Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Introductions And Information Frustration


RedShark92

Recommended Posts

RedShark92 Newbie

Hi all,

I guess I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rucko Apprentice

Good luck with your kitchen clean out. I found I had way more cupboard space when I got rid of all the stuff with gluten!!! I was appalled at the mountain of 'convenience foods' I had crammed in there, not to mention the big sacks of flour. There are more small packages for the different types of non-gluten grains and flours that you need for baking, but they still don't seem to take up as much room. And you'll need to get yourself a couple of gluten-free cookbooks, especially if you want to do any baking.

mushroom Proficient

The most important clean-out is the pantry. Find a good charity to donate things to, and then read the label on every single package in your pantry. Ditch everything with even a hint of gluten. Take everything out, scrub down the shelves and only put back in those things you know are safe. If there are to be gluten items in the house, put them on bottom shelves in the pantry and fridge so that they do not contaminate the rest of the food. Have a separate counter or cutting board for the making of gluten sandwiches and such.

When it comes to decision-making, err on the side of caution. You can still use cast iron pans, but only if you run them through the self-clean cycle of the oven and then reseason. Buy a toaster for gluten free only.. Replace wooden utensils and cutting boards, and any scratched plastic ware. I do think that personal care products should be gluten free - you can't guarantee these things are not going to find their way to your lips, eyes, whatever. Be super careful of gluteny kisses - toothbrushing is in order :D Also clean all your door knobs and handles and make the gluten eaters wash their hands after eating.

SGWhiskers Collaborator

Welcome to the board! Keep posting and asking questions. Everyone is really helpful. I'll address two of your concerns.

Hygine products including makeup, soaps, shampoos, etc.: In theory, the only time these items will cause a reaction is if you ingest them. The reality is that we get a little hair in our mouth on a windy day, shampoo trickles down our faces when we rinse, blush travels through the day off our cheeks onto our hands and into our mouths, hand lotion is transferred to the food we eat, and lipstick is just plain licked and swallowed. There are a few of us who still use gluten containing hygine items, but the majority of us have found we feel better or safer by switching to gluten free options. If you ask, people will give recommendations of brands from drugstore to department store.

Conflicting information: Yup, we've got it. Some is from old information, some is from lack of research, and some is from varied personal experiences. My advice is always to start out stricter than you think you need to be. It will help you heal and you can always add back questionable items after 3+ months of learning your new body. I wish I had taken my own advice in the beginning. I just had to do it the hard way and my recovery continued to suffer until I got super strict.

May I also compliment you and your family for listening to each other when the possibility of Celiac was introduced. So many families are stubborn about testing and it is refreshing to see you guys supporting each other.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,681
    • Most Online (within 30 mins)
      7,748

    Donna Ybarra
    Newest Member
    Donna Ybarra
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.