track to a healthier and happier tomorrow.

I look forward to becoming a regular participant of this forum and continuing to learn all i can about this disease.

All the best,

Derek

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kareng Grand Master
kareng
Posted

Welcome, Freshmeat Derek!

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the family. I am glad you got such good results so quickly. Sometimes there can be some ups and downs at first but we are here to help in any way we can.

Soapmommy Newbie
Soapmommy
Posted

Hello, my 13yo son has adhd and down syndrome. I became concerned with gluten issues because of concerns on how they were negatively effecting him. The food was easy for me but finding gluten free soaps lotions, and other bath products was a hunt for the needle in a hay stack, so I started making my own products for him, which turn in to me starting my own natural bath n body company. His skin is so much better but I am confident with the levels of previously untrace gluten from skin care products. Now that he is getting older i have to do more negotiation on the food but I have more wiggle room because I know for a fact that he get no gluten for unwanted sources.

Hi everyone! I'm a 26 year old male from the Columbus, Ohio area.

I've been lurking around on this forum for a few months now, but never felt like i should get too involved with posting until i was certain that i had a problem with gluten. I knew that when i stumbled on this website and started reading about Celiac's disease, that i had a good lead on possible answers to why i was suffering from a slew of psychosomatic symptoms (depression, anxiety, ADHD, excessive mood changes, brain fog, fatigue/lack of energy, mild to severe abdominal discomfort and irregular bowel movements) that were negatively affecting my quality of life. Upon learning of Celiac and/or gluten intolerance, i decided it couldn't hurt to cut it out of my diet (along with dairy) for a few days just to see what the result would be. Well, to my surprise, after just a couple of days, i started to notice a drastic improvement. After a week or two, i got a taste of what it felt like to feel normal again. Amazing! From that point i was pretty certain that i had a problem with gluten, but needed to know for sure if it was Celiac or just a gluten intolerance. So i set up an appointment with my doctor in hopes to get tested for Celiac disease. He ordered me up some blood tests, virtually no questions asked. Anyways, to cut to the chase after all that rambling, the blood test results came back positive for Celiac Disease. Not exactly a comforting thing to hear, but at least i have the answer and hopefully now i can get on the right track to a healthier and happier tomorrow.

I look forward to becoming a regular participant of this forum and continuing to learn all i can about this disease.

All the best,

Derek

Skylark Collaborator
Skylark
Posted

Welcome to the exclusive online rice and potatoes club, Derek!

bridgeofsighs Apprentice
bridgeofsighs
Posted
  • Author
:D I lol'd, thank you for the warm welcome, ladies!

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    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
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      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
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      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
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