Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oatmeal?


Shashi

Recommended Posts

Shashi Apprentice

Is oatmeal allowed on a gluten free diet? I thought it wasn't, but then saw the list of gluten-free products that Earth Fare sells, and they have oatmeal listed. (I love oatmeal! I love cream of wheat too, but that's obviously out of the question.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ElseB Contributor

Pure uncontaminated oats are safe. Although some people can't even tolerate the pure ones. Oats themselves don't contain the gluten protein, but the reason oats have always been on the unsafe list is that most commercial produced oats (like Quakers) are contaminated with gluten grains during processing. So ONLY oats labelled as gluten free are safe. If not labelled gluten free, they're contaminated.

Monklady123 Collaborator

Is oatmeal allowed on a gluten free diet? I thought it wasn't, but then saw the list of gluten-free products that Earth Fare sells, and they have oatmeal listed. (I love oatmeal! I love cream of wheat too, but that's obviously out of the question.)

Yes, I miss oatmeal also. As HelpMe said you can buy gluten free oatmeal. There's also a hot cereal by Bob's Red Mill -- I forget the name but it's something like The Best Hot Cereal Ever. :lol: There's also grits which make a good hot cereal. And Cream of Rice. Grits and the Cream of Rice are the least expensive because they're not specialty products like the others are.

Yes, I've investigated all sorts of hot cereals to replace my oatmeal. lol.. B)

tarnalberry Community Regular

Standard, non-certified gluten free, oats are contaminated in the growing, harvesting, and processing process. Significantly contaminated. Don't eat them.

Certified gluten free oats are grown, harvested, and processed to be "gluten free", and are usually tested.

But, because the oat protein, avenin, is very similar to the wheat protein, gliadin, approximately 10% of celiacs cross react to gluten free oats, and cannot eat them. There's no way to know if you're one of these without trying oats and finding out for yourself (and if you're a silent celiac, that requires follow up biospy to determine if there is damage).

Darn210 Enthusiast

Also, if you are going to give gluten free oatmeal a try, it's usually best to wait until you've been gluten free for a while (my daughter's doc recommended 6 months). Then you've had a chance to heal so you would be less likely to react and also to learn the diet so that if you have a problem, you are better able to determine if it was the oatmeal.

AmyE Newbie

I use gluten-free oats from health food store!! Pricey but worth it for me!

bridgetm Enthusiast

I always keep Bob's Steel Cut Oats (get the package labeled gluten-free; he also sells one that's not) and Gluten Freeda's instant oatmeal stocked in my dorm. I can handle one packet of the instant (apple & cinnamon :D ) and less than 1 cup of the steel cut. A few times I have tried having seconds a while later and end up in pain with an hour. BUT when you just need to satisfy that oatmeal craving or need a fast hot breakfast, it's good to have around.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MelindaLee Contributor

Bob's Red Mill's Mighty Tastey Hot Cereal is the one I found to be the closest to Cream of Wheat. I too loved to eat this before going gluten-free. One word of caution, even with gluten-free oatmeal, if I eat too much, I feel not so well. It's not the same as eating gluten, but just not feeling so well. Once I stop for a few days, I can eat it again. Glutenfreeda has prepackaged instant oatmeal as well. I find it needs more water than the 2/3 of a cup it calls for. I like mine a bit creamier...so it needs more water (or milk) and cooked longer to get to that consistency. Happy Eating!! :lol:

Karl Otto Explorer

Is oatmeal allowed on a gluten free diet? I thought it wasn't, but then saw the list of gluten-free products that Earth Fare sells, and they have oatmeal listed. (I love oatmeal! I love cream of wheat too, but that's obviously out of the question.

I use to be able to eat oatmeal as a child but, I do not remember any sickness from eating them. It was not until, I reached my 21 birthday before, I took note of inter-action with this cereal. Since, that birthdate, I have not been able to eat oatmeal without re-action to it.

One of the posters said most people with celiac disease cannot tolerate this product. They would be correct as far as I am concerned. So, I stay far away from Oatmeal or other oatmeal products.

Although, I would like to be able to eat real breakfast food again but, the good lord will not permit me to eat normal food again. That is so sad for me. I would love to be able to once more get up in the mornings and have a normal breakfast but, again that is never going to happen again.

  • 2 weeks later...
AngieH Newbie

As it turns out, it appears from studies that oats really are safe for Celiacs to eat with one caveat. They must be PURE and UNCONTAMINATED if a Celiac is to tolerate oats in their diet.

What you have to be worried about is cross-contamination. Oat products are frequently contaminated with wheat, barley, rye, spelt and other gluten containing grains. For an oat product to be considered pure means it is only oats and has not been mixed with or exposed to other grains containing gluten.

Angie.

mushroom Proficient

As it turns out, it appears from studies that oats really are safe for Celiacs to eat with one caveat. They must be PURE and UNCONTAMINATED if a Celiac is to tolerate oats in their diet.

This is true for a majority of celiacs. However, a certain percentage cannot tolerate them no matter how pure and uncontaminated they are.

sandsurfgirl Collaborator

Cream of rice is very good. I waited a year before I tried gluten free oats and I'm fine with them. They are very expensive but I do like them once in awhile. I throw a half cup of gluten free oats in my gluten free pancakes for added fiber.

  • 1 year later...
Cristina4268 Newbie

I saw this and went out to Wegman's and Purchased Bob's Red Mill gluten-free oatmeal. I ate it.. I had a slight reaction.. And I didn't think I was hyper sensitive. :( I'm sad because I love oatmeal too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,907
    • Most Online (within 30 mins)
      7,748

    Lori4050
    Newest Member
    Lori4050
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.