Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having Surgery

Lindsay630

By Lindsay630
in Coping with Celiac Disease

Recommended Posts

Lindsay630 Rookie
Lindsay630
Posted

Hi Everyone,

I have not posted in a while but I read all the posts.....

Just found out I have to have a lump removed from my breast. I am really worried about the medications that will be given to me. Do any of you have a list of questions to ask the doctors to ensure that I will not get glutened in addition to the surgery. I really appreciate any advice. Thanks

Lindsay

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Hi Everyone,

I have not posted in a while but I read all the posts.....

Just found out I have to have a lump removed from my breast. I am really worried about the medications that will be given to me. Do any of you have a list of questions to ask the doctors to ensure that I will not get glutened in addition to the surgery. I really appreciate any advice. Thanks

Lindsay

Hopefully, this might be helpful:

Open Original Shared Link

Keep scrolling down from the above site. It has additional information that might be helpful.It has a couple of errors, but it errors on the side of safety, so not to worry.

...and I wish you all good news post surgery! ;)

kareng Grand Master
kareng
Posted

I would ask the doc what he might prescribe orally. IV shouldn't be a problem. If you need an after pain killer or antibiotic, maybe he could give you the script first. You could take it to the pharmacy and find out what they would give you so you can check with the manufacturer.

Good luck! Hoping it's a good result.

ravenwoodglass Mentor
ravenwoodglass
Posted

Kareng gave the same advice I would. I hope everything goes well.

cyberprof Enthusiast
cyberprof
Posted

Hi Everyone,

I have not posted in a while but I read all the posts.....

Just found out I have to have a lump removed from my breast. I am really worried about the medications that will be given to me. Do any of you have a list of questions to ask the doctors to ensure that I will not get glutened in addition to the surgery. I really appreciate any advice. Thanks

Lindsay

I would also mentioned that you should be concerned about your food if you're staying more than a day. I checked a local hospital (very well regarded one) and they said that they would not be able to supply me a gluten free diet. I'm sure that some hospitals can but you should ask ahead of time.

bridgetm Enthusiast
bridgetm
Posted

I would also mentioned that you should be concerned about your food if you're staying more than a day. I checked a local hospital (very well regarded one) and they said that they would not be able to supply me a gluten free diet. I'm sure that some hospitals can but you should ask ahead of time.

Yes! I had an arthroscopy on my knee last month and didn't think to mention that I have trouble with gluten (somehow I was able to tell the pre-op nurse taking my history about my "IBS" diagnosis without thinking of gluten). When I woke up a nurse was offering me a pain pill I knew was safe, but when she said "Let me just get you some crackers first" I thought "Oh, ****". That woke me up. But she knew of some safe options in their post-op fridge--- Thank God for applesauce! Thankfully, that was a same-day surgery. I took the one pill and waited until I got home to have a few more with some safe toast.

Nor-TX Enthusiast
Nor-TX
Posted

Oh my gosh, I am so happy I found this thread. I am facing 3 surgeries within the next 3 months. One will be outpatient, one a couple of days and one total knee replacement. I saw the Ortho surgeon yesterday and told him about my concerns and he said he completely understood. He told me he has IBS and knows the exact location of every bathroom in the hospital. He also told me to bring my own food. When I sort of looked surprised and said, "It's costing thousands per day, can't they provide a gluten free, dairy free menu" he said, "Are you willing to take the chance that your food might be CC?" He told me that I probably wouldn't be too hungry but I should plan and have my DH bring food each day. I will be in going home on the 4th day. I felt such a relief with what he told me. Now I don't have to sneak food in, or have the added stress that I might get glutened and be unable to make it to the bathroom in time... (Actually this fear is bigger than the knee surgery fear).

I am also going to have thyroid surgery during March break and from what I hear I won't be able to eat much. I plan on making jello and instant mashed potatoes and maybe mushed up fish or something.

Thank you for posting the GIG hospital information...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment. The cow's body builds that Casein protein. It doesn't come from wheat. Casein can trigger the same reaction as being exposed to gluten in some people. This is not a dairy allergy (IGE mediated response). It is not lactose intolerance...
    2. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the...
    3. Scott Adams
      - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go! I'm certain you'll feel much better. Yes, supplementation is a good idea even if you're healing and gluten free. The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities...
    5. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get cal...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,362
    • Most Online (within 30 mins)
      7,748
    DPC
    Newest Member
    DPC
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.