Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Beyond Irritated!


norahsmommy

Recommended Posts

norahsmommy Enthusiast

My 14 month old is chronically constipated. I have eliminated many foods from her diet due to constipation issues, painful bm's, weird colored stool, seeing all her undigested foods in her stools and so on. I took her to the doc today because she hasn't pooped since Friday and its Thursday now. They prescribed a stool softener and had an x-ray taken of her tummy to make sure there were not problems that kept the stool from passing. The doc I really dislike called me to let me know about the results. He said she was full up with poop (surprise) and that her colon looked a bit swollen. He said to Finnish the prescription then start her on a half cap of miralax 2 times a day. Then to up it to 2 full caps if that doesn't work. He gave no indication of when that would stop but the prescription I have will last for at least 2 weeks. It was alot. So alot longer than 2 weeks on a stool softener. He said it was likely she was just not getting enough fluids. That is NOT true because she is constantly drinking and has plenty of soaking wet diapers. Then he suggested running a humidifier in her room. When I mentioned that I thought it was food related and NOT due to lack of liquids he just skimmed over that and repeated the lack of fluid thing about 3 more times. So questions, is miralax gluten free?? and is it habit forming. Stool softeners have never worked for her in the past so why should they now, they don't work for me either for that matter or for my father. He can take them for 8 days straight and have NO bm's at all. I really wanted a referral to a pediatric GI but they didn't see a reason for it at this point. I gave her her prescription stool softener tonight before bed as it said to and she threw it up. So that didn't work.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I can so understand your frustration! Are you in an HMO situation where you absolutely must have a referral? If so, do you have the financial wherewithal to go outside the system, having explored the qualifications of a good pediatric GI? I would think at this point, having read your previous threads and posts, that this might be money well spent. Perhaps then you would have evidence to present to your HMO about what your daughter needs. If you are not thus restricted. If this is not the case then I would find another doctor immediately, because the one you have is not helping her.

CathyG Rookie

I had the exact same problem with my son. He was so bad that he had internal bleeding - he was in so much pain every time he had a dirty nappy and some times it would take over an hour for it happen. It was heartbreaking - I did everything, took him to all the doctors and gave him all the medication under the sun (which never worked). The way that I fixed it was to put him on a lactose free formula. It took a few days, but he became much more regular and the pain was gone.

The only thing is - that even still to this day, his poops are still a funny green colour, but that's the lactose free formula that's doing that.

Goodluck and I hope you manage to sort it out soon. I know how awful it is to watch them go through this.

shopgirl Contributor

Miralax is gluten free and is absolutely not habit forming. It's an osmotic which means it just pushes extra water into the intestines to soften things up. It's not a stimulant.

I was prescribed it and had no problems other than a little extra gas. Just make sure she's drinking a healthy amount of water. I don't know what it would be for a baby but I always drank at least 64 oz. a day and was fine.

Cypressmyst Explorer

This sounds like me when I was little. Take all dairy out of his diet. No milk, no cheese, nothing with casein in it (It likes to hide in things) and maybe throw in soy just to be sure, it likes to be sticky in the same way that gluten and casein are and can cause similar problems. I've been dairy free for a few months now and the one time I accidentally had some I stopped up for days. Gluten and Casein are kissing cousins, both very bad news. :(

Best of luck to your poor baby and you. Please let us know how it turns out!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748

    Beanography
    Newest Member
    Beanography
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.