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Hashimoto's And Grave's :((((((

cassP

By cassP
in Related Issues & Disorders

Recommended Posts

cassP Contributor
cassP
Posted

anybody have both of these??? yes, im back, upset, and here to lean on you guys for any helpful advice at all. im frankly scared, because im afraid im never gonna feel better.

i basically have had hypo & hyper symptoms for at least 7 years now. just got dx with Hashi in October- i thought- GREAT- soon, we'll get the meds right and i will be finally feeling normal. since we added the Cytomel 2x a day to my Synthroid- i can honestly say my Shortness of Breath and Anxiety is 70% better!! but not there yet.

then today, i get the phone call, that i ALSO have Grave's :( :( :( how in the world does the doctor treat both of these conflicting diseases??? am i always gonna suffer from anxiety & shortness of breath for the rest of my life?? im so scared and worried. i was not scared at all with Celiac or Hashimoto's- these 2 can be easily treated, but Grave's-> there's nothing they can do for that right???? but sit and wait? and hope it doesnt get to the point where i need surgery or radiation???

does anyone on here have both? and have any light to shed ??????? i really need to see some light at the end of the tunnel.. im feeling really defeated, and scared, and sad. ive had such horrible luck in love, am 38, and now feel like maybe it's better that i havent gotten to have kids yet- since i have such horrible genes :(

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mommida Enthusiast
mommida
Posted

I was diagnosed over 15 years ago with Hashimoto's, so if my information seems outdated....

Hashmoto's is an auto-immune disease that causes your own immune system to attack the thyroid. In the beginning phases of the thyroid being destroyed it fights back. Some of the tests can show the thyroid is overactive (auto-immune over active thyroid is Grave's Disease) during the early stages of Hashimoto's.

Make sure you are working with an experienced Endocronologist.

cassP Contributor
cassP
Posted
  • Author

I was diagnosed over 15 years ago with Hashimoto's, so if my information seems outdated....

Hashmoto's is an auto-immune disease that causes your own immune system to attack the thyroid. In the beginning phases of the thyroid being destroyed it fights back. Some of the tests can show the thyroid is overactive (auto-immune over active thyroid is Grave's Disease) during the early stages of Hashimoto's.

Make sure you are working with an experienced Endocronologist.

thanks. ya, im positive on all 3 antibodies. so ive got them both :( my Endo is really great and open minded. tho i cant imagine how on earth you treat both at the same time- im really scared that my journey is never gonna get easy.. and ive already felt so bad for long enough.

meme2kids Rookie
meme2kids
Posted

What are you levels? Are you high thryoid hormone with elevated Antithyroid antiboies? Do you have a Goiter or Nodules? Is sounds almost as if you have an overactive thyroid which is a foreign body underattack by your immune system.

I have Hasimotos for 10 years, but normal thyroid function at my last test. I had been off thyroid meds for 3 years, but I had to go back on a week ago. I started deveolping more nodules. My doctor is pushing me into Hyperthryoism in order to shrink the nodules without having to remove, 1 mm more and I will have to have them removed.

I can't give you much help, but to let you know, I will soon be Hypo by nature, Hyper by meds and Celiac.

cassP Contributor
cassP
Posted
  • Author

meme: thanks 4 ur input- ur sit. sounds complicated too..

My tsh was 11.39 in oct. With my other numbers perfect mid range. Meds brought me down now to 2.44. Other numbers midrange. My TPO antib were 512. Another antib present in either hashi or graves was 185. And today they tell me the grave's antib were positive.

No goiter. Dont know about nodules.. But some swelling cause its hard to swallow pills or food sometimes.

cahill Collaborator
cahill
Posted

Cass,

I dont have any info or knowledge to share about Graves.

I just wanted to say hang in there and give you a really BIG over the internet (((((((HUG)))))))

cassP Contributor
cassP
Posted
  • Author

Cass,

I dont have any info or knowledge to share about Graves.

