False Positive?

[skippermay]

Hello All,

I stumbled across your forum whilst doing a general google search and have found it to be interesting and informative. I hope you don't mind me posting I am from the UK and have not found a UK based forum as yet.

I wondered if anyone had any opinions on my situation. After a number of years with anaemia on and off my GP recently carried out a blood test for coeliac (sorry don't know which one.) This came back as positive and I was referred to a GI consultant, when I attended my consultant appointment he was very dismissive of the blood test results and said that it was a false positive? I couldn't possibly be coeliac as I was "too tall" (I am 183 cm.) He said he would take more bloods I presumed just to humour me and my GP. These came back as positive for endomysial antibody and tTG > 300. I have been referred for endoscopy next week but consultant is still insisting that both of these results are sure to be false positive.

I know that I will have a clearer idea after endoscopy/biopsy results next week but wondered if anyone else had been told the above?

Thanks for any help.

[Jestgar]

This came back as positive and I was referred to a GI consultant, when I attended my consultant appointment he was very dismissive of the blood test results and said that it was a false positive? I couldn't possibly be coeliac as I was "too tall" (I am 183 cm.)

This "consultant" is an idiot. Find a real physician.

[ravenwoodglass]

I agree with previous poster. Not everyone with celiac is short or even thin for that matter. Celiac can be triggered at any time in your life but some doctors still think it is a 'childhood' disease. False negatives in both blood and biopsy are common but not false positives. After you are done with all the testing you choose to do get on the diet strictly.

We have members from all over the world, including the UK, so you are more than welcome here. Ask any questions you need to.

[Jestgar]

We have members from all over the world, including the UK, so you are more than welcome here. Ask any questions you need to.

Oh yeah, this too. I was so disgusted by the way you were treated that I forgot to welcome you.

[applegirl03]

The exact same thing happened to me and it delayed my diagnosis by months. Celiac does not discriminate against height, weight, age, sex, race, or lifestyle. That doctor is an idiot and even if you do the endoscopy and it comes back positive he wont know how to help you since he obviously knows nothing about celiac disease. Go to the Doctor section of the forum and ask people for a good Doctor in your area. Also look for celiac disease centers, they are few and far between but they are out there. I had a positive blood test and they didnt even need to do the scope because liek my doc said, if your having symptoms and your blood work is positive then you have it, no need to put you through another painful procedure, just eliminate it from your diet.

[Lisa]

Welcome to the Club Skipper!

[mushroom]

There is really little point in running tests if you are not going to believe the results, is there?? Now there ARE still a lot of doctors who consider the blood test to be a screening tool and want to do the endoscopy for confirmation, but to be so dismissive of all positive tests is beyond the pale. I know if you're in the UK you might be a bit restricted on doctors, but hopefully you can find a way to see someone who is a little more celiac knowledgeable. And we don't discriminate against anyone here - heck, they even let this Kiwi in! Welcome to the board.