Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could Lung Inflammation Be Related To Celiac?

vlm448

Recommended Posts

vlm448 Rookie
vlm448
Posted

I have been diagnosed (through biopsy) with an inflammatory lung disease.Minimal scarring and lots of inflammation. Dr. said immune system is in overdrive and need to be suppressed with steroids. I had a friend blow me away with suggestion that celiac disease could be the cause. I have had blood work and endoscopy (no biopsy)which dr. said revealed no celiac. I am so confused. Is this friend on to someting.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I have been diagnosed (through biopsy) with an inflammatory lung disease.Minimal scarring and lots of inflammation. Dr. said immune system is in overdrive and need to be suppressed with steroids. I had a friend blow me away with suggestion that celiac disease could be the cause. I have had blood work and endoscopy (no biopsy)which dr. said revealed no celiac. I am so confused. Is this friend on to someting.

If he did blood work for celiac and then an endoscopy, why, oh why, would he not biopsy for celiac while he was there??? :rolleyes: I had pneumonitis as a side effect of methotrexate, and I have a friend with interstitial pneumonitis who is also celiac. Maybe we just have weak lungs???

ravenwoodglass Mentor
ravenwoodglass
Posted

I can't answer for you but I know in my case the inflammation did have effects on my lungs. Prediagnosis I had chronic bronchitis and asthma. Both were considered to be a result of my smoking. I haven't had to use my inhalor or my singulair since I was diagnosed and my yearly bout of bronchitis has not appeared since either. In fact I haven't even had a cold more than once or twice now in over 8 years.

Cypressmyst Explorer
Cypressmyst
Posted

Gluten Sensitivity can definitely cause inflammation in the lungs. My husband suffered from Asthma since he was 8 years old (32 now) and after 6 months gluten free he can now run without dying. Very, very cool.

Gluten causes inflammation as the body attacks itself. If it attacks the villi in the small intestine we call it Celiac. If it attacks the thyroid we call it Hypo/Hyperthyroidism. If it attacks the lungs we call it asthma or likely one of those other names previously mentioned. If it is inflamed there is a better than good chance gluten is your culprit.

Try going gluten-free for a month and see how you feel. Better then any biopsy or blood test. ;)

eatmeat4good Enthusiast
eatmeat4good
Posted

My son has had severe asthma all his life and couldn't participate in sports and got short of breath walking.

He went gluten free when I did 4 months ago on a hunch it might help his fatigue and muscle weakness. Didn't dream it would get rid of his asthma. His lifetime of prednisone, inhalers and antibiotics didn't even manaage it very well. But 4 months gluten free and he has for the first time been able to take up jogging and hasn't had any problems with asthma at all.

I was so curious about that I googled vitamin deficiencies. One consequence of Vitamin D deficiency is severe asthma.

The above post about inflammation attacking different parts of your body is an interesting connection too.

His lungs, my thyroid and skin.

How many kids with asthma could be helped if only their parents knew? I'd taken him to specialists for years.

Yes, I believe there is a definite direct link between gluten and asthma.

However my study had only one participant with a 100% success rate. So I can't publish yet. Except here. Thanks for listening.

Cypressmyst Explorer
Cypressmyst
Posted

Amazing how little our doctors and specialists know isn't it? There is a very strong link between gluten and autoimmune conditions yet my endo laughed at me when I told him my thyroid was no longer swollen and my meds were going down (blood tests don't lie you jerk!) and said I wasn't wasting away so I couldn't have a gluten problem.

Get out of the stone ages doc... :rolleyes:

I have less and less respect for that M.D title I can tell you that.

  • 3 years later...
BoJonJovi Newbie
BoJonJovi
Posted

I am 56 and have had severe spring and fall allergies all my life mostly effecting my lungs and breathing. I also have moderate/severe COPD and have never smoked, and nothing in my life really explains it other that chronic asthma/allergies and or celiac. I was diagnosed though biopsy and blood test to have Celiac after I had  lung biopsy at National Jewish hospital in colorado. I had a lung biopsy and they found blood in the interstitial tissue of my lungs. When i asked the Dr. at National Jewish, the premier lung hospital of the world, if Celiac could explain the blood in the tissue he said it very could. Now that I have been diagnosed with Celiac I know that I have had ever since I was a kid. Although my allergies and asthma are still bad I have to think Celiac chewed my lungs up and perhaps caused or contributed to the lifelong allergies. My allergist does not feel asthma would cause the type of lung damage I have. 

 

Oddly I have been going to the same allergist since my early 20's. I told him several times through the years that when I get really I feel inflamed from my throat to my anus and I would get hemorrhoids during spring and fall airborne allergy season. Although allergists are called immunologist or doctors of Immunology, he never made the connection and never had me tested. You would think someone who deals with IGe all day would have a clue about IGg. 

 

When I had my over 50 colonoscopy I felt so horrible I told the gastro doctor that I have no referral for an endoscope but I would pay if my insurance would not. That is how they found Celiac. The damage was so severe the doctor new before the biopsy and told me right after I woke up from the procedure. I no longer have hemorrhoids but the lung damage is here to stay.  So a 56 year old lifelong health freak is now on supplemental oxygen. Ya I think Celiac had everything to do with it. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Steph1 Apprentice
Steph1
Posted

My son has had severe asthma all his life and couldn't participate in sports and got short of breath walking.

He went gluten free when I did 4 months ago on a hunch it might help his fatigue and muscle weakness. Didn't dream it would get rid of his asthma. His lifetime of prednisone, inhalers and antibiotics didn't even manaage it very well. But 4 months gluten free and he has for the first time been able to take up jogging and hasn't had any problems with asthma at all.

I was so curious about that I googled vitamin deficiencies. One consequence of Vitamin D deficiency is severe asthma.

The above post about inflammation attacking different parts of your body is an interesting connection too.

His lungs, my thyroid and skin.

How many kids with asthma could be helped if only their parents knew? I'd taken him to specialists for years.

Yes, I believe there is a definite direct link between gluten and asthma.

However my study had only one participant with a 100% success rate. So I can't publish yet. Except here. Thanks for listening.

My daughter has had wheezing, snoring, hay fever and sleep apnea since she was about 1.  The allergist. Prescribed nasal spray and said it is very possible it will progress to asthma.  I took her off gluten 3 weeks ago.  She didn't snore 1 night and had a normal bm.  She is beginning to keep up with other kids when playing.  She was glutened on Saturday so we've had symptoms until today.  I really hope the snoring is gone again tonight.  Oh another thing about ignorant doctors:  she had diarrhea for a month and always has gas pain.  They said it was a virus.

  • 1 year later...
ragan Newbie
ragan
Posted
On January 25, 2011 at 0:01 AM, Cypressmyst said:

Gluten Sensitivity can definitely cause inflammation in the lungs. My husband suffered from Asthma since he was 8 years old (32 now) and after 6 months gluten free he can now run without dying. Very, very cool.

 

Gluten causes inflammation as the body attacks itself. If it attacks the villi in the small intestine we call it Celiac. If it attacks the thyroid we call it Hypo/Hyperthyroidism. If it attacks the lungs we call it asthma or likely one of those other names previously mentioned. If it is inflamed there is a better than good chance gluten is your culprit.

 

Try going gluten-free for a month and see how you feel. Better then any biopsy or blood test. ;)

Ive had asthma since I was a child and it was in remission and now that I am gluten free I notice that when I have gluten I have a tight chest and can't breathe.  I am never wheezy though.  When I don't have gluten I am fine.

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    2. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    4. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    5. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.