I just wanted to say hang in there and give you a really BIG over the internet (((((((HUG)))))))

thanku XXX

ive been reading A LOT... and learning about which supplements can help, and how avoiding Soy & of course Wheat are a must. i just really hope i end up as a "best case scenario" which ive read would be when the Graves just flares up in the beginning then dies off while the patient progressively just remains with Hashimoto's Hypothyroid. i really dont want to have it get to ER visits & radiation...

thanku again

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mommida Enthusiast
mommida
Posted

Well, I never knew I was the best case scenario option. Hashi & Graves to just Hashi. That is what happened for me. My thyroid has remained very "hard" and just started to soften in the last visit. In the previous year I really started to seriously take vitamin supplements of B12 and Biotin especially.

Muffy Rookie
Muffy
Posted

thanku XXX

ive been reading A LOT... and learning about which supplements can help, and how avoiding Soy & of course Wheat are a must. i just really hope i end up as a "best case scenario" which ive read would be when the Graves just flares up in the beginning then dies off while the patient progressively just remains with Hashimoto's Hypothyroid. i really dont want to have it get to ER visits & radiation...

thanku again

That is how I undertand it as well, that once the overactive thyroid (Graves) flares down the thyroid just remains damaged and in the underactive state. Be careful with the Graves. It almost killed me in 1995. I had NO idea anything was wrong at all, it was before most if my obvious wheat symptoms started to surface, right before actually. My heartate was 225 per minute at rest, my husband felt it pounding from sitting next to me on the couch but I didn't even notice! I ended up in the ER, where they ran all the tests twice because it was not supposed to be possible for me to be alive or at least not comatose with my levels what they were. They called it full T-Storm. Of course I don't know what these levels were becuase I was young and totally uniformed and this was long before I started to wise-up. Anyway, I was in the hospital for a week while I was stabalized and had the radiation treatment.

I didn't have other traditional Graves disease symptoms so they were suprised in the ER to find out that is what it was and I was literally about to drop dead from it. Be VERY careful if you plan to ride it out and let it settle on it's own. Had I known then what I know now I would have avoided radiation at all costs as well. My case was so severe though it may not have been possible. Knowing what you know will take you a long way, continue to research as much as possible and take an assertive role in your treatment. There are so many people that don't understand the link between their thyroid issues and thier diet, you are already 10 steps ahead!

cassP Contributor
cassP
Posted
  • Author

Well, I never knew I was the best case scenario option. Hashi & Graves to just Hashi. That is what happened for me. My thyroid has remained very "hard" and just started to soften in the last visit. In the previous year I really started to seriously take vitamin supplements of B12 and Biotin especially.

yes! i hope to be like you- and end up with just Hashi. i feel like im on a rollercoaster- we just slightly upped my dose- and ive got palpitations :( i really hope the Grave's enters it's own early grave thankyou very much

cassP Contributor
cassP
Posted
  • Author

That is how I undertand it as well, that once the overactive thyroid (Graves) flares down the thyroid just remains damaged and in the underactive state. Be careful with the Graves. It almost killed me in 1995. I had NO idea anything was wrong at all, it was before most if my obvious wheat symptoms started to surface, right before actually. My heartate was 225 per minute at rest, my husband felt it pounding from sitting next to me on the couch but I didn't even notice! I ended up in the ER, where they ran all the tests twice because it was not supposed to be possible for me to be alive or at least not comatose with my levels what they were. They called it full T-Storm. Of course I don't know what these levels were becuase I was young and totally uniformed and this was long before I started to wise-up. Anyway, I was in the hospital for a week while I was stabalized and had the radiation treatment.

I didn't have other traditional Graves disease symptoms so they were suprised in the ER to find out that is what it was and I was literally about to drop dead from it. Be VERY careful if you plan to ride it out and let it settle on it's own. Had I known then what I know now I would have avoided radiation at all costs as well. My case was so severe though it may not have been possible. Knowing what you know will take you a long way, continue to research as much as possible and take an assertive role in your treatment. There are so many people that don't understand the link between their thyroid issues and thier diet, you are already 10 steps ahead!

thanku SO MUCH muffy!! i hope i wont be riding it out.. will be talking to my doc's nurse on monday.. and have 2 thyroid panels in the next 3 months. just so scared cause i dont understand it all yet. i still cant believe i have both- i mean what a pain the AAAAAAAAA

mommida Enthusiast
mommida
Posted

I didn't want to scare you about the Grave's, but it is very serious. Stay on top of the thyroid symptoms, and if you think it's time to go to the hospital GO.

