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Having Surgery

Lindsay630

By Lindsay630
in Coping with Celiac Disease

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Lindsay630 Rookie
Lindsay630
Posted

Hi Everyone,

I have not posted in a while but I read all the posts.....

Just found out I have to have a lump removed from my breast. I am really worried about the medications that will be given to me. Do any of you have a list of questions to ask the doctors to ensure that I will not get glutened in addition to the surgery. I really appreciate any advice. Thanks

Lindsay

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Lisa Mentor
Lisa
Posted

Hi Everyone,

I have not posted in a while but I read all the posts.....

Just found out I have to have a lump removed from my breast. I am really worried about the medications that will be given to me. Do any of you have a list of questions to ask the doctors to ensure that I will not get glutened in addition to the surgery. I really appreciate any advice. Thanks

Lindsay

Hopefully, this might be helpful:

Open Original Shared Link

Keep scrolling down from the above site. It has additional information that might be helpful.It has a couple of errors, but it errors on the side of safety, so not to worry.

...and I wish you all good news post surgery! ;)

kareng Grand Master
kareng
Posted

I would ask the doc what he might prescribe orally. IV shouldn't be a problem. If you need an after pain killer or antibiotic, maybe he could give you the script first. You could take it to the pharmacy and find out what they would give you so you can check with the manufacturer.

Good luck! Hoping it's a good result.

ravenwoodglass Mentor
ravenwoodglass
Posted

Kareng gave the same advice I would. I hope everything goes well.

cyberprof Enthusiast
cyberprof
Posted

Hi Everyone,

I have not posted in a while but I read all the posts.....

Just found out I have to have a lump removed from my breast. I am really worried about the medications that will be given to me. Do any of you have a list of questions to ask the doctors to ensure that I will not get glutened in addition to the surgery. I really appreciate any advice. Thanks

Lindsay

I would also mentioned that you should be concerned about your food if you're staying more than a day. I checked a local hospital (very well regarded one) and they said that they would not be able to supply me a gluten free diet. I'm sure that some hospitals can but you should ask ahead of time.

bridgetm Enthusiast
bridgetm
Posted

I would also mentioned that you should be concerned about your food if you're staying more than a day. I checked a local hospital (very well regarded one) and they said that they would not be able to supply me a gluten free diet. I'm sure that some hospitals can but you should ask ahead of time.

Yes! I had an arthroscopy on my knee last month and didn't think to mention that I have trouble with gluten (somehow I was able to tell the pre-op nurse taking my history about my "IBS" diagnosis without thinking of gluten). When I woke up a nurse was offering me a pain pill I knew was safe, but when she said "Let me just get you some crackers first" I thought "Oh, ****". That woke me up. But she knew of some safe options in their post-op fridge--- Thank God for applesauce! Thankfully, that was a same-day surgery. I took the one pill and waited until I got home to have a few more with some safe toast.

Nor-TX Enthusiast
Nor-TX
Posted

Oh my gosh, I am so happy I found this thread. I am facing 3 surgeries within the next 3 months. One will be outpatient, one a couple of days and one total knee replacement. I saw the Ortho surgeon yesterday and told him about my concerns and he said he completely understood. He told me he has IBS and knows the exact location of every bathroom in the hospital. He also told me to bring my own food. When I sort of looked surprised and said, "It's costing thousands per day, can't they provide a gluten free, dairy free menu" he said, "Are you willing to take the chance that your food might be CC?" He told me that I probably wouldn't be too hungry but I should plan and have my DH bring food each day. I will be in going home on the 4th day. I felt such a relief with what he told me. Now I don't have to sneak food in, or have the added stress that I might get glutened and be unable to make it to the bathroom in time... (Actually this fear is bigger than the knee surgery fear).

I am also going to have thyroid surgery during March break and from what I hear I won't be able to eat much. I plan on making jello and instant mashed potatoes and maybe mushed up fish or something.

Thank you for posting the GIG hospital information...

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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