Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oatmeal?


Shashi

Recommended Posts

Shashi Apprentice

Is oatmeal allowed on a gluten free diet? I thought it wasn't, but then saw the list of gluten-free products that Earth Fare sells, and they have oatmeal listed. (I love oatmeal! I love cream of wheat too, but that's obviously out of the question.)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ElseB Contributor

Pure uncontaminated oats are safe. Although some people can't even tolerate the pure ones. Oats themselves don't contain the gluten protein, but the reason oats have always been on the unsafe list is that most commercial produced oats (like Quakers) are contaminated with gluten grains during processing. So ONLY oats labelled as gluten free are safe. If not labelled gluten free, they're contaminated.

Monklady123 Collaborator

Is oatmeal allowed on a gluten free diet? I thought it wasn't, but then saw the list of gluten-free products that Earth Fare sells, and they have oatmeal listed. (I love oatmeal! I love cream of wheat too, but that's obviously out of the question.)

Yes, I miss oatmeal also. As HelpMe said you can buy gluten free oatmeal. There's also a hot cereal by Bob's Red Mill -- I forget the name but it's something like The Best Hot Cereal Ever. :lol: There's also grits which make a good hot cereal. And Cream of Rice. Grits and the Cream of Rice are the least expensive because they're not specialty products like the others are.

Yes, I've investigated all sorts of hot cereals to replace my oatmeal. lol.. B)

tarnalberry Community Regular

Standard, non-certified gluten free, oats are contaminated in the growing, harvesting, and processing process. Significantly contaminated. Don't eat them.

Certified gluten free oats are grown, harvested, and processed to be "gluten free", and are usually tested.

But, because the oat protein, avenin, is very similar to the wheat protein, gliadin, approximately 10% of celiacs cross react to gluten free oats, and cannot eat them. There's no way to know if you're one of these without trying oats and finding out for yourself (and if you're a silent celiac, that requires follow up biospy to determine if there is damage).

Darn210 Enthusiast

Also, if you are going to give gluten free oatmeal a try, it's usually best to wait until you've been gluten free for a while (my daughter's doc recommended 6 months). Then you've had a chance to heal so you would be less likely to react and also to learn the diet so that if you have a problem, you are better able to determine if it was the oatmeal.

AmyE Newbie

I use gluten-free oats from health food store!! Pricey but worth it for me!

bridgetm Enthusiast

I always keep Bob's Steel Cut Oats (get the package labeled gluten-free; he also sells one that's not) and Gluten Freeda's instant oatmeal stocked in my dorm. I can handle one packet of the instant (apple & cinnamon :D ) and less than 1 cup of the steel cut. A few times I have tried having seconds a while later and end up in pain with an hour. BUT when you just need to satisfy that oatmeal craving or need a fast hot breakfast, it's good to have around.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MelindaLee Contributor

Bob's Red Mill's Mighty Tastey Hot Cereal is the one I found to be the closest to Cream of Wheat. I too loved to eat this before going gluten-free. One word of caution, even with gluten-free oatmeal, if I eat too much, I feel not so well. It's not the same as eating gluten, but just not feeling so well. Once I stop for a few days, I can eat it again. Glutenfreeda has prepackaged instant oatmeal as well. I find it needs more water than the 2/3 of a cup it calls for. I like mine a bit creamier...so it needs more water (or milk) and cooked longer to get to that consistency. Happy Eating!! :lol:

Karl Otto Explorer

Is oatmeal allowed on a gluten free diet? I thought it wasn't, but then saw the list of gluten-free products that Earth Fare sells, and they have oatmeal listed. (I love oatmeal! I love cream of wheat too, but that's obviously out of the question.

I use to be able to eat oatmeal as a child but, I do not remember any sickness from eating them. It was not until, I reached my 21 birthday before, I took note of inter-action with this cereal. Since, that birthdate, I have not been able to eat oatmeal without re-action to it.

One of the posters said most people with celiac disease cannot tolerate this product. They would be correct as far as I am concerned. So, I stay far away from Oatmeal or other oatmeal products.

Although, I would like to be able to eat real breakfast food again but, the good lord will not permit me to eat normal food again. That is so sad for me. I would love to be able to once more get up in the mornings and have a normal breakfast but, again that is never going to happen again.

  • 2 weeks later...
AngieH Newbie

As it turns out, it appears from studies that oats really are safe for Celiacs to eat with one caveat. They must be PURE and UNCONTAMINATED if a Celiac is to tolerate oats in their diet.

What you have to be worried about is cross-contamination. Oat products are frequently contaminated with wheat, barley, rye, spelt and other gluten containing grains. For an oat product to be considered pure means it is only oats and has not been mixed with or exposed to other grains containing gluten.

Angie.

mushroom Proficient

As it turns out, it appears from studies that oats really are safe for Celiacs to eat with one caveat. They must be PURE and UNCONTAMINATED if a Celiac is to tolerate oats in their diet.

This is true for a majority of celiacs. However, a certain percentage cannot tolerate them no matter how pure and uncontaminated they are.

sandsurfgirl Collaborator

Cream of rice is very good. I waited a year before I tried gluten free oats and I'm fine with them. They are very expensive but I do like them once in awhile. I throw a half cup of gluten free oats in my gluten free pancakes for added fiber.

  • 1 year later...
Cristina4268 Newbie

I saw this and went out to Wegman's and Purchased Bob's Red Mill gluten-free oatmeal. I ate it.. I had a slight reaction.. And I didn't think I was hyper sensitive. :( I'm sad because I love oatmeal too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.