cassP Contributor
cassP
Posted
  • Author

I didn't want to scare you about the Grave's, but it is very serious. Stay on top of the thyroid symptoms, and if you think it's time to go to the hospital GO.

thanku- but i was already scared about the Graves... that's why im so freaked and cant wait to talk to my Endo. ive been saying for MONTHS to family and friends- "oh Please- Celiac & Hashi are EASY- if you're gonna have to have any Autoimmune Diseases- those are the ones to have.. but that Graves would suck- i would never want that one- " oy vey

i really hope they die off. im a little sad- because ive got a whole box of gluten free soy sauce packets- for when i go out with friends for sushi- and i think i need to be 100% vig. off of soy now :(

except for the heat, anxiety, and recent mild palpitations, my Graves seems to be secondary to my Hashi symptoms... so hopefully they'll just fade into oblivion.

ok, sorry to ramble.. and thanku friends

parrfunkel Newbie
parrfunkel
Posted

I'm not positive for both, just hashi's. Just wanted to sharebwhat I've read from some other ladies on a thyroid forum I read. It seems (and again just relaying others experience) in the case it's typical to lean one way or the other meaning if your hypo the hashi's is dominant and if your hyper (not from meds but naturally hyper) the graves is dominant.

It's possible it could switch so regular blood work will be very important for you.

It seems, from what I know through my research, the end result will be hypothyroidism. Graves antibodies attach to recouped in the thyroid causing over production. Hashi's attacks the tissue that produces thyroid hormones. I would think that the tissue damage caused by hashi's will eventually disrupt the graves ability to stimulate over production. That's just my thinking though.

Hope you do well and feel better soon

cassP Contributor
cassP
Posted
  • Author

I'm not positive for both, just hashi's. Just wanted to sharebwhat I've read from some other ladies on a thyroid forum I read. It seems (and again just relaying others experience) in the case it's typical to lean one way or the other meaning if your hypo the hashi's is dominant and if your hyper (not from meds but naturally hyper) the graves is dominant.

It's possible it could switch so regular blood work will be very important for you.

It seems, from what I know through my research, the end result will be hypothyroidism. Graves antibodies attach to recouped in the thyroid causing over production. Hashi's attacks the tissue that produces thyroid hormones. I would think that the tissue damage caused by hashi's will eventually disrupt the graves ability to stimulate over production. That's just my thinking though.

Hope you do well and feel better soon

thankyou for your thoughts- it makes sense... i think im starting to calm down now- i just wanna feel better now :(

im pretty sure im Hashi dominant... but even just now- i got the worst palpitations... and im always hot-- i honestly think im having both symptoms at the same time- but definitely more Hashi.

i just switched to Armour this week- and the dosage is not high enough at all- feel like ive been hit by a truck.. i hope they can up it this week- not good at all

thankyou again!!!! it does help

Igg postive Rookie
Igg postive
Posted

I am new to this board but I am not new to Thyroid problems. Hypo for many years. There is a great site on (about) web site that is run by Mary Shomon she handles both hypo and Graves. Great Endo is the key to Thyroid desease. It is worth looking around.

  • 6 months later...
kennedymoore Rookie
kennedymoore
Posted

thankyou for your thoughts- it makes sense... i think im starting to calm down now- i just wanna feel better now :(

im pretty sure im Hashi dominant... but even just now- i got the worst palpitations... and im always hot-- i honestly think im having both symptoms at the same time- but definitely more Hashi.

i just switched to Armour this week- and the dosage is not high enough at all- feel like ive been hit by a truck.. i hope they can up it this week- not good at all

thankyou again!!!! it does help

I've never heard of a dual Graves/Hashi Dx. I have Hashi. Besides hair loss I feel great. I attribute that to taking vitamin D3 and getting my iron issues resolved. My oncologist started me on EZFe iron supplement. It is incredible. I would suggest that you take a soy-free D3 (Premier Research Labs), soy-free Omega 3 (no omega 6 or 9), vitamin C.

pricklypear1971 Community Regular
pricklypear1971
Posted

Well, I have Hashis and didn't know you could have both. I've also had palpitations; however, they have pretty much stopped since going gluten-free AND taking a multivitamin - I think magnesium/calcium is supposed to be key.

Good luck.

Now I have to rethink things, grrr.

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